Resource Hub

Stories

• Hear
  • Awake During Surgery
• Read
  • Rachel Martens: Advocacy, Parenting & 'Callings'
  • Robin McGee: Medical Error, Digital Health Failures
  • Perceptions & Icebergs
  • Maneesh Juneja: Being Human
  • Morgan Gleason: Transition to Adult Care
  • Prince Harry: Everyone Struggles (even Royalty)
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• Watch
  • Brian Goldman-Medicine's Culture of Denial
  • The Doctor-Patient Tango
  • Sickboy: Jeremie Saunders documentary
  • Morgan Gleason: respect, listen to Patients
  • 'ePatient' Dave deBronkart
  • Caregiving-a Patient perspective
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Toolkit

• Guides, Infographics, Posters
  • Tests and Treatments
  • Evaluating Internet Resources
  • Informed Consent
  • 5 Reasons Care Improves When Patients Own, Access Data
  • Evaluating Health Resources
  • Exams and Checkups
  • Prescriptions and Medicine
  • Improve Patient-Doctor Relationships
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• Data & Internet Literacy
  • Citizen Science
    • Citizen Science Portal (Government of Canada)
    • Cochrane Crowd
    • ARCS Citizen Science
    • Patients Like Me
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  • Evaluating Internet Resources
  • Informed Consent
  • 5 Reasons Care Improves When Patients Own, Access Data
  • Data LIieracy: Skills of Critical Thinkers
  • Mediasmarts: Intro to Digital Literacy
  • MediaSmarts
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• Public Engagement
  • Feedback and Complaints
    • Citizens' Representative Complaints
    • Yukon Medical Council
    • Yukon Ombudsman
    • Online Engagement Portal
    • Making Privacy & Consent Rules for Family Caregivers
    • Compliments and Complaints Hotline
    • Health Care Service Complaints
    • Patient Care Quality
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  • A Guide for Implementing Person & Family-Centered Care Education
  • HQOntario Patient Engagement Resources

• Health Teams and Referrals

Digital Healthcare

• Health Portals
  • MyHealthNS
  • myUHN Patient Portal
  • Sunnybrook MyChart
• Personal Health Record
  • eChart Manitoba
  • Saskatchewan Citizen Health Information Portal
  • Sunnybrook MyChart
  • Open Notes
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• FHIR: Fast Healthcare Interoperability Resources
• Healthcare IT in Social Media Chat

Advocacy

• Service Availability
  • Canadian Ambulance Fees
• Patient Safety
  • Patients for Patient Safety Canada
  • Australian Patient Safety Foundation
  • Patient
  • Patient Ombudsman
  • Tests and Treatments
  • Tips & Tools for Caregivers
  • BC Patient Safety & Quality Council
  • Office of Patient Relations-Nunavut
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• Quality Improvement
  • Health Quality Ontario
  • The Change Foundation
  • Canadian Foundation for Healthcare Improvement
  • Choosing Wisely
  • Institute for Healthcare Improvement
  • Health Quality Council of AB
  • Saskatchewan Health Quality Council
  • Point of Care Foundation
  • ICES
  • HQOntario
  • CADTH Canadian Agency for Drugs and Technology in Health
  • Patient Revolution
  • Tests and Treatments
  • Prescriptions and Medicine
  • Improve Patient-Doctor Relationships
  • Tips & Tools for Caregivers
  • The Topol Review (National Health Service England)
  • BC Patient Safety & Quality Council
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• Public Awareness
  • Healing Cycle
  • Genetic Alliance
  • Patient Revolution
  • Jargon Buster for Patients in Research
  • Prescriptions and Medicine
  • My Pathology Report
  • Unsinkable (story sharing platform)
  • Canadian Public Health Association (CPHA)
  • Myeloma Canada Patient and Caregiver Support
  • Cancer Survivors Social Media Chat
  • Find Your Canadian Representative
  • Office of Patient Relations-Nunavut
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• Recruiting for Diversity PDF
• World Health Organization
• Cancer Survivors Social Media Chat
• Open North
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Education

