Find your MPP

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Key to success of ensuring that patients aren't blocked from their digital medical records is enforcement of their federal rights. Even the current rights are not respected. Giving new rights not helpful unless there is proper enforcement. https://t.co/odiojWLqKC @ePatientDave

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23h

Insightful pro's & con's on #pharmacare, but a few points alarm me,such as this:

"A fair system (needs) everyone to pay their share...the roughly 3 million...not covered by employment (or) provincial insurance should also pay (the same) that would be paid by insurers”.

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Evidence based.
Policy based.
Profit based.

Pick two.

#HIMSS19

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Will "health care stakeholders (with) financial incentives to not let their patients get care elsewhere...develop cost recovery (that won't) monetize #PHI (&) enhance competition (as) #ehr efforts have...interfered with #interoperability"
#himss19 @s4pm

https://t.co/dPxDr1iuK9

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Hacks can be done w/software after shipping to be harder to detect. Some think #huawei could compromise worldwide 5G infrastructure.

"chips had been inserted during the manufacturing process...by operatives from a unit of the People’s Liberation Army..."

https://t.co/aRIYSyzPjk

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Cars/phones aren't sold before getting user feedback.

When provider holds a focus group, participants are qualified to participate & then compensated.

Patients make sacrifices. They bring valuable lived experience, or a skillset of value?

They belong there.

Compensate them.

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"...anyone with a smartphone will someday be able to see their clinical record (&) claims history...That unified data set will also open up a lot of opportunities for health app developers."

Progress! Next: accessibility if you can't afford a smartphone.

https://t.co/NzMf5r9LXQ

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Liz Salmi @TheLizArmy·

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Passionate about patient access to clinical notes? This free webinar about sharing #mentalhealth notes is starting in T-20 minutes.

I’ll be listening in and moderating the chat box! Join me. #opennotes

CC @GilmerHealthLaw @BraveBosom @chethanr @chethanr https://t.co/4vtnf82u5d

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Our podcast with @OTNtelemedicine CEO @EdBrown was covered in their newsletter 'Connected'. We discuss OTN's successes, vision & barriers to scaling virtual care from the minority to majority.
Connected: https://t.co/IJDeZdXJAu

Pattient Critical Podcast: https://t.co/pGWLI5xFdE

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I fervently hope we are never too big or too disinterested a society to hear the shouts for aid, whether across a street or from the privilege-boxes in our pockets.

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Our podcast w/globe-trotting Australian #digitalhealth consultant & patient advocate @timblake1978--at #himss19 in Florida now, he'll also be @NHLC2019 in Canada this summer.

Tune in to hear about emerging issues in #healthcare that are truly universal:

https://t.co/Vss9TUQC71

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Lyubov Lytvyn @lyubovlytvyn·

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Always ask yourselves “Who are we not hearing from?” Need to consider multiple strategies of #patientengagement, some more resource-intense than others. @OSSUtweets YouthCan IMPACT trial included youth and caregivers at every step of the research process.

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Dr. Christine Chambers @DrCChambers·

14 Feb

Well, this pretty much sums me up! "Disseminate Your Research, Collaborate Outside Your Field, and Speak Up for Women" Thank you @amandalstone for interviewing me for @PainResForum as part of #IASPCongress #ItDoesntHaveToHurt https://t.co/bJRnPW0hDv

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I agree no-one should go uncompensated for time and expertise (in projects where other participants are paid). It creates a diminished sense of worth and the work is not respected.

With the caveat that I only except compensation from co-op members, not orgs or gov.

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I'm delighted #himss19 #patientinclusion tweets by myself & others hit a nerve this morning!

As I said in all my tweets I have only praise for Grace, Jen, Savvy & other fairly compensated advisors--but as Grace said: she advocates for many diverse voices still denied inclusion.

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Enlightening Results @GraceCordovano·

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@PatientCritical @JohnSharp @GilmerHealthLaw @timblake1978 @jhoronjeff I recognize the privilege of being able to attend/speak at an event. I invested in attending #HIMSS19 to voice:
-why #patients & #carepartners need to be included in #digitaltech innovation
-what patients want & need from #AI tools
-why patients should be compensated for data

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Great respect for @jhoronjeff & @GraceCordovano, strong patient advocates! Also a businesswoman & professional speaker, who profit from attending. Most attendees' employers pay their way. Most patients can't spend 1000s to go, so #HIMSS19 misses a KEY perspective in healthcare.

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