Peer-to-Peer & Online Communities

April 10, 2019

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee.

Show Notes:

Story Library at Patient Revolution

Storytelling and Medicine

After Dr Google: peer-to-peer health care

Involving disabled children and young people as partners in research: a systematic review

Peer-to-peer Health Advice, Susannah Fox, Mike Evans (Youtube)

Related Podcasts:

Julie Drury: Caregiver & Patient Advocate

Jesse Hirsh on Data Literacy

Dave deBronkart: Patients as Partners

Isobel Jordan and Donald Lepp

Rachel Martens: Advocacy & Social Media

Teri Price: Greg’s Wings

Robin McGee: Patient Advocate

Email Marketing Services by Benchmark

Patient Critical Co-op @PatientCritical·

Ireland's cautionary tale: "private health insurance...allowed a 2-tier system to develop w/long waiting lists in the public system & limited financial protection for households. It has impeded a fair, efficient & integrated system & there has been profiteering by some insurers."

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Patient Critical Co-op @PatientCritical·

12h

Exactly why we need #accountability
#transparency
#interoperability & #regulations for all the above

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Solutions for Kids in Pain @KidsInPain·

9 Dec

@KidsInPain is looking for patient partners who have lived experience with kids in pain! To learn more and sign up visit: http://ow.ly/VKwN50x6kPV

#ItDoesntHaveToHurt #ChildHealthCan2019

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Rachel Martens @RaeofSunshine79·

14 Dec

An excellent opportunity for #FERCourse grads! Are you a patient involved in writing a grant application, or a researcher wanting to involve patients? Upcoming webinar opportunity! @canchild_ca https://www.eventbrite.ca/e/patients-participating-in-grant-writing-webinar-registration-85894463653

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Patient Critical Co-op @PatientCritical·

14 Dec

"At least 3 million Canadians do not get essential medicines...politically powerless, too busy deciding between groceries & drugs to mobilize....New Zealand, with fewer people than British Columbia, pays far less for both patented & generic drugs than Canada."

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André Picard@picardonhealth·

13 Dec

Highlights of mandate letter for Health Minister @PattyHajdu:
- ensure Canadians have access to the medicines they need;
- address the rapid rise in youth #vaping;
- creation of a national #autism strategy;
- provide additional funding to @CIHR_IRSC
https://pm.gc.ca/en/mandate-letters/minister-health-mandate-letter

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

13 Dec

The PM's mandate letter for health points to a transformative agenda; pharmacare, primary care, palliative care, women's health & much more. Essential reading for anyone interested in health services & policy research, #patients, #caregivers & #HCPs. https://pm.gc.ca/en/mandate-letters/minister-health-mandate-letter

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CFHI-FCASS @CFHI_FCASS·

12 Dec

Hold the date: March 24/20 for the Patients & Caregivers Take on Technology 1-day conference. This is an opportunity for patients & caregivers to define their expectations for quality compassionate care in a digital healthcare system. #CdnHealth #HealthIT #PatientExperience

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Patient Critical Co-op @PatientCritical·

12 Dec

I urge you all to fill out this survey honestly & thoughtfully.

Canada has no #digitalhealth strategy or #healthdata #interoperability & #patientdata protections.

@DigiHealthCA will be an influencer in deciding who profits & who protects Canadians' data for generations to come.

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Patient Critical Co-op @PatientCritical·

12 Dec

https://www.theglobeandmail.com/amp/canada/article-alberta-drug-plans-biosimilars-biologics-medications-arthritis-crohns/?__twitter_impression=true

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Patient Critical Co-op @PatientCritical·

12 Dec

Metaviews by @jessehirsh:

"The politicians of tomorrow are YouTubers today. Their ability to connect with their constituency, mobilize (&) spin & frame their positions and perspective will allow them to successfully seek public office in the future."

https://metaviews.substack.com/p/elites-and-social-media-hierarchy?token=eyJ1c2VyX2lkIjo1MzQwOTQ5LCJwb3N0X2lkIjoxOTUxNTYsIl8iOiJYQ0Z1eCIsImlhdCI6MTU3NjE2MjYxMSwiZXhwIjoxNTc2MTY2MjExLCJpc3MiOiJwdWItMTY4ODIiLCJzdWIiOiJwb3N0LXJlYWN0aW9uIn0.mIvffBCTCo32IRE5JhjqFlZNsu5BYJrulVSJ_bgxFsY

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Patient Critical Co-op @PatientCritical·

11 Dec

Working on it ;-)

https://patientcritical.com

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Patient Critical Co-op @PatientCritical·

11 Dec

On #healthadvocacy: @PatientCritical Co-op invites members to cover those without financial means to add their voice (anonymously on both sides) for this reason.

Advocacy & agency has to go mainstream & become common language all patients can feel safe & empowered to employ.

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

11 Dec

"Coming together is a beginning; keeping together is progress; working together is success. These words of Henry Ford have been on my mind recently, as I've contemplated emerging world of #patient & #caregiver partnership in Canada. #healthcare 1/5

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Patient Critical Co-op @PatientCritical·

11 Dec

Are you concerned when you hear well-meaning businesses & advocates who 'dont want to throw the baby out with the bathwater'?

Why is defending funding of ANY service more important than #legislation & #regulation to scale #interoperability & #patientdata access to all Canadians?

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Patient Critical Co-op @PatientCritical·

11 Dec

Once again available in Apple Podcasts/iTunes:

How can we improve patient partnerships AND avoid tokenism?

A round-table podcast with @baldgrrl @mathieu_jackson @NadiaHillier @SolidFooting

https://patientcritical.com/podcast/

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Jennifer Johannesen @jenjohannesen·

9 Dec

For those interested in #patienengagement improvement: this podcast episode used some of my critique as a jumping-off point to discuss issues of concern to engaged patients. Worth a listen for some compelling honest moments in a well-facilitated conversation. https://twitter.com/PatientCritical/status/1202692579940323347

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Patient Critical Co-op @PatientCritical·

5 Dec

How can we improve patient partnerships in healthcare AND avoid tokenism?

A round-table on the @PatientCritical podcast with @baldgrrl @mathieu_jackson @NadiaHillier @SolidFooting

Hat tip to @jenjohannesen for @cochranecollab & @BCSUPPORTUnit keynotes!

https://patientcritical.com/podcast/improving-patient-partnerships-roundtable/

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Victor Montori, MD@vmontori·

7 Dec

Healthcare has corrupted its mission. We need a system based on solidarity not greed. We need a patient revolution for careful and kind care for all. This is #WhyWeRevolt @patientrev https://twitter.com/RosenthalHealth/status/1203353598232580097

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

7 Dec

Health system transformation starts & ends with #patient & #caregiver exp! Meaningful change doesn't always have to be costly. "Small" things like open visiting hrs, no noise policies at night & addressing PJ paralysis are transformative, easy to implement & cheap #Cdnhealth

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Peer-to-Peer & Online Communities

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