Dr Dan Pepe: Evaluating Online Resources

TeachandLearnFM‘s founder and editor Dr. Dan Pepe on evaluating digital health and creating informed patients.
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Joshua Tepper @DrJoshuaTepper·

"For the most part, current medical therapies... have been tested inadequately — or not at all — in women, children, older adults, individuals with multiple chronic conditions, low-income individuals, & racially & ethnically diverse populations.” @statnews
https://t.co/oDkhoaI7K0

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Patient Critical Co-op @PatientCritical·

"...organizations that ignore the patient's voice risk squandering efforts on burdensome measurement that misdirects care, improvement efforts, and dollars away from what patients need and want."

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TorontoStar@TorontoStar·

#StarExclusive: The provincial government is considering a plan to shutter more than 20 health agencies — including Cancer Care Ontario, 14 local health integration networks (LHINS) and eHealth Ontario — and fold them into one “super agency” https://t.co/ZQCO9jjui3

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Patient Critical Co-op @PatientCritical·

Another provincial #ehr commitment: @NBHealth announces $12.5 million over four years to implement a new electronic health record, to more effectively assess and prevent the spread of communicable diseases.

https://t.co/w1Jciwzgyv

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Patient Critical Co-op @PatientCritical·

cc @hcldr @CCHL_CCLS @Infoway

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Patient Critical Co-op @PatientCritical·

Thanks to all especially Colin and Joe for much to think about and process, as always! #hcldr

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Patient Critical Co-op @PatientCritical·

T4: revolutionary, inspiring, but only serves the fraction of babies able to be served.
What is the additional financial, #sdoh cost to families who transplant themselves for this care?
We need to create viable care in communities that save lives without upending others. #Hcldr

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Patient Critical Co-op @PatientCritical·

"Cultural competency training should be a requirement *every year* to everyone at all staff levels"

Nothing about us without us.

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Patient Critical Co-op @PatientCritical·

I love this model.
Tying cultural competencies, #codesign to regulations & pay is the only way to ensure incentive to steer the massive economic machines in healthcare today.
#hcldr

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Patient Critical Co-op @PatientCritical·

Partners in comm

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Patient Critical Co-op @PatientCritical·

T3: I can't find a nice way to say this.

We are the problem in #healthcare.

We set goals, complain, but it's all pie in the sky talk.

Stop fixing FOR others, fix WITH them.

Be eloquent, persistent & keep talking.

Every moment we play safe, the status quo continues.

#hcldr.

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Patient Critical Co-op @PatientCritical·

T3: Comparison of rural pops to indigenous ones is apt: centers of care exist in many cities where the homeless die blocks away....we need change the healthcare model dramatically.

@patientrev speaks of the need to remove profit motive. That's a needful place to start. #hcldr

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Patient Critical Co-op @PatientCritical·

T2: on incremental change; @alika: "Saying "it will take time" is the same as saying we are willing to sacrifice another generation or two or three to poor health outcomes. Equity and justice cannot be doled out one spoonful at a time" #hcldr https://t.co/EeJRDgg9AX

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Patient Critical Co-op @PatientCritical·

T2:
-embracing #codesign lets patients bake solutions you can't see without asking, but emerge if you give them right ingredients
-addressing industrialization/profit motive improves healthcare simply by shifting from volume of patients to quality of care
cc @vmontori #hcldr

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Patient Critical Co-op @PatientCritical·

T2: Can we address privilege?
Urban hospitals are looking for ways to pivot profit endeavors instead of removing the need for themselves.
These institutions can't ever serve more than a fraction of the population.
Initiate a pivot from profit & get back to community care. #hcldr

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Patient Critical Co-op @PatientCritical·

T2: I agree we need to change from sick-based system to a proactive health-based one. Why prop up hospitals? We should hasten the change from major centers to distributed smaller ones. People get healthier faster in their own communities & homes. Put change agents there.
#hcldr

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Patient Critical Co-op @PatientCritical·

T1: Last point on addressing needs before determining actions. @vmontori thinks the best approach to attacking diabetes...is first to understand what the client/culture eats before you dismantle their whole life to fix what ails them. #hcldr

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Patient Critical Co-op @PatientCritical·

Speaking with @alika a Dr with rotos in indigenous rural populations, he rocked me with this simple fact; you have to understand a population's true needs before you can address them.

This was in context of managing dialysis...in communities without plentiful clean water. #hcldr

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Patient Critical Co-op @PatientCritical·

Yes. In an age where corporations frequently serve mostly communities they are not part of, we need to address what codesign and informed decision making really looks like.

You can't decide for a community what's right and wrong, you have to partner with that community. #hcldr

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Patient Critical Co-op @PatientCritical·

Great point Wes! Love to know more about your app. Before literacy comes access...before access comes infrastructure.

Should we build a web portal when SMS might have better penetration?

The tool needs to fulfill the need, no necessarily be brightest & shiniest.

#hcldr

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