Rachel Martens: Advocacy & Social Media

Rachel Martens is a mother, parent engagement facilitator, patient research advocate & social media pioneer in Calgary, Alberta. We discuss how social media helped her learn to care for her son’s rare disease, and later became her voice to advocate for others.
Coffee And Research (blog) Finding Community: Social Media for Families of Children with Disabilities (webinar) Raeofsunshine79 (twitter)

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Danyaal Raza@DanyaalRaza·

6 Jul

Ford is able to pay MDs between $170 to $220/hour at vaccine clinics, but can't commit to a permanent pay increase to PSWs of just $3/hour. https://twitter.com/CBCLorenda/status/1412068164125564929

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Dennis Kendel @DennisKendel·

25 Jun

SCPOR Report May, 2021- Learn about new opportunities for patient engagement in healthcare research in Saskatchewan:
https://www.scpor.ca/news-1/2021/5/28/scpor-report-may-2021 @hqcsask @USaskMedDean @USaskHealthSc @SaskHealth @PatientAdvisors @PatientCritical @AbSPORU_PEP

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Patient Critical Co-op @PatientCritical·

25 Jun

Politics is not science based.

Society isn't about requiring a burden of proof before exercising compassion.

Evidence & studies are not the enemy of caring but can be leveraged as such.

I believe people need to invest more in society -& yes, politics- before we see a change.

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Patient Critical Co-op @PatientCritical·

20 Jun

Politics of expediency and interest, NOT service.

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Patient Critical Co-op @PatientCritical·

18 Jun

The problem is? We ARE content to wait...until we are drowning.

We ALL need to challenge ANY authorities happy with status quo.

I'm not advocating we burn our bridges, but we've stopped trying to hold authority's feet to the fire.

We're comfortable until we're actively scared.

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Jan Oldenburg @janoldenburg·

14 Jun

I'm being bribed with a gift card to delete a negative review on Amazon. Has this happened to anyone else?

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Patient Critical Co-op @PatientCritical·

16 Jun

Where would YOU send an overwhelmed caregiver looking for resources, checklists & articles about bringing a loved one home after major surgery?

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Bob Wachter@Bob_Wachter·

13 Jun

11/ Why is Delta scarier? First, it appears to be even more infectious than the Alpha variant, probably by a similar amount (~40% more infectious than Alpha.)(h/t @EricTopol for @BBC table below) This means the same exposure that a person might have had last year is now about…

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Patient Critical Co-op @PatientCritical·

8 Jun

Danyaal nails the danger of normalizing disconnected #digitalhealth, marketed solely for profit.

There's no rollout 2.0 for digital health: it will be what we let it be. Time to pay attention to the slippery slope.

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

7 Jun

The movement led by #caregivers & #patients in Canada to make the care in healthcare a verb, not a noun, not a place, not a system is not a fad, not the healthcare model du’jour.

We’re starting a #healthcare movement in this country that there is no going back from.

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Patient Critical Co-op @PatientCritical·

5 Jun

Dare to dream :)

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Amy Ma - 馬錦華 @Ctzen_Improver·

2 Jun

Sounds promising! @pttopt @PatientCommando @PatientCritical @anetto https://twitter.com/PatientVoicesBC/status/1400123238403825674

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Claire Snyman @clairehsnyman·

1 Jun

@TCOrobin talks about medical error and her #patientexperience during panel on how can we improve error and apology practice? #NHLC2021

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Patient Critical Co-op @PatientCritical·

1 Jun

#patientsafety dialogue w/@TCOrobin #NHLC2021

Linda Hughes & Colin Stevenson showed how advocacy & stakeholders can work together to fill the gaps--but still, even Robin's 3rd harm needed social media & press to correct.

How do we get better?

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Patient Critical Co-op @PatientCritical·

1 Jun

It's up to us to create the new norm....or we'll all be working for Amazon.
There's a lot to unpack there.
@AHS_Innovates @CovenantCA @billhowatt @NHLC_CNLS @HealthCareCA @CCHL_CCLS #nhlc2021.

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Patient Critical Co-op @PatientCritical·

1 Jun

.@AHS_Innovates @CovenantCA @billhowatt @NHLC_CNLS @HealthCareCA @CCHL_CCLS talking qualities of servant leadership, psych safety in healthcare, but qualities and standards mean nothing without enforcement.
LTC, patient engagement need concrete outcomes & enforcement. #nhlc2021

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Patient Critical Co-op @PatientCritical·

1 Jun

Donovan Taplin: 'belonging' has been lost in the pandemic, standards are needed to achieve it in work, health.

@AHS_Innovates @CovenantCA @billhowatt @NHLC_CNLS @HealthCareCA @CCHL_CCLS #NHLC2021

@billhowatt: establish fallibility of a leader to develop inclusion/belonging.

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Patient Critical Co-op @PatientCritical·

1 Jun

How do we create conditions in the workplace for meaningful experiences...feel comfortable about saying something (is wrong)?

These are trainable skills, says @billhowatt at #NHLC2021...but processes need to be in place to prioritize/accountability on what skills *are* trained.

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Patient Critical Co-op @PatientCritical·

1 Jun

Yes, Covid has created an opportunity to re-shape healthcare in Canada.

Respectfully, the same was said about the digital revolution, and past acknowledgement of need for change.

What methodology, legislation, accountability change will support the opportunity to re-shape care?

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Patient Critical Co-op @PatientCritical·

1 Jun

#NHLC2021 panel: how to make change in healthcare.
Top Level advice: en masse Covid retirement makes room for new ideas.
Upcoming: govt youth advisory committee feedback needs concrete adoption.
@AHS_Innovates @CovenantCA @billhowatt @NHLC_CNLS @HealthCareCAN @CCHL_CCLS

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