Tina Ceroni &raquo; Advocates

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How can we improve patient partnerships in healthcare AND avoid tokenism?

A round-table on the @PatientCritical podcast with @baldgrrl @mathieu_jackson @NadiaHillier @SolidFooting

Hat tip to @jenjohannesen for @cochranecollab & @BCSUPPORTUnit keynotes!

https://patientcritical.com/podcast/improving-patient-partnerships-roundtable/

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Victor Montori, MD@vmontori·

7 Dec

Healthcare has corrupted its mission. We need a system based on solidarity not greed. We need a patient revolution for careful and kind care for all. This is #WhyWeRevolt @patientrev https://twitter.com/RosenthalHealth/status/1203353598232580097

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

7 Dec

Health system transformation starts & ends with #patient & #caregiver exp! Meaningful change doesn't always have to be costly. "Small" things like open visiting hrs, no noise policies at night & addressing PJ paralysis are transformative, easy to implement & cheap #Cdnhealth

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Jana Buhlmann @baldgrrl·

6 Dec

We had a great conversation! Give us a listen, and perhaps extend our conversation to your own roundup over coffee with friends! #EngagedPatient #PatientEnagement https://twitter.com/PatientCritical/status/1202624446244294656

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6 Dec

"While health care orgs may not be equipped to address...root causes of their patients’ conditions, they need to broaden their perspective on how to address #sdoh & use their expertise to influence (issues) beyond their immediate clinical purview."

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6 Dec

Cost of health services in USA vs the UK. The reactions tell the story.

https://www.usatoday.com/story/news/politics/2019/12/04/aoc-sanders-share-video-british-reacting-u-s-health-care-cost/2614877001/

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Michael Evans @docmikeevans·

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This trial: mostly well off/educated/men given nudges (loss aversion,easy wins,commitment pledge) to increase steps.Randomized to control vs 3 types of social nudge (support, accountability, competition).Competition bit better here. Hmm.
https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/2749761

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'Improving Patient Partnerships & Avoiding Pitfalls': a round-table podcast dialog with @baldgrrl, @mathieu_jackson, @NadiaHillier & @SolidFooting, citing @jenjohannesen's @cochranecollab & @BCSUPPORTUnit keynotes.

https://patientcritical.com/podcast/improving-patient-partnerships-roundtable/

@patients_udm @infoway @AccredCanada

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Daniel Pepe @dpepe88·

25 Nov

@sbrudnicki we need to ask - what are key categories, how can we make it searchable, how can we enhance the user interface, how can patients delegate access easily. We must do better for patients https://twitter.com/sbrudnicki/status/1198624062471229440

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Robin McGee @TCOrobin·

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Nearly 70,000 patients harmed in Ontario's hospitals each year: Auditor https://buff.ly/38cgLAb

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Nikhil Krishnan@nikillinit·

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When thinking about why EMRs would want to join an interoperability initiative, it’s super important to specifically look at the data they allow for export and how to do it

This Stratechery article talks about this in the FB context but it’s very relevant https://stratechery.com/2019/portability-and-interoperability/

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Jason Wasserman, MD @DrJWasserman·

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Dear #patients. Have you read your #pathology report?

How would you describe your ability to read and understand your report?

Please RT.

#patientengagement #PatientExperience
@myUHNPortal
@OttawaHospital

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It comes down to people asking and digging.

Why *aren't* #alliedhealth like #OccupationalTherapy & #socialworkers included in efforts to improve #healthcareforall?

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Do you know how #databrokers, #dataminers & targeted ads use your #healthdata behind the scenes? (PDF in thread)

"we may not realize that our healthcare data, collected behind the safely closed doors...travels through many hands for the profit of others." #bigdata #whywerevolt

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"Every time Congress tries to take on drug prices, it runs into the pharma lobby's timeworn objection: Lowering prices even a penny would end all drug innovation (but a new CBO) analysis finds that the lower prices...would barely slow new drug discovery."

https://www.bloomberg.com/opinion/articles/2019-10-31/pelosi-s-drug-pricing-bill-calls-pharma-s-bluff

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The only guarantee patients have for timely access & control of their #healthdata is legislation.

We need to demand that access in the same breath as we #axethefax.

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Amy Ma @Ctzen_Improver·

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T4 We are a high tech, low tech species. That won't change.

Healthcare is based on connection. Better health literacy will facilitate better connections and information sharing. With better information, we will have better choice and personalization! https://twitter.com/hcldr/status/1202049129859469312

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Adrian Gropper @agropper·