Fabiana Bacchini » Advocates

Fabiana Bacchini

Biographical Info

Speaker & Director Canadian Premature Babies Foundation.
Co-founder: HandFullHearts, supporting fundraising initiatives in healthcare.

Categories: Caregiver Advocate, Volunteer

Updated 11 months ago.

Email Marketing Services by Benchmark

Retweet on Twitter Patient Critical Co-op Retweeted

Mariana Bueno @mari_bueno·

23 Apr

We have made incredible gain in knowledge but only 14% of the research reach patients. @DrCChambers highlights the huge knowledge to practice gap in #pediatric #painmanagement. #ItDoesntHaveToHurt #BrainTalks

Reply on Twitter 1120819957141524481 Retweet on Twitter 11208199571415244815 Like on Twitter 11208199571415244819 Twitter 1120819957141524481

Retweet on Twitter Patient Critical Co-op Retweeted

DRichards @TO_dpr·

23 Apr

“Of course patients are going to go online for info! Our obligation as healthcare providers is to be there & to provide them evidence-based info” - @DrCChambers #ItDoesntHaveToHurt #TalkBrain

Reply on Twitter 1120831129274261510 Retweet on Twitter 112083112927426151012 Like on Twitter 112083112927426151028 Twitter 1120831129274261510

Patient Critical Co-op @PatientCritical·

15h

Patients & citizens will "help decide what data should be included & how the data should be connected & used...(a) Public & Patient Advisory Committee will advise all those working on issues related to data access & privacy & on ways to demystify the world of data".

Reply on Twitter 1121008247589232643 Retweet on Twitter 11210082475892326431 Like on Twitter 11210082475892326433 Twitter 1121008247589232643

Retweet on Twitter Patient Critical Co-op Retweeted

Solutions for Kids in Pain @KidsInPain·

23 Apr

Only 1 hour to go until our @KidsInPain event in Toronto with @OntarioBrain!

Not able to attend in person? Watch online here: https://t.co/DIPnYiOMob

Don't forget to follow the #ItDoesntHaveToHurt & #TalkBrain hashtags for live tweets!

@DalhousieU @ChildHealthCan

Reply on Twitter 1120802096163491842 Retweet on Twitter 112080209616349184211 Like on Twitter 112080209616349184211 Twitter 1120802096163491842

Patient Critical Co-op @PatientCritical·

23 Apr

"The results of this scoping review demonstrate that an evidence base around programs to advance patient engagement is largely absent. An opportunity exists for further research to identify strategies and measures to support patient engagement in healthcare decision-making."

Reply on Twitter 1120815189534937089 Retweet on Twitter 11208151895349370894 Like on Twitter 11208151895349370895 Twitter 1120815189534937089

Patient Critical Co-op @PatientCritical·

23 Apr

The tide has turned for young adults in #peerhealthadvice & #peer2peer support:
https://t.co/ri1AVIwwGB

Reply on Twitter 1120814224794636293 Retweet on Twitter 1120814224794636293 Like on Twitter 11208142247946362932 Twitter 1120814224794636293

Patient Critical Co-op @PatientCritical·

23 Apr

“medical misinformation (is any) health-related claim of fact currently false due to a lack of scientific evidence...contemporary misinformation (is) supplanting well-proven interventions & ideas...that are clearly false &, in some cases, harmful."

https://t.co/mPa8Q8IRB1

Reply on Twitter 1120777179586023426 Retweet on Twitter 1120777179586023426 Like on Twitter 1120777179586023426 Twitter 1120777179586023426

Retweet on Twitter Patient Critical Co-op Retweeted

Cancer Survivor Social Media @CancerSurvSM·

22 Apr

Hello everyone! We are super excited about our first #CSSMchat coming up this Wednesday! If this is your first Twitter chat, we've put together a brief guide to help you get the most out of it. https://t.co/OKM8sNndEy

Reply on Twitter 1120332338427305986 Retweet on Twitter 112033233842730598610 Like on Twitter 112033233842730598620 Twitter 1120332338427305986

Retweet on Twitter Patient Critical Co-op Retweeted

Debbe McCall @DebbeMcCall·

23 Apr

Shared Decision Making and the Importance of Time https://t.co/C5jqdGTMrK

Reply on Twitter 1120764793613430784 Retweet on Twitter 11207647936134307843 Like on Twitter 11207647936134307842 Twitter 1120764793613430784

Patient Critical Co-op @PatientCritical·

22 Apr

To connect #patient & #caregiver advocates by region or area of interest, please feel free to share or add your name to our Advocate’s Directory!