• Medical Professional
  • Med School Digital Health Resources
• Research Oriented
  • Strategies for Patient-Oriented Research
  • Ontario SPOR Support Unit
  • Communication & Literacy Articles (CFHI)
  • Digital Health Canada
  • Inspire Health Communities
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• Advocacy Skills Development
  • Choosing Meaningful Projects (PDF)
  • Communication & Literacy Articles (CFHI)
  • Human Resources for Health
  • Patient Views on 'Ladder of Engagement'
  • Jargon Buster for Patients in Research
  • Exams and Checkups
  • Prescriptions and Medicine
  • Improve Patient-Doctor Relationships
  • Tips & Tools for Caregivers
  • Unsinkable (story sharing platform)
  • A Guide for Implementing Person & Family-Centered Care Education
  • HQOntario Patient Engagement Resources
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• Journals
  • Cochrane
  • BioMed Central
  • Journal of Medical Internet Research
  • Longwoods
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• Health Literacy
  • UHN Patient and Family Education
  • Patient Centered Outcomes Research Institute
  • Canadian Depression Research & Intervention Network
  • Teach and Learn Family Medicine
  • NIH Health Literacy Primer
  • Patient Advisor challenges & answers
  • Patient In Education
  • Cancer Knowledge Network
  • MacHealth
  • Canadian Virtual Hospice
  • Disease Infosearch
  • Driving Seniors & Dementia
  • Health Literacy-why is it important for me?
  • Reframe Health Lab
  • Mediasmarts: Intro to Digital Literacy
  • MediaSmarts
  • My Pathology Report
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By Region

• Federal
  • Health Canada
  • Lived Experience Training (CDRIN)
  • Canada's MInistry of Health & Long Term Care
  • CADTH Canadian Agency for Drugs and Technology in Health
  • Citizen Science Portal (Government of Canada)
  • Patented Medicine Prices Review Board
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• International
  • Australian Digital Health Agency
  • European Medicines Agency
  • US Health & Human Services
  • Patient Revolution
  • ARCS Citizen Science
  • Cochrane Crowd
  • The Topol Review (National Health Service England)
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• Provinces and Territories
  • Alberta
    • Alberta Health Services
  • British Columbia
    • Patient Voices Network
    • Patient Care Quality
    • British Columbia Patient Engagement
  • Manitoba
    • College of Physicians & Surgeons of MB
    • eChart Manitoba
  • Yukon Territories
    • Yukon Medical Council
    • Yukon Ombudsman
  • Northwest Territories
    • Health Care Service Complaints
  • Nunavut
    • Office of Patient Relations-Nunavut
  • Ontario
    • Local Health Integration Networks
    • Ontario SPOR Support Unit
    • Health Quality Ontario
    • HQOntario Patient Engagement Resources
    • Ontario Hospital Association
    • Patient Ombudsman
    • Clinical Trials Ontario
    • Ontario Patient Engagement
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  • Newfoundland and Labrador
    • Department of Health and Community Services
    • Citizens' Representative Complaints
  • New Brunswick
    • New Brunswick Health
    • New Brunswick Health Council
  • Quebec
    • Santé et Services Sociaux Québec
    • Center of Excellence on Partnership with Patients and the Public
    • CEPP Resources (French & English)
  • Nova Scotia
    • MyHealthNS
    • Nova Scotia Engagement Resources
    • Online Engagement Portal
  • Saskatchewan
    • Saskatchewan Citizen Health Information Portal
  • Prince Edward Island
    • Compliments and Complaints Hotline
  • Find Your Canadian Representative

Regulatory Bodies

• College of Physicians & Surgeons of MB
• Ontario College of Pharmacists
• Ontario College of Physiotherapists
• Canadian Association of Social Workers
• College of Nurses of Ontario
• College of Occupational Therapists of Ontario
• Canadian Association of Pediatric Health Centers
• Canadian Association of Social Workers
• Canadian Medical Association
• Canadian Nurses Association
• College of Dietitians of Ontario
• Canadian Nursing Association
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Research

