Peer-to-Peer &#038; Online Communities

Reply on Twitter 1222262329808773123 Retweet on Twitter 1222262329808773123 Like on Twitter 1222262329808773123 Twitter 1222262329808773123

"There are barriers to widespread adoption...#privacy concerns...funding. But with a #healthsystem at capacity & a population anxious...time to thoughtfully unleash the potential of #virtualcare."

@willfalk @janinemccready @sacha_bhatia @DrJoshuaTepper https://www.cdhowe.org/intelligence-memos/bhatia-falk-mccready-tepper-%E2%80%93-responding-coronavirus-building-capacity-through

Retweet on Twitter Patient Critical Co-op Retweeted

Ilan Shahin @IlanShahin·

“It is harder to build a business focused on clinical quality or patient value than to milk the status quo. But once established, revenue models take on a life and logic of their own. Please choose carefully.” And yes, govt-funded projects have “revenue” models too. https://twitter.com/annafoat/status/1222206663136088065

Reply on Twitter 1222211468151660544 Retweet on Twitter 12222114681516605442 Like on Twitter 12222114681516605448 Twitter 1222211468151660544

Reply on Twitter 1222259193606033415 Retweet on Twitter 12222591936060334152 Like on Twitter 12222591936060334156 Twitter 1222259193606033415

Not more portals.
Not more pilot programs.
Not more #silos or pockets of excellence.

National, interoperable #digitalhealth with the patient in control of their own data.

Retweet on Twitter Patient Critical Co-op Retweeted

Danyaal Raza @DanyaalRaza·

Tomorrow is #BellLetsTalk day in support of mental health, unless you're on the wrong side of @bell's prison phone contract.

Consistency matters.

@CANADALAND goes deep here:

https://www.canadalandshow.com/podcast/311-lets-talk-about-bells-harmful-prison-phone-contract/

Reply on Twitter 1222188331351650304 Retweet on Twitter 12221883313516503045 Like on Twitter 12221883313516503046 Twitter 1222188331351650304

Reply on Twitter 1221911506192928770 Retweet on Twitter 12219115061929287702 Like on Twitter 122191150619292877011 Twitter 1221911506192928770

Great meeting today with @Infoway VP Shelagh Maloney & Angela Jonsson, Sr. Director for Stakeholder Engagement.

I value their goals to keep improving feedback, Healthy Dialogue, #patientsaspartners, #digitalhealth, @ACCESS2022 & #codesign of care with all stakeholders @12Maloney

Retweet on Twitter Patient Critical Co-op Retweeted

Kristin Cleverley @ClevKristin·

Reply on Twitter 1221769026814214147 Retweet on Twitter 122176902681421414742 Like on Twitter 122176902681421414770 Twitter 1221769026814214147

Report from @kidsmentalhlth released Monday, says 28,000 children/youth in Ontario are on wait lists for #mentalhealth treatment across the province - up from ~12,000 in 2017. This is not acceptable, we need ++ investment! #mentalhealthishealth https://twitter.com/cp24/status/1221759202324025345

Retweet on Twitter Patient Critical Co-op Retweeted

Harlan Krumholz @hmkyale·

Reply on Twitter 1221837195092406272 Retweet on Twitter 122183719509240627226 Like on Twitter 122183719509240627264 Twitter 1221837195092406272

From the audience: My daughter has 23 patient portals… [this is the reality for many people w/complex conditions… and shows why single portal doesn’t address their needs - and how hard it is to capture details of the patient journey with data… currently] @ONC_HealthIT #onc2020

Retweet on Twitter Patient Critical Co-op Retweeted

Cormac Russell @CormacRussell·

Reply on Twitter 1221725684873203713 Retweet on Twitter 1221725684873203713127 Like on Twitter 1221725684873203713227 Twitter 1221725684873203713

Prof. Myrra Vernooij-Dassen tells us in no uncertain terms if you want to address loneliness; evidence is clear on what not to do: Don’t address loneliness directly. It’s a stigmatizing term that ppl who’re lonely don’t want to be associated with. Instead build community. #ABCD

Reply on Twitter 1221515190283444231 Retweet on Twitter 1221515190283444231 Like on Twitter 1221515190283444231 Twitter 1221515190283444231

"Parliamentary Budget Office estimate...universal public (#pharmacare) would save Canadians $4.2B (&) Advisory Council (estimates) $5B a year"

BUT

"pharmacare means overcoming the interests of those who benefit from the status quo."
https://www.macleans.ca/opinion/national-pharmacare-the-time-is-now/amp/?__twitter_impression=true

