Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

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OntarioEducatorDad @DadEducator·

16 Jan

BREAKING NEWS: Ahead of massive winter storm, Ontario empowering families to self-gauge how much snow is falling, will not be measuring total snowfall or reporting driving conditions, road closures or accidents.

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Patient Critical Co-op @PatientCritical·

11 Jan

How are we opening schools at the same moment we are closing hospitals?

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Patient Critical Co-op @PatientCritical·

29 Nov

Thanks to everybody that attended the @PatientCritical AGM.
I look forward to another great year working together, along with co-directors @baldgrrl & @Ctzen_Improver.

Minutes are available on Slack & will be emailed shortly. PS: requested PayPal donation link is again live.

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Patient Critical Co-op @PatientCritical·

29 Nov

JOIN US TODAY for the AGM!

Patient Critical Co-op's members-only Annual General meeting takes place TODAY at 11 PST/2 EST/3 AST.

All members can log in to http://patientcritical.slack.com at home or by phone, to vote on the future of Canada's only truly patient-owned healthcare voice!

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Patient Critical Co-op @PatientCritical·

28 Nov

Members! Join us TOMORROW-Nov. 29th, 2021-on http://patientcritical.slack.com at 11:00AM PST/2:00 PM EST/3:00 PM AST to vote in our AGM. Email info@patientcritical.com for login help.

It's been a hard couple years. Does patient voice still matter? What needs to happen next?

YOU decide.

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Patient Commando @PatientCommando·

24 Nov

'Executive Director of Lived Experience'. Real role in Australia. Time for Canada to follow?
@SolidFooting @DMcK20 @Amy_Lang @HE_ES_Canada

https://www.premier.vic.gov.au/new-mental-health-lived-experience-leadership

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Patient Critical Co-op @PatientCritical·

15 Nov

Patients in Canada have their own voice...how will they use it?

Patient Critical Co-op speaks for you, renewed each year by YOUR priorities.

Members: check your email or get in touch to vote on a preferred time of day for this year's Annual General Meeting, on November 29th.

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Pat Rich @pat_health·

10 Nov

"It has become evident to me the obstacle is not technology but a deeply fragmented and dysfunctional policy environment in health care around digital health" @ewan_affleck #LongwoodsBreakfastSeries

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Ont. Hospital Assoc.@OntHospitalAssn·

20 Oct

Together w/@CaregiverON we've revised the Essential Care Partner (ECP) Presence Policies During COVID-19 Considerations for Hospitals. The guide supports hospitals in ensuring flexible policies are in place to enable ECP presence for hospital patients: http://ow.ly/xsCC50GrB8o

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Cormac Russell @CormacRussell·

10 Oct

Folks often fail to recognize that personal health can be gained at the expense of wellness. As industrialized societies have come to idolize individual health they have placed greater emphasis on life style choices and self care and less on shared space and belonging. 1/2

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Kelly S (She/Her)@KellyOT·

20 Sep

@PatientCritical My doc office does not take messages if they are on the line. I can’t call back x 5 when I’m at work. No calls answered during lunch. Can take weeks to get through to schedule an appointment

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Patient Critical Co-op @PatientCritical·

20 Sep

When you miss a Dr's call:
-no message
-NO second call attempt
-call display blocked

When a Dr misses your call:
-callback=busy signal
-callback=long hold
-result? Reschedule apptmt

PTSD is real.
(Pitiful Telephone Service by Doctors)

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Patient Critical Co-op @PatientCritical·

20 Sep

Without interoperability & easy, universal access to data, the right to access it means little.

Is there a seat for patients to help @nshealth design healthdata access that works for them?

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Patient Commando @PatientCommando·

7 Sep

Hey #Toronto area patient advisors. Check out this remarkable opportunity to influence health care providers at the earliest stage of training. One of the most rewarding experiences I've had. @PatientAdvisors @PatientsCanada

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Timothy Caulfield@CaulfieldTim·

26 Aug

Talking to a vaccine-hesitant family member or friend? Those conversations tough but so important.

My (not comprehensive) list of things to consider.

cc @DrJenGunter @aetiology @vaccine_trust @UAlbertaSPH @UAlberta @CBCEdmonton @GidMK @DrSherryPagoto @KizzyPhD @drkiki

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Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver·

3 Aug

Join us tonight for an excellent and timely discussion about the Digital Divide. Definitely has implications for #HealthEquity #HCLDR cc @vikbakhru @PatientCritical https://twitter.com/JoeBabaian/status/1422579949374947334

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Danyaal Raza@DanyaalRaza·

6 Jul

Ford is able to pay MDs between $170 to $220/hour at vaccine clinics, but can't commit to a permanent pay increase to PSWs of just $3/hour. https://twitter.com/CBCLorenda/status/1412068164125564929

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Dennis Kendel @DennisKendel·

25 Jun

SCPOR Report May, 2021- Learn about new opportunities for patient engagement in healthcare research in Saskatchewan:
https://www.scpor.ca/news-1/2021/5/28/scpor-report-may-2021 @hqcsask @USaskMedDean @USaskHealthSc @SaskHealth @PatientAdvisors @PatientCritical @AbSPORU_PEP

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Patient Critical Co-op @PatientCritical·

25 Jun

Politics is not science based.

Society isn't about requiring a burden of proof before exercising compassion.

Evidence & studies are not the enemy of caring but can be leveraged as such.

I believe people need to invest more in society -& yes, politics- before we see a change.

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Patient Critical Co-op @PatientCritical·

20 Jun

Politics of expediency and interest, NOT service.

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