Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

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Julie Drury @SolidFooting·

31 Mar

"In the rush to introduce new policies, including priority setting for acute care, patient & public consultation has largely been bypassed. It is also apparent that the crisis is highlighting gaps in healthcare that patients & carers always knew existed."
http://shorturl.at/ryGTZ

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Patient Critical Co-op @PatientCritical·

#COVID19 has forced us all to see Canada's #healthcare isn't as healthy as people have been saying.

We knew it. We ignored it.

We CANNOT forget his lesson in the months & years ahead.
#accountability #transparency

@infoway @GovCanHealth @CPHO_Canada @CMA_Docs @janephilpott

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Patient Critical Co-op @PatientCritical·

7 Apr

Retweeting 'moistly'.

We all need a good laugh now & then.

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Tyler Walsh@walsht·

5 Apr

Last Month during one of his press conferences, @JustinTrudeau had a message for Canadian children about how they can do their part in the fight against #COVID19. It's a powerful statement, one that deserves a version all kids will want to watch. #StayHomeSaveLives #LEGO

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Patient Critical Co-op @PatientCritical·

6 Apr

"Caregivers are the unsung heroes of #Healthcare"

This thread shows some of the varied roles #caregivers play, their essential role on the team, how reliant the system has become on them, as well as how difficult it is for those that don't have anyone.
TY #HealthcareHeroes

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Julie Drury @SolidFooting·

5 Apr

This is happening in Ontario as well and is an unfair cost to patients and families.
@ONThealth @fordnation @celliottability Can this be addressed? Example, one dispensing fee for putting together a few Rx to be picked up every 30 days (as required) by chronic patients? https://twitter.com/couragesings/status/1246663622547275779

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Dr Javeed Sukhera @javeedsukhera·

4 Apr

Do we cherish life or do we cherish wealth?

“When information is hard to access and people are prevented from drawing informed conclusions, hatred, bias, prejudice and violence come rolling out.”

Must read piece in ⁦@globeandmail⁩ by Ai Wewei https://www.theglobeandmail.com/opinion/article-the-virus-in-the-body-politic-we-have-lost-our-ability-to-cherish/

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Robin McGee @TCOrobin·

3 Apr

We in the #patientsafety world have pushed for years against the system that saw medical systems put reputational risk as a priority relative to actual physical risk. Now, the whole world hears us. Lives must come first! https://twitter.com/NightShiftMD/status/1245712508448628739

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Andrew S. Boozary @drandrewb·

3 Apr

This is the clarion call Canada needs right now by @picardonhealth:

get loved ones out of seniors’ homes.

and our most marginalized into safe housing. it is a matter of life and death. https://twitter.com/picardonhealth/status/1245861047904260096

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Patient Critical Co-op @PatientCritical·

2 Apr

cc @infoway

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Patient Critical Co-op @PatientCritical·

2 Apr

#healthcare needs #transparency #accountability & #opensource to sow "seeds of a #distributed #innovation...that facilitates invention (&) manufacturing (&) quickly spread to areas around the world that need it" to fight #COVID19

https://metaviews.substack.com/p/covid-19-why-we-need-an-open-and

@jessehirsh @metaviews

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Patient Critical Co-op @PatientCritical·

25 Mar

Overwhelmed-not sure how to cope? You're NOT alone.

Caregiver, Patient & Doc open up about COVID: Claire Snyman, Lawrence Yang &
@PatientCritical
Director Jana Buhlmann.

Pls read & share: https://patientcritical.com/a-caregiver-patient-and-doctor-reflect-on-covid-today/

#physicaldistancing NOT #socialdistancing

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Patient Critical Co-op @PatientCritical·

1 Apr

#Caregivers "need to be included as core members of our #healthcare teams (povided #virtualcare) training, equipment, psychological support & ongoing communication required to...care for #COVID19 patients..."

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Patient Critical Co-op @PatientCritical·

1 Apr

All, please submit any resources re: patient-caregiver and #COVID19 below.

We will do our best tonight and tomorrow to shape whatever we receive into easily searched regional resources.

https://patientcritical.com/submit-a-resource/

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Cormac Russell @CormacRussell·

1 Apr

In what way does ur organizations response to #COVID19: 1. enhance local communities?
2. displace or replace capacities in local communities?
3. retrieve or restore that which had been lost in local communities?
4. Mutate when pushed to extremes in communities? #TogetherApart

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Kate Mulligan@KateMMulligan·

31 Mar

#COVID19 may not discriminate but the human systems it enters sure do. What can we do about its unequal impacts & vulnerabilities in #CDNhealth?

Join @NCCDH_CCNDS webinar on #HealthEquity #sdoh tomorrow April 1 from 1-2pm EST with me, @sumeeyoh, @rcbetker, @YoavKeynan & @armp71

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Kylie Peacock @kylierpeacock·

30 Mar

📢My colleagues at @Ic3Rg are still looking for adults living w/ 1 or more chronic conditions to complete an online survey about self-management of #ChronicConditions! @maritimespor @PatientVoicesBC @PatientCritical @sickboypodcast

💻Link to survey:https://surveys.dal.ca/opinio/s?s=55372

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Nick Doody @NickDoody·

28 Mar

Our street now has a WhatsApp group & this morning one neighbour was struggling with loneliness, so earlier we all had a socially distanced cuppa and chat together. This stuff makes a difference. #lookaftereachother

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Patient Critical Co-op @PatientCritical·

30 Mar

"Most of the ways to ward off #coronavirus are available only to the affluent...in essence, a disease that was spread by the rich as they flew around the globe will now kill millions of the poor" #covid19 #sdoh #abcd

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Kate Mulligan@KateMMulligan·

29 Mar

Your Sunday long read: inspiring true-life stories & long-awaited research findings on #SocialPrescribing in Canada: https://bit.ly/39qnQNb

Listen @metromorning tomorrow at 06:40 EST re what we learned & how to urgently adapt & implement for isolation & #sdoh under #COVID19.

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