Like everything we make, curate or endorse, it’s free to the public not behind a paywall: https://t.co/EJ9OoTpZJK

#patientvoice

Reply on Twitter 1120285798144856066 Retweet on Twitter 11202857981448560663 Like on Twitter 11202857981448560664 Twitter 1120285798144856066

Retweet on Twitter Patient Critical Co-op Retweeted

Patient Critical Co-op @PatientCritical·

19 Apr

Our last podcast explored peer to peer & online communities-how they grow connections, literacy & resilience: https://t.co/yXdYMgbXiP

Find more in our Resource Hub: https://t.co/2cSKsgORof

OR

Submit YOUR favorite p2p community to the Hub & help others: https://t.co/7CZWa5PRf5

Reply on Twitter 1119331786721583104 Retweet on Twitter 11193317867215831048 Like on Twitter 111933178672158310411 Twitter 1119331786721583104

Retweet on Twitter Patient Critical Co-op Retweeted

Mary Politi @mcpoliti·

19 Apr

brilliant piece on #shareddecisionmaking & time. What if clinicians were fully present? A minute spent giving info may be less important than a minute spent waiting for questions, responding w/empathy. @JAMA_current @vmontori @AMStiggelbout @ArwenPieterse https://t.co/5vew7X4qse

Reply on Twitter 1119301400553504769 Retweet on Twitter 111930140055350476916 Like on Twitter 111930140055350476938 Twitter 1119301400553504769

Patient Critical Co-op @PatientCritical·

20 Apr

Had a very meaningful exchange with @foundingScott on advocacy vs. action.

We all need to evaluate what is rhetoric, what is constructive, fair to call out & what is just tearing down.

if more of us discuss what matters, what works & doesn’t, the better our society & discourse.

Reply on Twitter 1119659916766085125 Retweet on Twitter 1119659916766085125 Like on Twitter 11196599167660851252 Twitter 1119659916766085125

Patient Critical Co-op @PatientCritical·

20 Apr

Patients will NEVER be given a seat at a table controlled by biz/gov/docs.

It will never happen.

Did that make you angry?

Disagree?

It still won’t change things.

What will?

We must convince many MANY more people to hold politicians accountable.

Nothing else will change it.

Reply on Twitter 1119648723531902978 Retweet on Twitter 11196487235319029783 Like on Twitter 111964872353190297816 Twitter 1119648723531902978

Patient Critical Co-op @PatientCritical·

20 Apr

This should be as easy and accepted as a patient requesting a second opinion or refusing treatment, if of sound mind. The logic & precedent exists.

EGs: your psychiatrist doesn’t need to know about your childhood immunization. Old dr’s shouldn’t have access to future records.

Reply on Twitter 1119610058650869760 Retweet on Twitter 11196100586508697602 Like on Twitter 11196100586508697604 Twitter 1119610058650869760

Retweet on Twitter Patient Critical Co-op Retweeted

Bob Brown @ReasObBob·

19 Apr

Notice that #HealthIT vendors -- and the various walled garden networks they so heavily dominate -- are so proud that they're giving us access to *our* personal health information?

Under current regs they're required to.

I want agency, not just access.

#PrinciplesFirst

Reply on Twitter 1119339317804064775 Retweet on Twitter 11193393178040647757 Like on Twitter 111933931780406477525 Twitter 1119339317804064775

Fabiana Bacchini » Advocates

Fabiana Bacchini

Biographical Info

Categories

A round-table discussion exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates.

LISTEN HERE

ABOUT PATIENT CRITICAL CO-OP