Meeting Briefs

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24 Feb

What I hope to learn from #UpOnDigital2020:

-more on @infoway requirements for federated identity model for national #ehr access in #ACCESS2022

-national policy status on *meaningful* #interoperability

-is Canada exploring a standardized #healthdata taxonomy?

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Steve Morgan @SteveUBC·

24 Feb

Sharing again: (1) universal #pharmacare will save Canadian households and businesses at least $4 billion more than it will cost government to run; (2) there are many ways to raise government revenues so that net savings are distributed fairly. #CDNpoli https://www.cmaj.ca/content/190/47/E1384

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"Unique moment for #pharmacare" says @DanyaalRaza
BUT
Did you know @liberal_party has left pharma out of this year's budget?
HOW
will it affect your wallet?
LISTEN https://patientcritical.com/podcast/
THEN
Find your MPP & tell them how you feel: https://patientcritical.com/knowledge-base/find-your-canadian-representative/
#digitalhealth #cdnpoli

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Dr. Zubin Damania@ZDoggMD·

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And now, ladies and gentlemen, the world's greatest fluff piece. What happened to actual journalism? "We can't show you how many clicks cuz HIPAA" WTF (video from me coming soon) https://www.cbsnews.com/video/epic-how-a-company-you-never-heard-of-handles-your-medical-records/

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🏴󠁧󠁢󠁳󠁣󠁴󠁿 🇫🇷 🇨🇦 Jeanette Smith 💓 💪🏻 👑@JnothingSmith·

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Come join me, and others, @PatientCritical ; patient-owned and receives no funding from single-interest groups or companies -- just patients deciding how best to make a difference! Regular chats and quality podcasts! #PatientEngagement at its best. https://twitter.com/PatientCritical/status/1231212750258548737

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Steven Jay Cohen @StevenJayCohen·

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.@cfarivar Privacy & public health?
BBC News - 23/02/2020 13:01 GMT - @bbcworldservice http://www.bbc.co.uk/programmes/w172wy0tv500x1m

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Claire Snyman @clairehsnyman·

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1993 Supreme Court of Canada stated medical record information belongs to the patient ~ 27 years later we still debate if & how people should access their medical records - we can create value through access, feel more in control + engaged in our care + ⬆️ patient safety! https://twitter.com/SolidFooting/status/1231181948174946304

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"Unique moment for #pharmacare" says @DanyaalRaza, @CdnDrs4Medicare chair.

How will YOUR wallet be hit? How will #digitalhealth, policy, ethics & profit issues factor into the debate?

LISTEN: https://patientcritical.com/podcast/dan-raza-unique-moment-pharmacare/

@HealthCoalition @CADTH_ACMTS @ChooseWiselyCA @janephilpott

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CFPC @FamPhysCan·

19 Feb

We’ve joined 170 organizations in co-signing the joint Pharmacare Now Statement requesting the Minister of Finance to commit funding in this year’s budget to implement universal #pharmacare for #Canadians.

http://www.healthcoalition.ca/wp-content/uploads/2020/02/Letter-to-Minister-Morneau-Feb-13-2020-3.pdf

#cdnpoli #cdnhealth

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Danyaal Raza @DanyaalRaza·

21 Feb

The latest from Australia, on the results of parallel, private financing for hospital & MD care. https://www.theaustralian.com.au/nation/politics/private-patients-pay-more-for-shoddy-knees-says-medibank/news-story/ff63aad0b25902ccd341dbc1d2562414 via @DennisKendel

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AcademyOfFabStuff @FabNHSStuff·

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Check out this mnemonic NO STUMBLES to reduce falls by NHS Wolverhampton CCG.

http://ow.ly/kuP950yhdmf

@RoyLilley @NHSinWolves

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One way to amplify is to connect strong voices & goals in a large, diverse & health literate community.

Explore our national advocates directory to expand your network.

Join the Co-op & invite others to help build an action plan & steer patient voice:

https://patientcritical.com/join/

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One of the problems with people expanding their understanding and agency is finding tools and ideas.

Here's one great resource to read & share, based in Asset Based Community Development via @CormacRussell

#ABCD

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Tune In! #youngcarers being interviewed now on @cbcfreshair.

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Dr. Christine Chambers @DrCChambers·

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When a journal publisher emails your manuscript patient partner co-author asking for their degrees and institutional affiliation and tells them they are holding up the publication process for not providing that info. #PatientEngagement #PE #HowNotToDoPatientEngagement

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21 Feb

Thanks for the old fashioned, offline phone conversation this aft @amaybee -- it's always great to compare notes with fellow health advocates, build relationships and grow our momentum! #PatientExperience