Rachel Martens: Advocacy & Social Media

Rachel Martens is a mother, parent engagement facilitator, patient research advocate & social media pioneer in Calgary, Alberta. We discuss how social media helped her learn to care for her son’s rare disease, and later became her voice to advocate for others.
Coffee And Research (blog) Finding Community: Social Media for Families of Children with Disabilities (webinar) Raeofsunshine79 (twitter)

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Patient Critical Co-op @PatientCritical·

22h

Retweeting 'moistly'.

We all need a good laugh now & then.

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Tyler Walsh@walsht·

5 Apr

Last Month during one of his press conferences, @JustinTrudeau had a message for Canadian children about how they can do their part in the fight against #COVID19. It's a powerful statement, one that deserves a version all kids will want to watch. #StayHomeSaveLives #LEGO

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Patient Critical Co-op @PatientCritical·

6 Apr

"Caregivers are the unsung heroes of #Healthcare"

This thread shows some of the varied roles #caregivers play, their essential role on the team, how reliant the system has become on them, as well as how difficult it is for those that don't have anyone.
TY #HealthcareHeroes

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Julie Drury @SolidFooting·

5 Apr

This is happening in Ontario as well and is an unfair cost to patients and families.
@ONThealth @fordnation @celliottability Can this be addressed? Example, one dispensing fee for putting together a few Rx to be picked up every 30 days (as required) by chronic patients? https://twitter.com/couragesings/status/1246663622547275779

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Dr Javeed Sukhera @javeedsukhera·

4 Apr

Do we cherish life or do we cherish wealth?

“When information is hard to access and people are prevented from drawing informed conclusions, hatred, bias, prejudice and violence come rolling out.”

Must read piece in ⁦@globeandmail⁩ by Ai Wewei https://www.theglobeandmail.com/opinion/article-the-virus-in-the-body-politic-we-have-lost-our-ability-to-cherish/

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Robin McGee @TCOrobin·

3 Apr

We in the #patientsafety world have pushed for years against the system that saw medical systems put reputational risk as a priority relative to actual physical risk. Now, the whole world hears us. Lives must come first! https://twitter.com/NightShiftMD/status/1245712508448628739

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Andrew S. Boozary @drandrewb·

3 Apr

This is the clarion call Canada needs right now by @picardonhealth:

get loved ones out of seniors’ homes.

and our most marginalized into safe housing. it is a matter of life and death. https://twitter.com/picardonhealth/status/1245861047904260096

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Patient Critical Co-op @PatientCritical·

2 Apr

cc @infoway

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Patient Critical Co-op @PatientCritical·

2 Apr

#healthcare needs #transparency #accountability & #opensource to sow "seeds of a #distributed #innovation...that facilitates invention (&) manufacturing (&) quickly spread to areas around the world that need it" to fight #COVID19

https://metaviews.substack.com/p/covid-19-why-we-need-an-open-and

@jessehirsh @metaviews

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Patient Critical Co-op @PatientCritical·

25 Mar

Overwhelmed-not sure how to cope? You're NOT alone.

Caregiver, Patient & Doc open up about COVID: Claire Snyman, Lawrence Yang &
@PatientCritical
Director Jana Buhlmann.

Pls read & share: https://patientcritical.com/a-caregiver-patient-and-doctor-reflect-on-covid-today/

#physicaldistancing NOT #socialdistancing

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Patient Critical Co-op @PatientCritical·

1 Apr

#Caregivers "need to be included as core members of our #healthcare teams (povided #virtualcare) training, equipment, psychological support & ongoing communication required to...care for #COVID19 patients..."

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Patient Critical Co-op @PatientCritical·

1 Apr

All, please submit any resources re: patient-caregiver and #COVID19 below.

We will do our best tonight and tomorrow to shape whatever we receive into easily searched regional resources.

https://patientcritical.com/submit-a-resource/

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Cormac Russell @CormacRussell·

1 Apr

In what way does ur organizations response to #COVID19: 1. enhance local communities?
2. displace or replace capacities in local communities?
3. retrieve or restore that which had been lost in local communities?
4. Mutate when pushed to extremes in communities? #TogetherApart

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Kate Mulligan @KateMMulligan·

31 Mar

#COVID19 may not discriminate but the human systems it enters sure do. What can we do about its unequal impacts & vulnerabilities in #CDNhealth?

Join @NCCDH_CCNDS webinar on #HealthEquity #sdoh tomorrow April 1 from 1-2pm EST with me, @sumeeyoh, @rcbetker, @YoavKeynan & @armp71

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Kylie Peacock @kylierpeacock·

30 Mar

📢My colleagues at @Ic3Rg are still looking for adults living w/ 1 or more chronic conditions to complete an online survey about self-management of #ChronicConditions! @maritimespor @PatientVoicesBC @PatientCritical @sickboypodcast

💻Link to survey:https://surveys.dal.ca/opinio/s?s=55372

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Nick Doody @NickDoody·

28 Mar

Our street now has a WhatsApp group & this morning one neighbour was struggling with loneliness, so earlier we all had a socially distanced cuppa and chat together. This stuff makes a difference. #lookaftereachother

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Patient Critical Co-op @PatientCritical·

30 Mar

"Most of the ways to ward off #coronavirus are available only to the affluent...in essence, a disease that was spread by the rich as they flew around the globe will now kill millions of the poor" #covid19 #sdoh #abcd

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Kate Mulligan @KateMMulligan·

29 Mar

Your Sunday long read: inspiring true-life stories & long-awaited research findings on #SocialPrescribing in Canada: https://bit.ly/39qnQNb

Listen @metromorning tomorrow at 06:40 EST re what we learned & how to urgently adapt & implement for isolation & #sdoh under #COVID19.

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Dr. Brian Goldman @NightShiftMD·

28 Mar

I#COVID19 is a widespread and sometimes serious infection that in 15% or so causes severe inflammation and damage to the lungs. The odds of useful survival post ventilator are so unlikely as to make the refusal quite logical. I'm aiming to NORMALIZE talking about death. https://twitter.com/sesiegler/status/1243911964914601986

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Patient Critical Co-op @PatientCritical·

28 Mar

Ideas to Act for the Common Good During Coronavirus Crisis

This is a tremendous resource to find ways you can contribute and care for others in your community, safely.

https://ysa.org/covid/

#covid19 #abcd

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