Patient Critical Co-op

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Stories

Hear
- Awake During Surgery
Read
- Rachel Martens: Advocacy, Parenting & 'Callings'
- Robin McGee: Medical Error, Digital Health Failures
- Perceptions & Icebergs
- Maneesh Juneja: Being Human
- Morgan Gleason: Transition to Adult Care
- Prince Harry: Everyone Struggles (even Royalty)
Watch
- Brian Goldman-Medicine's Culture of Denial
- The Doctor-Patient Tango
- Sickboy: Jeremie Saunders documentary
- Morgan Gleason: respect, listen to Patients
- 'ePatient' Dave deBronkart
- Caregiving-a Patient perspective

Toolkit

Guides
- Tests and Treatments
Infographics
- Articles coming soon
Posters
- Tests and Treatments

Compliments and Complaints Hotline
Evaluating Internet Resources
Health Care Service Complaints
HQOntario Patient Engagement Resources
Informed Consent
Patient Care Quality
Patient Ombudsman
St Michael's: Patient Engagement Resources
Jargon Buster for Patients in Research
5 Reasons Care Improves When Patients Own, Access Data
Nova Scotia Engagement Resources
Ottawa Personal Decision Guide
Evaluating Health Resources
Exams and Checkups
Health Teams and Referrals
Tests and Treatments
Prescriptions and Medicine
Improve Patient-Doctor Relationships
Tips & Tools for Caregivers

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Digital Healthcare

Health Portals
Personal Health Record
- eChart Manitoba
- Saskatchewan Citizen Health Information Portal
- Sunnybrook MyChart
- Open Notes

FHIR: Fast Healthcare Interoperability Resources

Advocacy

Service Availability
- Canadian Ambulance Fees
Patient Safety
Quality Improvement
- Health Quality Ontario
- The Change Foundation
- Canadian Foundation for Healthcare Improvement
- Choosing Wisely
- Institute for Healthcare Improvement
- Health Quality Council of AB
- Saskatchewan Health Quality Council
- Canadian Foundation for Healthcare Improvement
- Point of Care Foundation
- ICES
- HQOntario
- CADTH Canadian Agency for Drugs and Technology in Health
- Patient Revolution
Public Awareness

Recruiting for Diversity PDF
World Health Organization

Education

Medical Professional
- Med School Digital Health Resources
Research Oriented
- Strategies for Patient-Oriented Research
- Ontario SPOR Support Unit
Advocacy Skills Development
- Choosing Meaningful Projects (PDF)
- Communication & Literacy Articles (CFHI)
- Human Resources for Health
- Patient Views on 'Ladder of Engagement'
Journals
Health Literacy

Longwoods

By Region

Federal
- Health Canada
- Lived Experience Training (CDRIN)
- Canada's MInistry of Health & Long Term Care
- CADTH Canadian Agency for Drugs and Technology in Health
International
- Australian Digital Health Agency
- European Medicines Agency
- US Health & Human Services
- Patient Revolution
Provinces and Territories
- Alberta
  - Alberta Health Services
- British Columbia
  - Patient Voices Network
- Manitoba
  - College of Physicians & Surgeons of MB
  - eChart Manitoba
- Yukon Territories
  - Yukon Medical Council
  - Yukon Ombudsman
- Northwest Territories
  - Health Care Service Complaints
- Nunavut
  - Articles coming soon
- Ontario
  - Local Health Integration Networks
  - Ontario SPOR Support Unit
  - Health Quality Ontario
  - HQOntario Patient Engagement Resources
  - Ontario Hospital Association
  - Patient Ombudsman
- Newfoundland and Labrador
  - Department of Health and Community Services
  - Citizens' Representative Complaints
- New Brunswick
  - Articles coming soon
- Quebec
- Nova Scotia
  - MyHealthNS
  - Nova Scotia Engagement Resources
- Saskatchewan
  - Saskatchewan Citizen Health Information Portal
- Prince Edward Island
  - Compliments and Complaints Hotline
- Articles coming soon

Regulatory Bodies

College of Physicians & Surgeons of MB
Ontario College of Pharmacists
Ontario College of Physiotherapists
Canadian Association of Social Workers
College of Nurses of Ontario
College of Occupational Therapists of Ontario
Canadian Association of Pediatric Health Centers
Canadian Association of Social Workers
Canadian Medical Association
Canadian Nurses Association
College of Dietitians of Ontario
Canadian Nursing Association

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Research

Cochrane Evidence & Literacy Resources
Clinical Trials Ontario
Canadian Institute for Health Information
Cochrane
Baycrest
CIHR
Vanier Institute
Critical Care Strategic Clinical Network
Ontario Telehealth Network

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Resource Collections

Cochrane Evidence & Literacy Resources
Hatching Ideas Hub
Change Foundation Caregiver Resource Hub
machealth resources
Patient/Family Resource Kit
McMaster Optimal Aging Portal
CEPP Resources (French & English)

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Consumer Digital Health

Apps
- EaTracker
- Android Wear
- HabitBull
- Fooducate
- Bant App
- Headspace
- <30 Days
- Calm
- Carrot Rewards
- Lose It!
- Pact
- Runtastic
Tech
- Google Fit
- AliveCor EKG
- MySugr Scanner
- Muse EEG headband
Online Tests
- 23andMe
- HereToHelp: mental health, substance abuse screening
Fitness & Monitoring Services
- MyFitnessPal
- NOKIA Health
- Fitbit
- Apple Health

Patient Engagement

Engaging Patients & Public in Overuse
Primer: Patient Safety & Quality
Center for Patient Partnerships
The Beryl Institute
British Columbia Patient Engagement
Ontario Patient Engagement
Patient Voices Network
Patients Included
Imagine Citizens
Center of Excellence on Partnership with Patients and the Public

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Public Engagement

Feedback and Complaints
- Citizens' Representative Complaints
- Yukon Medical Council
- Yukon Ombudsman
- Online Engagement Portal
- Making Privacy & Consent Rules for Family Caregivers

Universal Issues

Aging & Seniors
Caregiving
- Caregiving Matters
Fitness and Wellness
- Make Your Day Harder
Mental Health
- Big White Wall
Privacy
- PIPEDA
- HIPAA

In the Media

Podcasts
- Cochrane Podcasts
- Sickboy Podcast
- Patient Critical Podcast
- White Coat Black Art (CBC)
- Allscripts On Call
- A Healthy Dose
- Today Medicine on Digital Health
- Digital Healthcare
- Digital Health Today
- Patient

Professional Member Associations

Digital Health Canada
Ontario Hospital Association
CMPA Safe Practices Guide

Your Voice Matters!

We are a not-for-profit, member-powered co-operative, working for You to build community, awareness and a Patient voice to work with government, healthcare providers & businesses.

Patient Critical Co-op works to create real partnerships with practitioners, government & industry, embracing diversity in perspectives to find solutions that work better for everyone.

Make a Donation:

Patient Critical Co-op is not funded by outside organizations. To help ensure a strong patient voice, individuals can donate here:

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Patient Critical Co-op 2017

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New Podcast!

“Partnering with Patients isn’t a nice thing to do, it’s the Critical thing to do!“
Julie Drury is a caregiver, patient advocate, bereaved mom, inaugural chair of the Ontario Minister’s Patient and Family Advisory Council, speaker & runner. Julie occupies a unique intersection of patient and policymaking & shared her insights with us.

LISTEN HERE

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