Peer-to-Peer &#038; Online Communities

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10 Sep

Anger doesn't get anyone anywhere-but emotion bleeds out of pain & suffering.

Working past anger to build constructive solutions can solve serious issues UNDER the anger.

Labeling people angry or noncompliant makes it easier to dismiss concerns.
#himmseurope20 #patientadvocacy

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5 Sep

"Thank you for sharing your #patientstory. We pledge to take a specific action & report our results & findings back to you. Your contribution matters-this is how we prove it."

Your story has to be more than entertainment at a conference. It should be a lesson-a way to do better.

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22 Aug

PJ here. Apologies for sitting out some important issues recently.

So tired of people taking advantage of #COVID19 to skate on responsibilities, pass the buck, or happy to let harm continue.

I am burnt out at a time advocacy is needed, but family & self care is needed more.

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10 Aug

This would be more inspirational if Mr. Bezos & Amazon (both of whom have seen billions in record profits during #COVID19) paid their warehouse employees a living wage & provided them with PPE.

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Acknowledging that patients are all at different points in their journey, some don't want to access data, some may want to only learn from their doctor.

Creating a transparent system to automate #patientdata access is important all the same, and allows for eduation & growth.

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Doctors can be amazing advocates for their patients. Patient data ownership is an area there is tremendous disagreement.

With respect to how much doctors juggle, know, determine & decide...access to patient data should be complete, digital and instant--no decision required.

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Julie Drury @SolidFooting·

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Attention patient, family, caregiver partners: @CFHI_FCASS scholarship opportunity for @i4_2020
#patientpartners #PatientExperience #patientleaders

Please RT to share @PatientCritical @PatientAdvisors @Patient_Safety @PatientsCanada
@imaginecitizens
@BCPSQC https://twitter.com/CFHI_FCASS/status/1289181733762473990

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Marc-André Gagnon @MA_Gagnon·

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“Despite ample warning, the U.S. squandered every possible opportunity to control the coronavirus,” @edyong209 writes. “And despite its considerable advantages—immense resources, biomedical might, scientific expertise—it floundered.” https://www.theatlantic.com/magazine/archive/2020/09/coronavirus-american-failure/614191/?utm_source=twitter&utm_medium=social&utm_campaign=share

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Nathan Stall@NathanStall·

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Telemedicine has been dubbed "virtually perfect" in the #COVID19 era: https://www.nejm.org/doi/full/10.1056/nejmp2003539

New research by @drklam and @geri_doc reports that 38% of older adults are unready—especially those with cognitive/sensory impairment, poverty and low education: https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2768772

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The New York Times@nytimes·

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The Israeli government, confident it had beaten the coronavirus, invited students back to school in May.

Within days, infections were reported at a Jerusalem high school. It became the largest outbreak in a single school in Israel, possibly the world. https://nyti.ms/2EJWh7H

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Should masks be mandatory for all?

Should a grocery store sanitize and notify if a worker tests positive for #COVID19?

Should a teacher be required to disclose travel out of province & quarantine for 2 wks?

Should a doctor?

Are your answers the same for all 4 questions?

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Julie Drury @SolidFooting·

25 Jul

WHO Report. Family caregivers as essential care partners part of managing COVID 19 in LTC https://twitter.com/DavidCGrabowski/status/1287010420369379328

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Andrea D. Furlan MD PhD @adfurlan·

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B.C. saw 728 opioid-related deaths in first half of 2020; 189 deaths from COVID-19

https://www.cbc.ca/radio/thecurrent/the-current-for-july-22-2020-1.5658469/after-her-son-died-of-an-overdose-this-woman-wants-to-fight-opioid-crisis-with-urgency-of-covid-19-1.5658472?__vfz=medium%3Dsharebar

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This is a great list, I totally agree @anetto...but as #COVID19 has shown us...we have none of that.

We are much further removed than many of us thought we were just a few months ago.

We need widespread public support to get there, activating the general public to speak up.

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Outside Toronto few can access #digitalhealth or portals.

When I stepped on on a rusty nail I called Public Health Unit to check my tetanus.

My PHU forwards after hrs to Public Works--which has no data access & advised me to try ER.

ER had no records either.

Wasteful. Costly.

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We need people.

We need voices.

We need to amplify outside of social media. Phone calls and emails to decision makers.

Or our concerns will go nowhere.

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23 Jul

GMail arguably offers good value for service: you get something in return & pay with your data.

Everyone has different comfort levels sharing data... but should know enough to make an informed decision.

Here's our talk with @jessehirsh on data literacy: https://patientcritical.com/podcast/jesse-hirsh-on-data-literacy/