Retweet on Twitter Patient Critical Co-op Retweeted

Canadian Doctors for Medicare @CdnDrs4Medicare·

24 Jan

"The Hoskins Report is done, the election promises have been made, the Ministers’ mandate letters are clear and the majority of MPs are with us. Canadians are ready. It’s time for pharmacare." #cdnhealth #cdnpoli https://canadianlabour.ca/pharmacare-advocates-to-new-parliament-the-time-for-pharmacare-is-now/

Reply on Twitter 1220526670098116608 Retweet on Twitter 122052667009811660818 Like on Twitter 122052667009811660838 Twitter 1220526670098116608

Retweet on Twitter Patient Critical Co-op Retweeted

Canadian Doctors for Medicare @CdnDrs4Medicare·

24 Jan

NDP Leader Jagmeet Singh announced earlier today that his party expects to table a bill that will lay out the framework for universal pharmacare for all. #cdnhealth #cdnpoli https://globalnews.ca/video/6451744/jagmeet-singh-announces-tabling-of-universal-pharmacare-bill

Reply on Twitter 1220534214287855616 Retweet on Twitter 12205342142878556164 Like on Twitter 122053421428785561624 Twitter 1220534214287855616

Retweet on Twitter Patient Critical Co-op Retweeted

Reply on Twitter 1218890000668012544 Retweet on Twitter 12188900006680125441 Like on Twitter 12188900006680125442 Twitter 1218890000668012544

19 Jan

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

Reply on Twitter 1221511008273027073 Retweet on Twitter 1221511008273027073 Like on Twitter 12215110082730270732 Twitter 1221511008273027073

This is why @PatientCritical Co-op accepts no outside funding:

Study: "groups sponsored by industry (show) positions favourable to the sponsor"

We need to "foster independent patient groups...transparent & accountable practices & codes on funding."
https://blogs.bmj.com/bmj/2020/01/22/the-prevalence-of-industry-funding-of-patient-groups/?utm_campaign=shareaholic&utm_medium=twitter&utm_source=socialnetwork

Reply on Twitter 1221437185955696640 Retweet on Twitter 1221437185955696640 Like on Twitter 12214371859556966402 Twitter 1221437185955696640

Epic sent an email co-signed by other healthcare CEOs that misrepresents #interoperability.

Why? #BigData wants sole control of your data.

"Consumerism in healthcare...& EHR vendors should not...hide behind claims of false security risks to avoid it."

https://www.darenasolutions.com/blog/epics-letter-to-hhs-facts-vs-fiction

Retweet on Twitter Patient Critical Co-op Retweeted

Debra BoyceMD @dboyceMD·

Reply on Twitter 1221393763991543808 Retweet on Twitter 122139376399154380811 Like on Twitter 122139376399154380847 Twitter 1221393763991543808

For those recalling practice during #SARs , one significant change now as we face #coronaviruscanada is communication esp social media #medtwitter
Use it for good. Spread reliable, useful information.
Follow ID MDs and Orgs.
@HotaSusy @ipacuhn help us out please
#ReliableID🇨🇦

Retweet on Twitter Patient Critical Co-op Retweeted

Reply on Twitter 1221145020918587394 Retweet on Twitter 12211450209185873941 Like on Twitter 12211450209185873946 Twitter 1221145020918587394

25 Jan

"CFIB want to see the ON govt replace all fax machines by the end of 2020 & other outdated paper forms with digital technology."

This only covers govt offices-not hospitals, insurers or clinicians offices.

Need #legislation to do this where patients are--where it matters most. https://twitter.com/dpepe88/status/1221128258630160385

Retweet on Twitter Patient Critical Co-op Retweeted

Annette McKinnon @anetto·

25 Jan

When patients are consulted 92% desire physicians to explain all potential options, elicit their preferences, and engage them in preference and knowledge exchange to some extent. Reality: only 39% of patients felt that Shared Decision Making occurred in their consultations. 1/2

Reply on Twitter 1221176269976588288 Retweet on Twitter 122117626997658828834 Like on Twitter 122117626997658828882 Twitter 1221176269976588288

Reply on Twitter 1221145020918587394 Retweet on Twitter 12211450209185873941 Like on Twitter 12211450209185873946 Twitter 1221145020918587394

25 Jan

Retweet on Twitter Patient Critical Co-op Retweeted

Reply on Twitter 1220548225029091328 Retweet on Twitter 12205482250290913282 Like on Twitter 12205482250290913281 Twitter 1220548225029091328

24 Jan

Similar arguments are made by #bigpharma when profit is threatened by legislation and price controls.

#bigdata is big business.
#transparency & #accountability is required to protect patients.
https://www.cnbc.com/2020/01/22/epic-ceo-sends-letter-urging-hospitals-to-oppose-hhs-data-sharing-rule.html

Retweet on Twitter Patient Critical Co-op Retweeted