Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

Patient Critical Co-op @PatientCritical·

28 Feb

Now you've transitioned, who is filling your patient role now, @SolidFooting?

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Patient Critical Co-op @PatientCritical·

25 Feb

POTENTIALLY CAUSING AN OUTBREAK DOESN'T QUALIFY???

"Unless there are some serious or aggravating circumstances where the public safety is at risk, we are not …detaining individuals who are not complying with...the Quarantine Act,” Mooken said."

https://montrealgazette.com/news/canada/some-travellers-walking-out-of-pearson-airport-or-take-a-fine-instead-of-paying-for-quarantine-hotel/wcm/0f6cc444-02eb-4494-8316-3b6c58bb876a/amp/

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Patient Critical Co-op @PatientCritical·

24 Feb

Businesses are businesses.

Much like air travelers at Pearson, happy pay the fine to avoid a covid hotel, I imagine biz owners are content to take no responsibility for guests in their stores.

At least, not until @fordnation levies fines, regulations to enforce responsibility.

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Patient Critical Co-op @PatientCritical·

24 Feb

"Peel Police have confirmed they are not detaining or arresting people who leave the arrival area...who refuse to take the mandatory COVID-19 test or...quarantine hotel upon arrival...a fine that is cheaper...and then are RELEASED TO GO HOME"
https://www.insauga.com/international-travelers-are-walking-out-of-mississaugas-pearson-airport-ignoring-quarantine-rules

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Patient Critical Co-op @PatientCritical·

22 Feb

Reminder: today is the deadline to apply for Ontario Institute for Cancer Research @OICR_news

Patients, family members & caregivers with cancer experience, interest in cancer research are encouraged to apply for their Advisory Council.

Make a Difference: http://ow.ly/985d50Dmh6T

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Patient Critical Co-op @PatientCritical·

19 Feb

"Toronto, Peel and North Bay to remain under stay-at-home order" https://twitter.com/i/events/1362838204336988165

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Patient Critical Co-op @PatientCritical·

18 Feb

Members! Join us on Slack Saturday March 20th at 12PM EST for an Advocate Self Care chat, led by Co-op Director Jana Buhlmann:

"Let's look inward. How has #covid19 changed you? What new practices & routines have you implemented? What does the dreaded "self care" look like now?"

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Patient Critical Co-op @PatientCritical·

16 Feb

Every "architectural choice about the structure of the IT systems we build...requires intentionality & foresight...many private sector companies are not good at doing this...Bezos realized (&) forced (Amazon) from siloed entities...to one that was extensible & API powered"

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Danyaal Raza @DanyaalRaza·

15 Feb

A great little tool from @leadnowca that even dials your MPs number for you, to your phone!

#PharmacareNOW #VoteYesOnC213

https://act.leadnow.ca/c2c-pharma-lib/

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Patient Critical Co-op @PatientCritical·

16 Feb

"@NORDeHEALTH aims to...study the current implementation & adoption of PeHS...develop evidence-based evaluation frameworks & guidelines to help researchers and & support successfull implementation and adoption of PeHS...explore...co-design of PeHS through innovation projects"

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

16 Feb

#COVID19Ontario reality

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Patient Critical Co-op @PatientCritical·

16 Feb

Today it costs a hefty fee to get your #healthdata.

Soon it will be FREE-reducing inequity. One option? #GDPR #FHIR compliant #patientcentric #EHR Kailona.

NOW OPEN for testing to all users with-also free-nextcloud access: https://nextcloud.com/blog/health-care-data-app-for-nextcloud-kailona-hits-alpha-and-is-looking-for-testers/

@danpepe @jessehirsh @annafoat

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Patient Critical Co-op @PatientCritical·

10 Feb

Calling all @PatientCritical Members! You're invited to 2021's first chat: Advocate Self Care, hosted by Director Jana @baldgrrl Buhlmann.

Let's gather, compare notes & recharge our advocacy batteries! Check your inbox for a doodle poll to help choose the date.

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Claire Snyman @clairehsnyman·

11 Feb

Yes, Dr Google helped me find an online support group after my #braintumor diagnosis. 5 min consult with the neurosurgeon in the ER & so many questions! Online support communities are essential parts of the care continuum. They are for me ❤️ https://www.womenshealthmag.com/health/a35182798/brain-tumor-colloid-cyst-owning-it-2021/

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Ontario Morning @CBCOntMorning·

11 Feb

Today a group of Canadian healthcare workers will have an online conversation with @JustinTrudeau about the national vaccination strategy. We spoke to Ontario nurse @amievarley, who will be co-moderating. The event will be livestreamed on the PM's twitter: https://twitter.com/CanadianPM

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Patient Critical Co-op @PatientCritical·

10 Feb

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Ryan Imgrund @imgrund·

9 Feb

⭐️⭐️ BREAKING NEWS ⭐️⭐️ Ottawa Public Health ran asymptomatic testing of students about to return to school.

8 of 175 students test positive.

This extrapolates to 6,500 asymptomatic COVID cases in Ottawa school-aged children.

Of which ≈4,000 would be in school today.

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Patient Critical Co-op @PatientCritical·

8 Feb

The Medium is the Message.
The Medium is the Message.
The Medium is the Message.

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Ritika Goel @RitikaGoelTO·

6 Feb

Important history: in both Canada and the US, the medical community strongly opposed universal healthcare. In the US, the American Medical Assocn launched a huge public campaign and successfully blocked universal helathcare and then tried to stop Medicare when it was proposed.

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

5 Feb

This is going to be an important conversation about the issues faced by essential #caregivers during #COVID19Ontario. Honoured and excited to be part of this town hall. Join us on Feb 13th! https://twitter.com/LGretzky/status/1357760285923237889

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