As a patient, I have lived with autoimmune alopecia for 35 years. I am a former member of the board of the Canadian Alopecia Areata Foundation (CANAAF) and manage AlopeciaCanada as a page and closed group on Facebook. https://www.straight.com/life/baby-its-bald-out-there-alopecians-speak
As a caregiver, I am the widow of a young man who chose Medical Assistance in Dying (MAID), and have written and spoken on this topic.
In 2019 I became a patient volunteer with Patient Voices Network in BC, and had the good fortune to attend the Canadian Medical Association Health Summit, where I was blessed to meet many of the amazing advocates I had “met” over time via social media.
My personal blog explores my experience with MAID, grief, family, mental health, relationships, and parenthood. http://www.bringthejoy.blog