• Cochrane Evidence & Literacy Resources
• Clinical Trials Ontario
• Canadian Institute for Health Information
• Cochrane
• Baycrest
• CIHR
• Vanier Institute
• Critical Care Strategic Clinical Network
• Ontario Telehealth Network
• Digital Health Canada
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Resource Collections

• Cochrane Evidence & Literacy Resources
• Hatching Ideas Hub
• Change Foundation Caregiver Resource Hub
• machealth resources
• Patient/Family Resource Kit
• McMaster Optimal Aging Portal
• CEPP Resources (French & English)
• HQOntario Patient Engagement Resources
• St Michael's: Patient Engagement Resources
• MediaSmarts
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Consumer Digital Health

• Apps
  • EaTracker
  • Android Wear
  • HabitBull
  • Fooducate
  • Bant App
  • Headspace
  • <30 Days
  • Calm
  • Carrot Rewards
  • Lose It!
  • Pact
  • Runtastic
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• Tech
  • Google Fit
  • AliveCor EKG
  • MySugr Scanner
  • Muse EEG headband
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• Online Tests
  • 23andMe
  • HereToHelp: mental health, substance abuse screening
• Fitness & Monitoring Services
  • MyFitnessPal
  • NOKIA Health
  • Fitbit
  • Apple Health
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Patient Engagement

• Engaging Patients & Public in Overuse
• Primer: Patient Safety & Quality
• Center for Patient Partnerships
• The Beryl Institute
• British Columbia Patient Engagement
• Ontario Patient Engagement
• Patient Voices Network
• Patients Included
• Imagine Citizens
• Center of Excellence on Partnership with Patients and the Public
• Health Care Service Complaints
• Ottawa Personal Decision Guide
• Exams and Checkups
• Prescriptions and Medicine
• Tips & Tools for Caregivers
• Heart and Stroke Survivors
• Canadian Patient Engagement Network
• Myeloma Canada Patient and Caregiver Support
• Smart Patients
• Inspire Health Communities
• Patients Like Me
• Strategies for Patient-Oriented Research
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Universal Issues

• Aging & Seniors
  • Int. Fed. on Ageing
  • Canadian Frailty Network
  • Age Well NCE
• Caregiving
  • Caregiving Matters
  • Ottawa Personal Decision Guide
  • Heart and Stroke Caregivers
  • Myeloma Canada Patient and Caregiver Support
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• Fitness and Wellness
  • Make Your Day Harder
• Mental Health
  • Big White Wall
  • Improve Patient-Doctor Relationships
• Privacy
  • PIPEDA
  • HIPAA

In the Media

• Podcasts
  • Cochrane Podcasts
  • Sickboy Podcast
  • Patient Critical Podcast
  • White Coat Black Art (CBC)
  • Allscripts On Call
  • A Healthy Dose
  • Today Medicine on Digital Health
  • Digital Healthcare
  • Digital Health Today
  • Patient
  • Fixing Healthcare
  • Health Literacy Out Loud
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Professional Member Associations

• Digital Health Canada
• Ontario Hospital Association
• CMPA Safe Practices Guide
• Innovative Medicines Canada
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Government

• CIHR
• CADTH Canadian Agency for Drugs and Technology in Health
• BC Patient Safety & Quality Council

Think Tank

• The Broadbent Institute
• The Fraser Institute.

Online Peer Communities

• Canadian Virtual Hospice
• Heart and Stroke Survivors
• Heart and Stroke Caregivers
• Canadian Patient Engagement Network
• Myeloma Canada Patient and Caregiver Support
• Smart Patients
• Inspire Health Communities
• Patients Like Me
• Healthcare IT in Social Media Chat
• Cancer Survivors Social Media Chat
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Trade Groups

• Pharmaceutical Research and Manufacturers of America