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Dr. Brian Goldman @NightShiftMD·

19 Jan

This. This. And this. https://twitter.com/thesgem/status/1218717089801830402

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Patient Critical Co-op @PatientCritical·

13h

"Never assume that what you are seeing or experiencing is everyone else’s reality. Look to data to give you a clear picture...leaders in the field to give you a sense of where things are going. And in the case of online communications...sometimes means e-patients, not clinicians"

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Patient Critical Co-op @PatientCritical·

14h

.@susannahfox captures why continued investing in #data #silos is wrong:
"We should all be working toward freeing the data &..., building the infrastructure & tools that allows someone to..say, “Yes, I’m ready. Now, how do I get my data?” https://susannahfox.com/2019/09/16/why-should-anyone-care-about-health-data-interoperability/ #takeontech2020

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Patient Critical Co-op @PatientCritical·

14h

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

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Sean Molloy @SeanJMolloy·

24h

There is no greater manifestation of this than electronic medical records - designed for billing/utilization, not people. The greatest workaround is “the portal.” #design #EMR #EHR @mulegirl https://twitter.com/mulegirl/status/1218568764213493760

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Ryan Doherty, PhD @ryansdoherty·

17 Jan

@jillpromoli @AngieHamson @anetto @SolidFooting @PFEAMorin @pttopt @GilmanFamily @couragesings @PatientCritical
When going to a hospital, nursing home, or healthcare facility during flu season, would you want to know the % of staff who had received a flushot? Some are as low as 15-50%...

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Patient Critical Co-op @PatientCritical·

16 Jan

Very promising! Agree Canada needs to own its own data cohort of this size/kind.

Am curious what protections you have to ensure orgs don't use data in unintended ways-as with @23andMe sale to @GSK, Google/Deepmind/NHS & other public trust/#bigdata controversies?

#CADTHtalks

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Paul Wright RN @paulwrightpfcc·

15 Jan

Proud to share Alberta Health Services has officially launched its educational #endpjparalysis website for patients, families , care providers and interested colleagues across the world. https://www.albertahealthservices.ca/info/Page15971.aspx @BrianwDolan @ikhenderson @PeteGordon68 @JenniferSymon1 @mkfrdmn

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Dr. Theresa Tam@CPHO_Canada·

15 Jan

Cdns use the health system in many ways—medical appointments, flu clinics, medical emergencies. All parts of Canada’s health system can help eliminate #stigma as a barrier to care. Find out how you can join me to #EndStigma: http://ow.ly/QvwX50xPeKm

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Retweet on Twitter Patient Critical Co-op Retweeted

Julie Drury @SolidFooting·

15 Jan

What do you mean when you say X?

Understand your organizational culture when it comes to partnering with families, then ask "What can we do better?" https://twitter.com/KathyKastner/status/1217260050013655040

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Retweet on Twitter Patient Critical Co-op Retweeted

Dr. Brian Goldman @NightShiftMD·

15 Jan

'A good news story': Lanark becomes first in Canada to adopt Icelandic model for reducing teen social harm http://ottawacitizen.com/news/local-news/a-good-news-story-lanark-becomes-first-in-canada-to-adopt-icelandic-model-for-reducing-teen-social-harm/ If you want to know what it's about, check out this episode of @cbcwhitecoat : http://bit.ly/2CRPc2R

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Victor Montori, MD@vmontori·

15 Jan

Great grand rounds at @MayoClinicEndo by Professor @doreen_rabi on the challenges of guidelines and care including this set of great quotes including one by @KerUnit’s @ihargraves

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Patient Critical Co-op @PatientCritical·

15 Jan

A5: NONE OF THE ABOVE until Patients, Families and Caregivers have a seat at the very first table:
where decisions are made. In board rooms, the admin offices, C Suites.

There is no #codesign & we'll never be #BetterTogether without that level of #codesign to start.

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Patient Critical Co-op @PatientCritical·

15 Jan

Yes! PFC Presence lacks process, tools and techniques to manage the people side of change in healthcare!

Without hard numbers & strong commitments we can't achieve any outcomes, or truly focus on how people & processes are impacted by the changes we are making. #BetterTogether

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Patient Critical Co-op @PatientCritical·

15 Jan

Involve patients, caregivers and families from the beginning.

That means hard targets, and advocating for funding changes based on successes and challenges to meet true #codesign.

Sentiment alone will not make us #BetterTogether, it has to be genuinely responsive & inclusive.

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Patient Critical Co-op @PatientCritical·

15 Jan

A3: Teach PFAC how to emotionally & within their institutional role, truly advocate for the patients.

How many of us have heard PFACs side w/staff against patients they're there to serve, when labeled difficult?

Guidelines, funding & oversight remain challenges. #BetterTogether

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Retweet on Twitter Patient Critical Co-op Retweeted

kathy kastner @KathyKastner·

15 Jan

#BetterTogether jumping in late T3: may sound simple, may be considered a 'given' : ensure your PFAC understand acronyms, jargon, the language of health care, and not afraid to ask

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Patient Critical Co-op @PatientCritical·

15 Jan

A3: The practices and policies of PFC presence include many of the same aspects as most advocacy in healthcare:
#education about patient rights & roles
#accountability & #transparency on behalf of orgs #interoperability & #regulations to ease barriers to care #BetterTogether

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Patient Critical Co-op @PatientCritical·

15 Jan

Q3: We need to ask clinicians & orgs for much greater PFC presence. We are mostly not part of th discussion y-et.
We're very fortunate-all of us talking here.
We need to expand our community & bring this sense of #healthliteracy & empowerment to many more of us. #BetterTogether.

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Laurie Proulx @ProulxLaurie·

15 Jan

@SolidFooting @TheChangeFdn @CFHI_FCASS How about health care providers introduce themselves to caregivers? My husband feels excluded from conversations because no one acknowledges his presence. I have introduced him but he should really be welcome first and foremost by the provider.

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