Patient Critical Co-op

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Life expectancy is rising in Finland – unlike in the UK and US. What’s going right? (Hint: Scandinavian countries invest in social services) https://t.co/FiZLXFtAuk via @guardian #sdoh

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Yep, McMaster's got awesome programs, if you look.

But how are kids to learn language, maths, social studies. Health, sciences, social interaction, sex-ed, finances & budgeting. cooking & nutrition, digital literacy, #HEALTHCARE?

We need to teach the basics from public school.

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It's hard to know which internet resources to trust. Especially in #healthcare.

We invite you to submit websites & resources you trust to @PatientCritical co-op. To help others, we will link to them (after vetting) on our free, public resource hub: https://t.co/2cSKsgORof

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Education IS lacking for patients, along with what to trust online.

That's why we invite everyone to submit healthcare websites & downloadable resources to us at https://t.co/HP5Vm5xQby

We will link them after vetting on our free, public resource hub: https://t.co/2cSKsgORof

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Some of the reasons clinicians still cite for continuing to limit #patientinclusion in their own care.

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It is true: some patient groups are funded by lobby groups & co's with agendas other than patient recovery. We do need more patient-funded voices in HC.

To use that to argue against clinician's need for data on efficacy, or suggest patients are biased, is base misdirection.

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Did you know Canada has a 100% #patient- & #caregiver- owned voice in #healthcare?

@PatientCritical co-op takes NO money from gov or biz, because we believe that's the only way to ensure our #patientvoice reflects genuine #patientexperience.

Join us: https://t.co/rr2gW0ibOn

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On farmers, poor internet connectivity & #mentalhealth: “To be able to(video chat)in the privacy of their home(& avoid)several hours of travel...makes it easier for them to accept the help…but they need to have that connectivity.”
@gregswings @gregs_sis
https://t.co/KN0iIfmuqd

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This is such an important distinction. Right now, #patientengagement is a hashtag and token buzzword.

Until there are clear, quantifiable procedures, training & research *with public findings* supporting #patientsaspartners in research & PFACs...it can be nothing more.

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14h

"Greater practitioner empathy or communication of positive messages can have small patient benefits for a range of clinical conditions, especially pain" https://t.co/yzay2qaFOQ

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The ROI in #healthcare is #health and #care.

Compensation and innovations, both important, are still side benefits, not feature sets. #pinksocks #s4pm

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(((Farrah Schwartz)))@FarrahSchwartz·

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Example of experience-based co-design. Redesigned MRI based on data from children and family MRI experiences, co-designed with children. Has led to reduced need for children to be sedated during MRIs and other positive outcomes #HQT2018

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Jess Havens @JessHavens_·

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What happens when we stop ignoring the knowledge of patient communities? And instead be better together using knowledge from healthcare providers and patients/family?
= lessening the burden of chronic illness
@danamlewis #QS18 #wearenotwaiting

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Ali @abidma09·

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Love these !! #qs18

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To all patients & caregivers at #HQT2018: let's keep building connections, learning & sharing together!

Add your name to @PatientCritical's free, public Advocates Directory. Share knowledge with others, learn from others & build your network & community: https://t.co/CnHuOrMoNo

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Residential schools were run by churches, funded by federal gov't. Inquests included no indigenous members.

We still don't have so many things right...concerning social determinants of health, the access to health & #codesign of care or #healthequity

#HQT2018 @TanyaTalaga #sdoh

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Seven Fallen Feathers author @TanyaTalaga talks at #hqt2018 about listening.

Status Indians didn't get right to vote until 1960. She wanted to learn why so few Indigenous people vote.

The people she talked to wanted to know why so few Cdns seem to know/care about them. #HQT2018

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Margaret Harvey @margaretmharv·

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Also, doctors are woefully under qualified to treat pain. Dr. David Caplan revealed that his one day of pain management training in medical school at UofTwas hosted by a pharmaceutical company. #HQT2018

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FP Gauvin @forumCDNhealth·

10 Oct

Register now for one of @McMasterForum's webinars, which will help ensure citizens, patients and caregivers are better positioned to advocate for the changes they want to see in their system when opportunities arise https://t.co/G5cvae7wVE #ONhealth @OSSUtweets

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Alison Steeves @AlisonSteeves1·