Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

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Claire Snyman @clairehsnyman·

7 May

Ensuring ALL #patient populations are identified, included and accessed in the most equitable way when listening to #patientvoices must be the way forward to help improve #PatientExperience @BerylInstitute

https://www.healthaffairs.org/do/10.1377/hblog20210430.456198/full/

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Cormac Russell @CormacRussell·

28 Apr

Some folks are into the “move fast and break things” mode of change making. Good luck to them, I say. But if like me, you’re into the “move slow and support others to make things” mode of change; then you may well also be into #ABCD

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John Michael McGrath @jm_mcgrath·

26 Apr

Aaaaand the legislature just voted against Michael Coteau's paid sick leave bill, 20-55

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Patient Critical Co-op @PatientCritical·

23 Apr

Addressing vaccine hesitancy means upping our demands for transparency & accountability from government & industry.

Stories like this matter. Honesty with the public matters.
https://nationalpost.com/news/canada/more-than-half-canadas-astrazeneca-vaccine-came-from-u-s-plant-accused-by-fda-of-quality-control-problems

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Patient Critical Co-op @PatientCritical·

9 Apr

"Canada('s) health technology is, charitably, a decade out of date. It lacks the ability to... track infectious disease outbreaks, efficiently manage vaccine supply... administer doses, & monitor immunity & adverse reactions on a national basis."
https://www.macleans.ca/news/canada/canadas-public-health-data-meltdown/

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Robert J. Sawyer@RobertJSawyer·

17 Mar

Get vaccinated!

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Jennifer Zelmer @jenzelmer·

11 Mar

National Seniors Council seeking members with experiences living, working, managing, or as an essential care partner in LTC.

The Council advises the Govt of Canada on matters related to the well-being, health & QoL of seniors.

To apply: https://bit.ly/3rFPdMX

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Patient Critical Co-op @PatientCritical·

10 Mar

Library loaning provincial park access passes-a welcome spin on public Commons and the Library.

#sdoh #abcd
https://www.cbc.ca/news/canada/london/library-s-free-ontario-parks-pass-lending-program-a-hit-1.5931871

#abcd #sdoh @CormacRussell

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Patient Critical Co-op @PatientCritical·

28 Feb

Now you've transitioned, who is filling your patient role now, @SolidFooting?

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Patient Critical Co-op @PatientCritical·

25 Feb

POTENTIALLY CAUSING AN OUTBREAK DOESN'T QUALIFY???

"Unless there are some serious or aggravating circumstances where the public safety is at risk, we are not …detaining individuals who are not complying with...the Quarantine Act,” Mooken said."

https://montrealgazette.com/news/canada/some-travellers-walking-out-of-pearson-airport-or-take-a-fine-instead-of-paying-for-quarantine-hotel/wcm/0f6cc444-02eb-4494-8316-3b6c58bb876a/amp/

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Patient Critical Co-op @PatientCritical·

24 Feb

Businesses are businesses.

Much like air travelers at Pearson, happy pay the fine to avoid a covid hotel, I imagine biz owners are content to take no responsibility for guests in their stores.

At least, not until @fordnation levies fines, regulations to enforce responsibility.

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Patient Critical Co-op @PatientCritical·

24 Feb

"Peel Police have confirmed they are not detaining or arresting people who leave the arrival area...who refuse to take the mandatory COVID-19 test or...quarantine hotel upon arrival...a fine that is cheaper...and then are RELEASED TO GO HOME"
https://www.insauga.com/international-travelers-are-walking-out-of-mississaugas-pearson-airport-ignoring-quarantine-rules

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Patient Critical Co-op @PatientCritical·

22 Feb

Reminder: today is the deadline to apply for Ontario Institute for Cancer Research @OICR_news

Patients, family members & caregivers with cancer experience, interest in cancer research are encouraged to apply for their Advisory Council.

Make a Difference: http://ow.ly/985d50Dmh6T

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Patient Critical Co-op @PatientCritical·

19 Feb

"Toronto, Peel and North Bay to remain under stay-at-home order" https://twitter.com/i/events/1362838204336988165

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Patient Critical Co-op @PatientCritical·

18 Feb

Members! Join us on Slack Saturday March 20th at 12PM EST for an Advocate Self Care chat, led by Co-op Director Jana Buhlmann:

"Let's look inward. How has #covid19 changed you? What new practices & routines have you implemented? What does the dreaded "self care" look like now?"

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Patient Critical Co-op @PatientCritical·

16 Feb

Every "architectural choice about the structure of the IT systems we build...requires intentionality & foresight...many private sector companies are not good at doing this...Bezos realized (&) forced (Amazon) from siloed entities...to one that was extensible & API powered"

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Danyaal Raza @DanyaalRaza·

15 Feb

A great little tool from @leadnowca that even dials your MPs number for you, to your phone!

#PharmacareNOW #VoteYesOnC213

https://act.leadnow.ca/c2c-pharma-lib/

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Patient Critical Co-op @PatientCritical·

16 Feb

"@NORDeHEALTH aims to...study the current implementation & adoption of PeHS...develop evidence-based evaluation frameworks & guidelines to help researchers and & support successfull implementation and adoption of PeHS...explore...co-design of PeHS through innovation projects"

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

16 Feb

#COVID19Ontario reality

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Patient Critical Co-op @PatientCritical·

16 Feb

Today it costs a hefty fee to get your #healthdata.

Soon it will be FREE-reducing inequity. One option? #GDPR #FHIR compliant #patientcentric #EHR Kailona.

NOW OPEN for testing to all users with-also free-nextcloud access: https://nextcloud.com/blog/health-care-data-app-for-nextcloud-kailona-hits-alpha-and-is-looking-for-testers/

@danpepe @jessehirsh @annafoat

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