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Similar arguments are made by #bigpharma when profit is threatened by legislation and price controls.

#bigdata is big business.
#transparency & #accountability is required to protect patients.
https://www.cnbc.com/2020/01/22/epic-ceo-sends-letter-urging-hospitals-to-oppose-hhs-data-sharing-rule.html

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Anne Marie Cunningham @amcunningham·

22 Jan

If you are a patient or care-giver you can now email Elsevier to get access to journal articles https://www.elsevier.com/connect/access-for-patients-and-other-ways-to-get-elsevier-articles-without-a-subscription (via @mrgunn)

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21 Jan

Unpleasant truth: patients -even overwhelmed- are responsible for making #patientpartnership work.

Patients have a responsibility to insist how we are included in #codesign.

If we wait to be consulted after decisions are made we have surrendered #shareddecisionmaking to others.

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Danielle Martin@docdanielle·

20 Jan

Canada needs a “Health in All Policies” action plan now - clear and convincing call in today's @CMAJ @PGfor https://www.cmaj.ca/content/192/3/E61

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Health Standards Org @HSO_world·

13 Jan

YOU'RE INVITED to "Let’s Get Real: Patients must be Partners - The How Edition." Join our Feb 6 #webinar and learn HOW you can engage effectively for positive change. Register here: #peoplepoweredhealth #patientsmustbepartners #peoplecentredcare https://bit.ly/35OnNZC

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Dr. Brian Goldman @NightShiftMD·

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This. This. And this. https://twitter.com/TheSGEM/status/1218717089801830402

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"Never assume that what you are seeing or experiencing is everyone else’s reality. Look to data to give you a clear picture...leaders in the field to give you a sense of where things are going. And in the case of online communications...sometimes means e-patients, not clinicians"

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.@susannahfox captures why continued investing in #data #silos is wrong:
"We should all be working toward freeing the data &..., building the infrastructure & tools that allows someone to..say, “Yes, I’m ready. Now, how do I get my data?” https://susannahfox.com/2019/09/16/why-should-anyone-care-about-health-data-interoperability/ #takeontech2020

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This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

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Sean Molloy @SeanJMolloy·

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There is no greater manifestation of this than electronic medical records - designed for billing/utilization, not people. The greatest workaround is “the portal.” #design #EMR #EHR @mulegirl https://twitter.com/mulegirl/status/1218568764213493760

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Ryan Doherty, PhD @ryansdoherty·

17 Jan

@jillpromoli @AngieHamson @anetto @SolidFooting @PFEAMorin @pttopt @GilmanFamily @couragesings @PatientCritical
When going to a hospital, nursing home, or healthcare facility during flu season, would you want to know the % of staff who had received a flushot? Some are as low as 15-50%...

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16 Jan

Very promising! Agree Canada needs to own its own data cohort of this size/kind.

Am curious what protections you have to ensure orgs don't use data in unintended ways-as with @23andMe sale to @GSK, Google/Deepmind/NHS & other public trust/#bigdata controversies?

#CADTHtalks

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Paul Wright RN @paulwrightpfcc·

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Proud to share Alberta Health Services has officially launched its educational #endpjparalysis website for patients, families , care providers and interested colleagues across the world. https://www.albertahealthservices.ca/info/Page15971.aspx @BrianwDolan @ikhenderson @PeteGordon68 @JenniferSymon1 @mkfrdmn

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Dr. Theresa Tam@CPHO_Canada·

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Cdns use the health system in many ways—medical appointments, flu clinics, medical emergencies. All parts of Canada’s health system can help eliminate #stigma as a barrier to care. Find out how you can join me to #EndStigma: http://ow.ly/QvwX50xPeKm

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Julie Drury @SolidFooting·

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What do you mean when you say X?

Understand your organizational culture when it comes to partnering with families, then ask "What can we do better?" https://twitter.com/KathyKastner/status/1217260050013655040

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Dr. Brian Goldman @NightShiftMD·

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'A good news story': Lanark becomes first in Canada to adopt Icelandic model for reducing teen social harm http://ottawacitizen.com/news/local-news/a-good-news-story-lanark-becomes-first-in-canada-to-adopt-icelandic-model-for-reducing-teen-social-harm/ If you want to know what it's about, check out this episode of @cbcwhitecoat : http://bit.ly/2CRPc2R

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Victor Montori, MD@vmontori·

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Great grand rounds at @MayoClinicEndo by Professor @doreen_rabi on the challenges of guidelines and care including this set of great quotes including one by @KerUnit’s @ihargraves

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A5: NONE OF THE ABOVE until Patients, Families and Caregivers have a seat at the very first table:
where decisions are made. In board rooms, the admin offices, C Suites.

There is no #codesign & we'll never be #BetterTogether without that level of #codesign to start.

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Yes! PFC Presence lacks process, tools and techniques to manage the people side of change in healthcare!

Without hard numbers & strong commitments we can't achieve any outcomes, or truly focus on how people & processes are impacted by the changes we are making. #BetterTogether