Rachel Martens: Advocacy & Social Media

Rachel Martens is a mother, parent engagement facilitator, patient research advocate & social media pioneer in Calgary, Alberta. We discuss how social media helped her learn to care for her son’s rare disease, and later became her voice to advocate for others.
Coffee And Research (blog) Finding Community: Social Media for Families of Children with Disabilities (webinar) Raeofsunshine79 (twitter)

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Danyaal Raza @DanyaalRaza·

23 Oct

FWIW to my Canadian tweeps, we do not have socialized health care. We have national health insurance. A very quick breakdown (socialized health care in top, left).

#Debates2020

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Julie Drury @SolidFooting·

27 Oct

Still a fan favorite. Resonates a bit too much in present day.
😕

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Patient Critical Co-op @PatientCritical·

28 Oct

When healthcare is created by everybody BUT the patients.

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Patient Critical Co-op @PatientCritical·

27 Oct

100% agree Robin, Julie: patients need real roles and power. Now the challenge is: spreading the message to more patients that we need them involved before we can make real change.

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Curious Me!@want_to_know·

25 Oct

@SaskHealth @PatientCritical @PatientAdvisors @Patient_Safety patients are not challenging. System is. Let’s change this together.

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Amy Ma @Ctzen_Improver·

22 Oct

Please share!
.@SolidFooting @TO_dpr @PFEAMorin @baldgrrl @JulieRohrYEG @tjzmommy @HeatherPina44 @alungstory @PatientCritical @PatientCommando https://twitter.com/PatientAdvisors/status/1319121376800874496

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AMS Healthcare @AMSHealthcare·

20 Oct

PJ Mierau, Managing Director of @PatientCritical will bring his #patient #advocacy experience to the #HearingYourVoices virtual conference Nov. 3 & 4 answering the question, Digital Health: How do we get there together? Have your say, register today https://bit.ly/3hRH6YM

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Tai Huynh @taimhuynh·

9 Oct

What’s worse is you’ve now encouraged comparison shopping with people booking multiple appointments and going to the quicker one without or with no ability to cancel others, creating no-shows meanwhile hundreds of ppl aren’t able to even get in line.

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Stephanie Montesanti @S_Montesanti·

8 Oct

Our research team @UAlbertaSPH & @imaginecitizens is collaborating with @CFHI_FCASS to understand the impacts on patients, families/caregivers & frontline healthcare providers as a result of COVID-19 restrictive visiting & family presence policies put in place in hospitals.

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Solutions for Kids in Pain @KidsInPain·

30 Sep

(1/2) We are excited to announce the release of the blog series "Painfully Aware"✒️about life w #ChronicPain, in the eyes of a young person➡️http://bit.ly/33e6F1r

This series aims to connect #youth🤝by sharing what living w #pain is really like.

Teaser⤵️

#ItDoesntHaveToHurt

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Toronto Star@TorontoStar·

28 Sep

This is how much Ontario’s three top-billing pain doctors charged the province on the nerve block procedures between 2017-2018, compared to the totals of entire provinces. https://www.thestar.com/news/investigations/2020/09/28/thats-an-injection-mill-ontarios-top-billing-pain-doctors-capitalize-on-provinces-lax-rules-running-up-the-publics-tab-for-chronic-pain-management.html?utm_source=Twitter&utm_medium=SocialMedia&utm_campaign=Health&utm_content=operationtransparency

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Patient Critical Co-op @PatientCritical·

19 Sep

It appears @patientcritical web services are down. If you've been trying to get ahold of us by email, please stand by or DM.

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Ryan Imgrund @imgrund·

18 Sep

⭐️⭐️GOVERNMENT MISCOMMUNICATION REQUIRING IMMEDIATE ATTENTION⭐️⭐️

1. If my son is symptomatic & being tested for COVID, the @ONThealth COVID assessment says to get tested and self-isolate.

2. If my son is symptomatic & being tested for COVID, @ONeducation says to GO TO WORK.

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

9 Sep

All #patient & #caregiver stories matter. We have become a society that seeks dramatic sound bites but many patients & caregivers don’t have a Kleenex worthy crisis event. Rather they have a lifetime of small events that pile up, one on top of the other, nearly burying them alive

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Patient Critical Co-op @PatientCritical·

10 Sep

Anger doesn't get anyone anywhere-but emotion bleeds out of pain & suffering.

Working past anger to build constructive solutions can solve serious issues UNDER the anger.

Labeling people angry or noncompliant makes it easier to dismiss concerns.
#himmseurope20 #patientadvocacy

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Patient Critical Co-op @PatientCritical·

5 Sep

"Thank you for sharing your #patientstory. We pledge to take a specific action & report our results & findings back to you. Your contribution matters-this is how we prove it."

Your story has to be more than entertainment at a conference. It should be a lesson-a way to do better.

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Patient Critical Co-op @PatientCritical·

22 Aug

PJ here. Apologies for sitting out some important issues recently.

So tired of people taking advantage of #COVID19 to skate on responsibilities, pass the buck, or happy to let harm continue.

I am burnt out at a time advocacy is needed, but family & self care is needed more.

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Patient Critical Co-op @PatientCritical·

10 Aug

This would be more inspirational if Mr. Bezos & Amazon (both of whom have seen billions in record profits during #COVID19) paid their warehouse employees a living wage & provided them with PPE.

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Patient Critical Co-op @PatientCritical·

4 Aug

Acknowledging that patients are all at different points in their journey, some don't want to access data, some may want to only learn from their doctor.

Creating a transparent system to automate #patientdata access is important all the same, and allows for eduation & growth.

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Patient Critical Co-op @PatientCritical·

4 Aug

Doctors can be amazing advocates for their patients. Patient data ownership is an area there is tremendous disagreement.

With respect to how much doctors juggle, know, determine & decide...access to patient data should be complete, digital and instant--no decision required.

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