Digital vs. Patient Interoperability

July 20, 2020

A couple weeks back the Infoway Digital Podcast delved into into Patient Empowerment with Annette McKinnon, Aidan Scott & our own PJ Mierau.

This is a frank, raw conversation exploring how digital interoperability, patient interoperability & government response are colliding in the age of COVID 19.

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Curious Me!@want_to_know·

25 Oct

@SaskHealth @PatientCritical @PatientAdvisors @Patient_Safety patients are not challenging. System is. Let’s change this together.

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Amy Ma @Ctzen_Improver·

22 Oct

Please share!
.@SolidFooting @TO_dpr @PFEAMorin @baldgrrl @JulieRohrYEG @tjzmommy @HeatherPina44 @alungstory @PatientCritical @PatientCommando https://twitter.com/PatientAdvisors/status/1319121376800874496

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AMS Healthcare @AMSHealthcare·

20 Oct

PJ Mierau, Managing Director of @PatientCritical will bring his #patient #advocacy experience to the #HearingYourVoices virtual conference Nov. 3 & 4 answering the question, Digital Health: How do we get there together? Have your say, register today https://bit.ly/3hRH6YM

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Tai Huynh @taimhuynh·

9 Oct

What’s worse is you’ve now encouraged comparison shopping with people booking multiple appointments and going to the quicker one without or with no ability to cancel others, creating no-shows meanwhile hundreds of ppl aren’t able to even get in line.

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Stephanie Montesanti @S_Montesanti·

8 Oct

Our research team @UAlbertaSPH & @imaginecitizens is collaborating with @CFHI_FCASS to understand the impacts on patients, families/caregivers & frontline healthcare providers as a result of COVID-19 restrictive visiting & family presence policies put in place in hospitals.

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Solutions for Kids in Pain @KidsInPain·

30 Sep

(1/2) We are excited to announce the release of the blog series "Painfully Aware"✒️about life w #ChronicPain, in the eyes of a young person➡️http://bit.ly/33e6F1r

This series aims to connect #youth🤝by sharing what living w #pain is really like.

Teaser⤵️

#ItDoesntHaveToHurt

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Toronto Star@TorontoStar·

28 Sep

This is how much Ontario’s three top-billing pain doctors charged the province on the nerve block procedures between 2017-2018, compared to the totals of entire provinces. https://www.thestar.com/news/investigations/2020/09/28/thats-an-injection-mill-ontarios-top-billing-pain-doctors-capitalize-on-provinces-lax-rules-running-up-the-publics-tab-for-chronic-pain-management.html?utm_source=Twitter&utm_medium=SocialMedia&utm_campaign=Health&utm_content=operationtransparency

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Patient Critical Co-op @PatientCritical·

19 Sep

It appears @patientcritical web services are down. If you've been trying to get ahold of us by email, please stand by or DM.

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Ryan Imgrund @imgrund·

18 Sep

⭐️⭐️GOVERNMENT MISCOMMUNICATION REQUIRING IMMEDIATE ATTENTION⭐️⭐️

1. If my son is symptomatic & being tested for COVID, the @ONThealth COVID assessment says to get tested and self-isolate.

2. If my son is symptomatic & being tested for COVID, @ONeducation says to GO TO WORK.

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

9 Sep

All #patient & #caregiver stories matter. We have become a society that seeks dramatic sound bites but many patients & caregivers don’t have a Kleenex worthy crisis event. Rather they have a lifetime of small events that pile up, one on top of the other, nearly burying them alive

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Patient Critical Co-op @PatientCritical·

10 Sep

Anger doesn't get anyone anywhere-but emotion bleeds out of pain & suffering.

Working past anger to build constructive solutions can solve serious issues UNDER the anger.

Labeling people angry or noncompliant makes it easier to dismiss concerns.
#himmseurope20 #patientadvocacy

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Patient Critical Co-op @PatientCritical·

5 Sep

"Thank you for sharing your #patientstory. We pledge to take a specific action & report our results & findings back to you. Your contribution matters-this is how we prove it."

Your story has to be more than entertainment at a conference. It should be a lesson-a way to do better.

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Patient Critical Co-op @PatientCritical·

22 Aug

PJ here. Apologies for sitting out some important issues recently.

So tired of people taking advantage of #COVID19 to skate on responsibilities, pass the buck, or happy to let harm continue.

I am burnt out at a time advocacy is needed, but family & self care is needed more.

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Patient Critical Co-op @PatientCritical·

10 Aug

This would be more inspirational if Mr. Bezos & Amazon (both of whom have seen billions in record profits during #COVID19) paid their warehouse employees a living wage & provided them with PPE.

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Patient Critical Co-op @PatientCritical·

4 Aug

Acknowledging that patients are all at different points in their journey, some don't want to access data, some may want to only learn from their doctor.

Creating a transparent system to automate #patientdata access is important all the same, and allows for eduation & growth.

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Patient Critical Co-op @PatientCritical·

4 Aug

Doctors can be amazing advocates for their patients. Patient data ownership is an area there is tremendous disagreement.

With respect to how much doctors juggle, know, determine & decide...access to patient data should be complete, digital and instant--no decision required.

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Julie Drury @SolidFooting·

4 Aug

Attention patient, family, caregiver partners: @CFHI_FCASS scholarship opportunity for @i4_2020
#patientpartners #PatientExperience #patientleaders

Please RT to share @PatientCritical @PatientAdvisors @Patient_Safety @PatientsCanada
@imaginecitizens
@BCPSQC https://twitter.com/CFHI_FCASS/status/1289181733762473990

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Marc-André Gagnon @MA_Gagnon·

4 Aug

“Despite ample warning, the U.S. squandered every possible opportunity to control the coronavirus,” @edyong209 writes. “And despite its considerable advantages—immense resources, biomedical might, scientific expertise—it floundered.” https://www.theatlantic.com/magazine/archive/2020/09/coronavirus-american-failure/614191/?utm_source=twitter&utm_medium=social&utm_campaign=share

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Nathan Stall@NathanStall·

4 Aug

Telemedicine has been dubbed "virtually perfect" in the #COVID19 era: https://www.nejm.org/doi/full/10.1056/nejmp2003539

New research by @drklam and @geri_doc reports that 38% of older adults are unready—especially those with cognitive/sensory impairment, poverty and low education: https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2768772

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The New York Times@nytimes·

4 Aug

The Israeli government, confident it had beaten the coronavirus, invited students back to school in May.

Within days, infections were reported at a Jerusalem high school. It became the largest outbreak in a single school in Israel, possibly the world. https://nyti.ms/2EJWh7H

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