Patient Critical Co-op

Kidney cancer survivor, health policy advisor and patient engagement advocate Dave deBronkart discusses responsive design as metaphor for co-designed patient care, digital health, patient empowerment & reducing medical error, while keeping healthcare healthy by embracing patients as partners.

Dr. Christine Chambers is a Canada Research Chair, Professor of Pediatrics & Psychology…and mom. She’s passionate about helping children, engaging patients in research via social media & proving to people #itdoesnthavetohurt (web). We talk about meaningful inclusion of patients & all stakeholders in healthcare research, and much more. Find Dr. Chambers on Twitter or learn more about her.

Rachel Martens is a mother, parent engagement facilitator, patient research advocate & social media pioneer in Calgary, Alberta. Social media helped her learn to care for her son’s rare disease, and later became her voice to advocate for others. Coffee And Research (blog) Finding Community: Social Media for Families of Children with Disabilities (webinar) Twitter: @Raeofsunshine79

Australian Tim Blake is an engaged patient, former CIO for Tasmanian Department of Health & Human Services & founder of Semantic Consulting. Tim believes Engaged Patients are critical to the Digital Transformation in Healthcare. Read Tim’s thoughts on What Exactly Is Digital Health? Twitter: @timblake1978.

Digital Healthcare, from Healthcare Innovation Strategist Zayna Khayat’s Point of View. Zayna tackles Digital Health from innovation and business perspectives, having worked with Mars Innovation Hub, University of Toronto, Saint Elizabeth Healthcare & the Rotman School of Business in Canada, as well as REShape at Radboud University Medical Center in the Netherlands. Twitter: @ZaynaKhayat.

Patient Advocate Liz Salmi (TheLizArmy.com, Twitter, Facebook) & University Health Network’s Selina Brudnicki (myUHN, Selina on Twitter) discuss the #OpenNotes (twitter, web) movement promoting patient ownership & access to their health data.

Shanon McQuitty describes how, after her diagnosis of Rheumatoid Arthritis, she found a lifeline on social media. Now a Patient Advisory Board member at the Arthritis Research Canada, Shanon works in patient advocacy to help others. Twitter: @shanonmc.

J Tyler Moss is a patient, researcher & participant in Saskatchewan’s CHIP pilot. We discuss the value of patient access to labs, prescriptions, hospital & acute care visits, as well as empowering patients to add personal health information, set medication reminders and record upcoming appointments.

Aidan Scott is a TEDx speaker and lived experience voice for better #mentalhealth and #mhealth. Founder of speakbox.ca (in development). Aidan talks with us about the role of digital health, the importance of proactive healthcare & early interventions. Twitter: @aidanbox

TeachandLearnFM’s Dr. Daniel Pepe and his team create learning resources to answer questions submitted by patients. Their goal? To empower patients to take an active role in their healthcare.