Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

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Cormac Russell @CormacRussell·

10 Oct

Folks often fail to recognize that personal health can be gained at the expense of wellness. As industrialized societies have come to idolize individual health they have placed greater emphasis on life style choices and self care and less on shared space and belonging. 1/2

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Kelly S @KellyOT·

20 Sep

@PatientCritical My doc office does not take messages if they are on the line. I can’t call back x 5 when I’m at work. No calls answered during lunch. Can take weeks to get through to schedule an appointment

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Patient Critical Co-op @PatientCritical·

20 Sep

When you miss a Dr's call:
-no message
-NO second call attempt
-call display blocked

When a Dr misses your call:
-callback=busy signal
-callback=long hold
-result? Reschedule apptmt

PTSD is real.
(Pitiful Telephone Service by Doctors)

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Patient Critical Co-op @PatientCritical·

20 Sep

Without interoperability & easy, universal access to data, the right to access it means little.

Is there a seat for patients to help @nshealth design healthdata access that works for them?

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Patient Commando @PatientCommando·

7 Sep

Hey #Toronto area patient advisors. Check out this remarkable opportunity to influence health care providers at the earliest stage of training. One of the most rewarding experiences I've had. @PatientAdvisors @PatientsCanada

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Timothy Caulfield@CaulfieldTim·

26 Aug

Talking to a vaccine-hesitant family member or friend? Those conversations tough but so important.

My (not comprehensive) list of things to consider.

cc @DrJenGunter @aetiology @vaccine_trust @UAlbertaSPH @UAlberta @CBCEdmonton @GidMK @DrSherryPagoto @KizzyPhD @drkiki

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Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver·

3 Aug

Join us tonight for an excellent and timely discussion about the Digital Divide. Definitely has implications for #HealthEquity #HCLDR cc @vikbakhru @PatientCritical https://twitter.com/JoeBabaian/status/1422579949374947334

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Danyaal Raza@DanyaalRaza·

6 Jul

Ford is able to pay MDs between $170 to $220/hour at vaccine clinics, but can't commit to a permanent pay increase to PSWs of just $3/hour. https://twitter.com/CBCLorenda/status/1412068164125564929

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Dennis Kendel @DennisKendel·

25 Jun

SCPOR Report May, 2021- Learn about new opportunities for patient engagement in healthcare research in Saskatchewan:
https://www.scpor.ca/news-1/2021/5/28/scpor-report-may-2021 @hqcsask @USaskMedDean @USaskHealthSc @SaskHealth @PatientAdvisors @PatientCritical @AbSPORU_PEP

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Patient Critical Co-op @PatientCritical·

25 Jun

Politics is not science based.

Society isn't about requiring a burden of proof before exercising compassion.

Evidence & studies are not the enemy of caring but can be leveraged as such.

I believe people need to invest more in society -& yes, politics- before we see a change.

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Patient Critical Co-op @PatientCritical·

20 Jun

Politics of expediency and interest, NOT service.

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Patient Critical Co-op @PatientCritical·

18 Jun

The problem is? We ARE content to wait...until we are drowning.

We ALL need to challenge ANY authorities happy with status quo.

I'm not advocating we burn our bridges, but we've stopped trying to hold authority's feet to the fire.

We're comfortable until we're actively scared.

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Jan Oldenburg @janoldenburg·

14 Jun

I'm being bribed with a gift card to delete a negative review on Amazon. Has this happened to anyone else?

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Patient Critical Co-op @PatientCritical·

16 Jun

Where would YOU send an overwhelmed caregiver looking for resources, checklists & articles about bringing a loved one home after major surgery?

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Bob Wachter@Bob_Wachter·

13 Jun

11/ Why is Delta scarier? First, it appears to be even more infectious than the Alpha variant, probably by a similar amount (~40% more infectious than Alpha.)(h/t @EricTopol for @BBC table below) This means the same exposure that a person might have had last year is now about…

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Patient Critical Co-op @PatientCritical·

8 Jun

Danyaal nails the danger of normalizing disconnected #digitalhealth, marketed solely for profit.

There's no rollout 2.0 for digital health: it will be what we let it be. Time to pay attention to the slippery slope.

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

7 Jun

The movement led by #caregivers & #patients in Canada to make the care in healthcare a verb, not a noun, not a place, not a system is not a fad, not the healthcare model du’jour.

We’re starting a #healthcare movement in this country that there is no going back from.

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Patient Critical Co-op @PatientCritical·

5 Jun

Dare to dream :)

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Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver·

2 Jun

Sounds promising! @pttopt @PatientCommando @PatientCritical @anetto https://twitter.com/PatientVoicesBC/status/1400123238403825674

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