Dr. Dan Pepe: TeachandLearnFM.com

TeachandLearnFM’s Dr. Daniel Pepe and his team create learning resources to answer questions submitted by patients. Their goal? To empower patients to take an active role in their healthcare. https://teachandlearnfm.com/

Patient Critical Co-op is Canada’s first 100% Patient-owned advocacy & education co-op. Learn more and hear more at PatientCritical.com. http://patientcritical.com

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Dr. Brian Goldman @NightShiftMD·

19 Jan

This. This. And this. https://twitter.com/thesgem/status/1218717089801830402

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Patient Critical Co-op @PatientCritical·

13h

"Never assume that what you are seeing or experiencing is everyone else’s reality. Look to data to give you a clear picture...leaders in the field to give you a sense of where things are going. And in the case of online communications...sometimes means e-patients, not clinicians"

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Patient Critical Co-op @PatientCritical·

13h

.@susannahfox captures why continued investing in #data #silos is wrong:
"We should all be working toward freeing the data &..., building the infrastructure & tools that allows someone to..say, “Yes, I’m ready. Now, how do I get my data?” https://susannahfox.com/2019/09/16/why-should-anyone-care-about-health-data-interoperability/ #takeontech2020

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Patient Critical Co-op @PatientCritical·

14h

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

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Sean Molloy @SeanJMolloy·

24h

There is no greater manifestation of this than electronic medical records - designed for billing/utilization, not people. The greatest workaround is “the portal.” #design #EMR #EHR @mulegirl https://twitter.com/mulegirl/status/1218568764213493760

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Ryan Doherty, PhD @ryansdoherty·

17 Jan

@jillpromoli @AngieHamson @anetto @SolidFooting @PFEAMorin @pttopt @GilmanFamily @couragesings @PatientCritical
When going to a hospital, nursing home, or healthcare facility during flu season, would you want to know the % of staff who had received a flushot? Some are as low as 15-50%...

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Patient Critical Co-op @PatientCritical·

16 Jan

Very promising! Agree Canada needs to own its own data cohort of this size/kind.

Am curious what protections you have to ensure orgs don't use data in unintended ways-as with @23andMe sale to @GSK, Google/Deepmind/NHS & other public trust/#bigdata controversies?

#CADTHtalks

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Paul Wright RN @paulwrightpfcc·

15 Jan

Proud to share Alberta Health Services has officially launched its educational #endpjparalysis website for patients, families , care providers and interested colleagues across the world. https://www.albertahealthservices.ca/info/Page15971.aspx @BrianwDolan @ikhenderson @PeteGordon68 @JenniferSymon1 @mkfrdmn

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Dr. Theresa Tam@CPHO_Canada·

15 Jan

Cdns use the health system in many ways—medical appointments, flu clinics, medical emergencies. All parts of Canada’s health system can help eliminate #stigma as a barrier to care. Find out how you can join me to #EndStigma: http://ow.ly/QvwX50xPeKm

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Julie Drury @SolidFooting·

15 Jan

What do you mean when you say X?

Understand your organizational culture when it comes to partnering with families, then ask "What can we do better?" https://twitter.com/KathyKastner/status/1217260050013655040

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Dr. Brian Goldman @NightShiftMD·

15 Jan

'A good news story': Lanark becomes first in Canada to adopt Icelandic model for reducing teen social harm http://ottawacitizen.com/news/local-news/a-good-news-story-lanark-becomes-first-in-canada-to-adopt-icelandic-model-for-reducing-teen-social-harm/ If you want to know what it's about, check out this episode of @cbcwhitecoat : http://bit.ly/2CRPc2R

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Victor Montori, MD@vmontori·

15 Jan

Great grand rounds at @MayoClinicEndo by Professor @doreen_rabi on the challenges of guidelines and care including this set of great quotes including one by @KerUnit’s @ihargraves

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Patient Critical Co-op @PatientCritical·

15 Jan

A5: NONE OF THE ABOVE until Patients, Families and Caregivers have a seat at the very first table:
where decisions are made. In board rooms, the admin offices, C Suites.

There is no #codesign & we'll never be #BetterTogether without that level of #codesign to start.

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Patient Critical Co-op @PatientCritical·

15 Jan

Yes! PFC Presence lacks process, tools and techniques to manage the people side of change in healthcare!

Without hard numbers & strong commitments we can't achieve any outcomes, or truly focus on how people & processes are impacted by the changes we are making. #BetterTogether

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Patient Critical Co-op @PatientCritical·

15 Jan

Involve patients, caregivers and families from the beginning.

That means hard targets, and advocating for funding changes based on successes and challenges to meet true #codesign.

Sentiment alone will not make us #BetterTogether, it has to be genuinely responsive & inclusive.

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Patient Critical Co-op @PatientCritical·

15 Jan

A3: Teach PFAC how to emotionally & within their institutional role, truly advocate for the patients.

How many of us have heard PFACs side w/staff against patients they're there to serve, when labeled difficult?

Guidelines, funding & oversight remain challenges. #BetterTogether

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kathy kastner @KathyKastner·

15 Jan

#BetterTogether jumping in late T3: may sound simple, may be considered a 'given' : ensure your PFAC understand acronyms, jargon, the language of health care, and not afraid to ask

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Patient Critical Co-op @PatientCritical·

15 Jan

A3: The practices and policies of PFC presence include many of the same aspects as most advocacy in healthcare:
#education about patient rights & roles
#accountability & #transparency on behalf of orgs #interoperability & #regulations to ease barriers to care #BetterTogether

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Patient Critical Co-op @PatientCritical·

15 Jan

Q3: We need to ask clinicians & orgs for much greater PFC presence. We are mostly not part of th discussion y-et.
We're very fortunate-all of us talking here.
We need to expand our community & bring this sense of #healthliteracy & empowerment to many more of us. #BetterTogether.

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Laurie Proulx @ProulxLaurie·

15 Jan

@SolidFooting @TheChangeFdn @CFHI_FCASS How about health care providers introduce themselves to caregivers? My husband feels excluded from conversations because no one acknowledges his presence. I have introduced him but he should really be welcome first and foremost by the provider.

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