Dr Dan Pepe: Evaluating Online Resources

TeachandLearnFM‘s founder and editor Dr. Dan Pepe on evaluating digital health and creating informed patients.
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André Picard@picardonhealth·

17 Oct

Life expectancy is rising in Finland – unlike in the UK and US. What’s going right? (Hint: Scandinavian countries invest in social services) https://t.co/FiZLXFtAuk via @guardian #sdoh

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Patient Critical Co-op @PatientCritical·

Yep, McMaster's got awesome programs, if you look.

But how are kids to learn language, maths, social studies. Health, sciences, social interaction, sex-ed, finances & budgeting. cooking & nutrition, digital literacy, #HEALTHCARE?

We need to teach the basics from public school.

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Patient Critical Co-op @PatientCritical·

It's hard to know which internet resources to trust. Especially in #healthcare.

We invite you to submit websites & resources you trust to @PatientCritical co-op. To help others, we will link to them (after vetting) on our free, public resource hub: https://t.co/2cSKsgORof

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Patient Critical Co-op @PatientCritical·

Education IS lacking for patients, along with what to trust online.

That's why we invite everyone to submit healthcare websites & downloadable resources to us at https://t.co/HP5Vm5xQby

We will link them after vetting on our free, public resource hub: https://t.co/2cSKsgORof

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Patient Critical Co-op @PatientCritical·

11h

Some of the reasons clinicians still cite for continuing to limit #patientinclusion in their own care.

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Patient Critical Co-op @PatientCritical·

11h

It is true: some patient groups are funded by lobby groups & co's with agendas other than patient recovery. We do need more patient-funded voices in HC.

To use that to argue against clinician's need for data on efficacy, or suggest patients are biased, is base misdirection.

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Patient Critical Co-op @PatientCritical·

12h

Did you know Canada has a 100% #patient- & #caregiver- owned voice in #healthcare?

@PatientCritical co-op takes NO money from gov or biz, because we believe that's the only way to ensure our #patientvoice reflects genuine #patientexperience.

Join us: https://t.co/rr2gW0ibOn

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Patient Critical Co-op @PatientCritical·

12h

On farmers, poor internet connectivity & #mentalhealth: “To be able to(video chat)in the privacy of their home(& avoid)several hours of travel...makes it easier for them to accept the help…but they need to have that connectivity.”
@gregswings @gregs_sis
https://t.co/KN0iIfmuqd

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Patient Critical Co-op @PatientCritical·

12h

This is such an important distinction. Right now, #patientengagement is a hashtag and token buzzword.

Until there are clear, quantifiable procedures, training & research *with public findings* supporting #patientsaspartners in research & PFACs...it can be nothing more.

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Patient Critical Co-op @PatientCritical·

15h

"Greater practitioner empathy or communication of positive messages can have small patient benefits for a range of clinical conditions, especially pain" https://t.co/yzay2qaFOQ

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Patient Critical Co-op @PatientCritical·

17 Oct

The ROI in #healthcare is #health and #care.

Compensation and innovations, both important, are still side benefits, not feature sets. #pinksocks #s4pm

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(((Farrah Schwartz)))@FarrahSchwartz·

17 Oct

Example of experience-based co-design. Redesigned MRI based on data from children and family MRI experiences, co-designed with children. Has led to reduced need for children to be sedated during MRIs and other positive outcomes #HQT2018

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Jess Havens @JessHavens_·

17 Oct

What happens when we stop ignoring the knowledge of patient communities? And instead be better together using knowledge from healthcare providers and patients/family?
= lessening the burden of chronic illness
@danamlewis #QS18 #wearenotwaiting

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Ali @abidma09·

17 Oct

Love these !! #qs18

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Patient Critical Co-op @PatientCritical·

17 Oct

To all patients & caregivers at #HQT2018: let's keep building connections, learning & sharing together!

Add your name to @PatientCritical's free, public Advocates Directory. Share knowledge with others, learn from others & build your network & community: https://t.co/CnHuOrMoNo

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Patient Critical Co-op @PatientCritical·

17 Oct

Residential schools were run by churches, funded by federal gov't. Inquests included no indigenous members.

We still don't have so many things right...concerning social determinants of health, the access to health & #codesign of care or #healthequity

#HQT2018 @TanyaTalaga #sdoh

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Patient Critical Co-op @PatientCritical·

17 Oct

Seven Fallen Feathers author @TanyaTalaga talks at #hqt2018 about listening.

Status Indians didn't get right to vote until 1960. She wanted to learn why so few Indigenous people vote.

The people she talked to wanted to know why so few Cdns seem to know/care about them. #HQT2018

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Margaret Harvey @margaretmharv·

17 Oct

Also, doctors are woefully under qualified to treat pain. Dr. David Caplan revealed that his one day of pain management training in medical school at UofTwas hosted by a pharmaceutical company. #HQT2018

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FP Gauvin @forumCDNhealth·

10 Oct

Register now for one of @McMasterForum's webinars, which will help ensure citizens, patients and caregivers are better positioned to advocate for the changes they want to see in their system when opportunities arise https://t.co/G5cvae7wVE #ONhealth @OSSUtweets

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Alison Steeves @AlisonSteeves1·

17 Oct

Participants at the Mock Dragon’s Den voted Patient Oriented Discharge Summary (PODS) ⁦@UHNOpenLab⁩ the highest in impact for patients in transition from hospital to home #HQT2018

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