Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

Patient Critical Co-op @PatientCritical·

39m

This November, take part in @PatientCritical Co-op's *VIRTUAL* Annual General Meeting--from home or phone!

We want to hold our AGM to include as many members as possible. Pick you preferred times here: https://doodle.com/poll/casf8r4serf5zrq2

Not a member yet? Join here: https://patientcritical.com/join/

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Patient Critical Co-op @PatientCritical·

21 Oct

Please get out and vote today, Canada! It actually, really, truly can make an impact.

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Dr. Jane Thornton @JaneSThornton·

21 Oct

4 questions you should always ask your doctor (Christer Mjåset | TEDxOslo) - thanks to @clare_ardern for the link. https://www.ted.com/talks/christer_mjaset_4_questions_you_should_always_ask_your_doctor?utm_source=twitter.com&utm_medium=social&utm_campaign=tedspread via @TEDTalks

#SharedDecisionMaking @PatientCritical @picardonhealth

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Patient Critical Co-op @PatientCritical·

16 Oct

Patient Critical Co-op speaks for members, patients & caregivers.

Check out this video to meet some of our members & see what matters to folks like YOU in #healthcare!

Watch here: http://youtu.be/To1HXqsXMD8

#patientsincluded #patientengagement #patientvoice

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Patient Critical Co-op @PatientCritical·

7 Oct

Before you vote hear what they think matters this election:

@docdanielle-ask where your candidates stand on big ideas: https://patientcritical.com/podcast/big-health-ideas-dr-danielle-martin/
@drgigiosler-patients & dr's need to get involved in politics: https://patientcritical.com/podcast/cma-president-dr-gigi-osler/
https://patientcritical.com/podcast/steve-morgan-national-pharmacare/

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Patient Critical Co-op @PatientCritical·

7 Oct

Before you vote hear what they think matters this election:

@picardonhealth-policy matters: https://patientcritical.com/podcast/andre-picard-policy-matters/
@SteveUBC-#pharmacare: https://patientcritical.com/podcast/steve-morgan-national-pharmacare/

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Julie Drury @SolidFooting·

15 Oct

The Ministry of Health @ONThealth @celliottability are recruiting for the Chair of the Minister’s Patient and Family Council. Application are due October 25th
https://www.pas.gov.on.ca/Home/Advertisement/186
RT to share

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Dr. Jane Thornton @JaneSThornton·

15 Oct

Hospitals and the ‘epidemic of immobility’ -
https://www.washingtonpost.com/health/overzealous-in-preventing-falls-hospitals-are-producing-an-epidemic-of-immobility-in-elderly-patients/2019/10/11/d1894374-d8ab-11e9-a688-303693fb4b0b_story.html

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Patient Critical Co-op @PatientCritical·

15 Oct

Add that patient’s catch medical errors in their files.

Mix in savings to providers & system, by reducing need for duplicate tests.

Shake liberally by allowing patients to ADD data.

Finish by allowing patients to opt in to research—& limit who accesses/profits from their data.

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Marc-André Gagnon @MA_Gagnon·

11 Oct

Inter- and intraprovincial inequities in public coverage of cancer drug programs across Canada: a plea for the establishment of a pan-Canadian pharmacare program https://current-oncology.com/index.php/oncology/article/view/4867#.XaCOEhUF-io.twitter

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Patient Critical Co-op @PatientCritical·

13 Oct

Well done! Amazing citizen journalism & advocacy!
A great reminder that we don't have to settle for political sound bytes: we can dig just a little deeper.

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Monika Dutt @Monika_Dutt·

23 Sep

Important analysis of the way "vulnerable" is used in #publichealth -- often without acknowledgement of structural problems that create the "vulnerability". https://twitter.com/Arrianna_Planey/status/1175908296877850632

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CADTH @CADTH_ACMTS·

10 Oct

How do you differentiate between a #PredatoryJournal and a Scientific Journal? Here are some characteristics to watch out for. #CADTHTalks by @KDCobey

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Patient Critical Co-op @PatientCritical·

10 Oct

Everything in healthcare needs to be based around human connection.

Thx @Leslee_Thompson @alungstory @HeatherPina44 & @SolidFooting for showing relationships in healthcare matter & working to make them more compassionate & inclusive!

PS: watch the video even after the stream.

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Patient Critical Co-op @PatientCritical·

10 Oct

Creating virtual networks of patients & caregivers allows patients to participate virtually.

Not just governments & institutions: social media can also connect patients & families seeking a way to reach out. #peoplepoweredhealth

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Patient Critical Co-op @PatientCritical·

10 Oct

Want to get involved in patient advocacy?

There are many patient orgs in Canada (to) ask!

Contact your health authority.

Talk with friends.

Explore @patientcritical’s Advocate Directory: https://patientcritical.com/advocates/

@SolidFooting @Leslee_Thompson #peoplepoweredhealth

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Patient Critical Co-op @PatientCritical·

10 Oct

The first time you say ‘that’s ok you just didn’t have time... it’s a slippery slope. If you’re not prepared to hold true to what you are trying to shape as a culture it dissipates.
-@Leslee_Thompson #peoplepoweredhealth

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Patient Critical Co-op @PatientCritical·

10 Oct

There’s got to be accountability...patient partner intricately involved...equal partner...—@SolidFooting
It takes discipline...support...resources...& WE have choices where we use our resources as leaders.
@Leslee_Thompson
#peoplepoweredhealth
@HSO_world

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Patient Critical Co-op @PatientCritical·

10 Oct

It’s not (the patient and) the team...it’s just THE TEAM (Leslee Thompson)
@HSO_world
We need to see culture change at the organizational level...at every table of that organization.
@SolidFooting #peoplepoweredhealth

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Patient Critical Co-op @PatientCritical·

10 Oct

Leslee Thompson: if you open up to understanding you’re part of a team...those decisions can be made by being well-informed & understood by ALL voices.
We have to step into the circle.
@Leslee_Thompson @HSO_world #peoplepoweredhealth

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Peer-to-Peer & Online Communities

Explore Basic Income, Pharmacare & other Big Ideas in healthcare with family physician, associate professor, author, advocate & Executive Vice President of Women’s College Hospital Danielle Martin.

LISTEN HERE

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