Peer-to-Peer &#038; Online Communities

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11 May

Patient Critical Co-op believes quality healthcare requires #patientvoice as an equal partner w/clinicians, industry & gov’t.

Join us!
https://t.co/83eeBIubjD

Advocate Directory
https://t.co/EJ9OoTpZJK

Podcast
https://t.co/WS15TJrxE7

Resource Hub
https://t.co/stpDwcBtve

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Digital records, #EHR can be eval’d via #patientpartnership lens:

IN-PERSON <-> DIGITAL

Inform <-> “Let” Pt View
Consult <-> Invite Feedback
Involve <-> Ask what’s missing
Collaborate <-> Submit Data
Empower <-> Pt is Admin

#emr #phr @myopennotes

https://t.co/Cu21oYPsAG

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Steve Morgan @SteveUBC·

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Over 1,200 academic experts in health care and public policy have signed a letter calling on federal political parties to commit to the implementation of universal, comprehensive, public pharmacare without delay. details at https://t.co/CLK82Nv4yA #pharmacare #CDNhealth #elxn43

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Justin Noble @Justin_Noble_·

16 Aug

@PatientCritical @Infoway Thanks for the kind words :) Yes to both questions: patient advisors (this year the incredible @ProulxLaurie and @DonnaRubenstein) set the criteria and make the selections. An update is planned for the scholarship webpage with this info.

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CBC Saskatchewan@CBCSask·

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Saskatchewan Health Authority pulls 'whistleblower hotline' proposal https://t.co/YHHpTZvxuI

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16 Aug

In short: education & info patients can access to make healthcare choices-compared to junk food or yogurt-is tragic.

It will only change if journalists focus on inequities & consumers demand gov impose #transparency & mandate more education & choice.

https://t.co/U4NUS2orou

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Health Standards Org @HSO_world·

2 Aug

YOUR VOICE MATTERS: We are pleased to share three draft standards for your review. Please share this post with those who want to provide and receive quality health and social services for all: #peoplepoweredhealth #standardsmatter #strongertogether

https://t.co/PyhXLvSsq9

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14 Aug

So very, very ditto. Next time!

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Returning from @CMA_Docs #cmahealthsummit inspired by conversations, shared learning, new/renewed friendships.

Great to share passion for healthcare improvement w/like-minded clinicians, industry & policy-makers.

Still a way to go w/ #patientinclusion-but we’re working on it :)

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Top of mind-maybe-but it doesn’t mean they *want* to act.

Most politicians would rather play it safe & react to demands than try & guess wrong (campaign promises are political calculations, even if genuine).

If WE don’t tell politicians what we want, they won‘t try to guess.

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Rachel Martens @RaeofSunshine79·

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Thread: Engagement in the political realm is becoming a crucial point for parents. We have gone so long without asking the relevant questions in policy, now we are. I struggle with the relevant KT involved as it's a sharp culture change in my parenting demographic. /1 https://t.co/bgXKxea9P2

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Healthcare advocates like @MaggieKeresteci will be talking about the importance of healthcare this election.

Every conversation opens new possibilities! #CMAHealthSummit

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Pat Rich @pat_health·

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Clear from @CMA_Docs GC debate on virtual care that there remains a huge chasm between patient/public demand and infrastructure/culture needed for physicians to provide this routinely #cmahealthsummit

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Emotional responses raised by people they TRUST (including celebrity opinion) are the ones that spread.

Without critical evaluation info - manipulated & honestly communicated— contributes to confusion.

Politically Connected:
@MercedesGlobal #CMAHealthSummit #VoteforHealth

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Voters need to get out of their issue echo-chambers (yes, like healthcare :) & engage in discourse.

People need to discuss issues before they can consider issues they may have never considered before.

Politically Connected panel:
@MercedesGlobal #CMAHealthSummit #VoteforHealth

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It’s an election year. Politicians care about issues people care enough to call, write, or otherwise bring to their attention. (Politely :)

But reps/candidates can’t hear people who don’t speak.

Politically Connected panel:
@MercedesGlobal #CMAHealthSummit #VoteforHealth

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Panel-Question-MVP Chad Dickie: how can Patients get involved with the grassroots efforts to promote healthcare in this election?

Poll: half respondents only ‘in listening mode’.

Politically Connected panel:
@MercedesGlobal #CMAHealthSummit #VoteforHealth @chaD4quality

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Dave Price: parents try to protect their kids’ healthcare, but look at the muddled pathways of information.

Without strong public health, misinformation leads to, for eg, anti-immunization movement.

Politically Connected panel:
@MercedesGlobal #CMAHealthSummit #VoteforHealth