Donna Rubenstein » Advocates

Donna Rubenstein

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 4 weeks ago.

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Patient Critical Co-op @PatientCritical·

"It is time for us to diagnose where the disconnect is between treatment & care...It does not require $ to tell me why I am waiting 2 hrs (or) to speak kindly to me. Perhaps it seems irrelevant to you but it matters to me, the patient."
https://t.co/Z9k93gIB9y

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Patient Critical Co-op @PatientCritical·

codesign requires #healthequity

There's no partnership when one party gives orders to the other.

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Doctors Nova Scotia @Doctors_NS·

Poll finds 86% of Nova Scotia respondents are concerned about access to health care, up 16% from last year: https://t.co/DKV5COlU93 via @chronicleherald @Guylafur

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Patient Critical Co-op @PatientCritical·

When considering sponsored online patient communities, look for resource #transparency & #accountability (and an operating policy against bias from sponsor).

How to evaluate online resources:

https://t.co/95WmCLzdC6

@s4pm @janoldenburg @RaeofSunshine79

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Patient Critical Co-op @PatientCritical·

This is the textbook definition of tokenistic and 'tick the boxes’ #patientinclusion.

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Patient Critical Co-op @PatientCritical·

Does your doctor give you a cheat sheet' to help you prepare for appointments & ask Q's that matter to You?

Here's one resource you can use to help you prep for appointments:

https://t.co/lTb0q8So5K

@dpepe88 @s4pm #patientaspartners

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Patient Critical Co-op @PatientCritical·

"I forgot" isn't the end of the discussion, not the line in the sand some doctors pick to label a patient 'noncompliant'.

It's a symptom of factors affecting a patient's life...being overwhelmed.

Sometimes it's a sign, a call for help.

At very least it is a symptom to follow.

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Patient Critical Co-op @PatientCritical·

Other markets turned to open source to play catch-up with larger entities.

Google open-sourced Android to match iOS)

Open source platforms are more nimble & responsive with far more #transparency & #accountability.

Both of which would be big wins for patients, and Mom & Pop.

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Patient Critical Co-op @PatientCritical·

There's a cure for bias in moderation: accountability and transparency.

Those cures often conflict with defensiveness against change in profit-motivated organizations...but they can work.

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Patient Critical Co-op @PatientCritical·

13h

“We have caught clinicians, using SDM tools in a manner that reveals they simply do not trust their patients to wisely consider the issues and contribute to form care that fits their life situation.” @vmontori

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Patient Critical Co-op @PatientCritical·

15h

Whether it's the government promoting a newspaper stimulus package or a new initiative to expand internet on government dollars, without #accountability, #oversight & #transparency, some are going to call it corporate welfare.

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Patient Critical Co-op @PatientCritical·

15h

I’d love to hear more of your thoughts on this issue. I think I need clarification about health systems sponsoring patient communities.

Would you worry patient groups could form an unconscious bias of deferral to their sponsor?

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Steve Morgan @SteveUBC·

18h

[Thread on #pharmacare in #Budget2019] First, it is extraordinary to see national pharmacare among the top priorities of a government in Canada. That has never happened. But the actions were quite small given the supposed priority position held by Pharmacare in this budget.

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Steve Morgan @SteveUBC·

18h

The $35 million for Health Canada to set up a Canada Drug Agency is prudent but needs clearer directions in terms of how Health Canada should revise, retool, and repurpose existing national agencies -- and perhaps provincial capacity. #pharmacare #Budget2019

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Patient Critical Co-op @PatientCritical·

17h

ON pilot takes on dr/email gap: “Doctors are paid $15...for a completed text...(for) a video chat, the compensation is equal to an put-of-office-visit fee...
So far, the pilot has recruited 275 physicians who, in turn, have enrolled 29,000 of their willing patients.”

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Patient Critical Co-op @PatientCritical·

18h

From 2014: a conversation encouraging patients to join online communities for support not available in their communities. "How might we persuade (patients), inspire them to understand (what) we have online is access to many more...relationships (and solutions)"
#PeerHealthAdvice

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𝙈𝙖𝙜𝙜𝙞𝙚 𝙆𝙚𝙧𝙚𝙨𝙩𝙚𝙘𝙞 🇨🇦@MaggieKeresteci·

22h

@PatientCritical I spent AM at hospital with fully capable 20yo-she didn’t know which campus her appt was, what she was having done, who MD was(hadn’t met before) or how early we had to arrive. said person who gave her appt was rushed, spoke quickly then hung up. We could easily have missed appt

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Patient Revolution @patientrev·

18 Mar

Our next #WhyWeRevolt Twitter chat is scheduled for Monday, April 8 at 9 pm ET/ 6 pm PT. We've talked about the importance of conversations, and next we'll tackle how we prepare for those conversations. <3

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Patient Critical Co-op @PatientCritical·

19 Mar

Youth trust texting & online communities more than any other demographic-but they also see the risks that come with anonymity.

We talked with @KidsHelpPhone about adopting texting for crisis intervention & how it changed their work:

https://t.co/ejAIAvFOCx
#PeerHealthAdvice

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Zayna Khayat, PhD @ZaynaKhayat·

19 Mar

@dpepe88 @anetto @SolidFooting @PatientCritical @MaggieKeresteci @DonaldLepp @BrianDonnaPenn1 when I lived in the Netherlands our primary care clinic had online booking in 20 min slots only 4 one-off issues. If it was longer (pap smear, multiple issues, multiple kids for immunization, etc.) they had a different booking slot. they trusted patients to use their judgement.

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Donna Rubenstein » Advocates

Donna Rubenstein

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“A Canadian (Drug) sticker price that comes down -at all- is a big threat south of the border”

-Steve Morgan on National Pharmacare

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