Donna Rubenstein » Advocates

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Donna Rubenstein

Email: donnaruben@gmail.com

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Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 7 months ago.

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Victor Montori, MD@vmontori·

How do speakers at healthcare conferences manage to not meaningfully talk about patient care or patients? Industrial healthcare talks of efficiency, data, regulation, innovation, costs, value. Patients, clinicians, care are left as a blurred assumed. @patientrev

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Steve Morgan @SteveUBC·

A #tweetorial on social health insurance and its lessons for national #pharmacare.

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Christine Elliott@celliottability·

We will now require public hospitals to report statistical, non-identifying data on incidences of vaping-related severe pulmonary disease. This information will be critical as we continue to engage with leading experts to identify evidence-based solutions https://t.co/YIi73UO8VB

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Patient Critical Co-op @PatientCritical·

"reporting and analysis of adverse events have been a mainstay of patient safety systems for years. And patients and families, as the only people who traverse the entire medical system, can, and if given the opportunity often do, report safety problems that providers do not..."

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Patient Critical Co-op @PatientCritical·

Imagine if your bank didn’t let you transfer your money to another bank.

Many portals opt out of sharing, turning off #interoperability features to control data & effectively #silo customers (patients).

Then there are questions like #patientdata sale & control.

@vmontori @S4PM

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Patient Critical Co-op @PatientCritical·

There’s the true cultural change:
Share your staff room, from CEO, superstar surgeon across to all-star receptionists & irreplaceable custodians. #hcldr

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P. F. Anderson @pfanderson·

@PatientCritical So many times I've sat in a meeting room with >100 clinicians and researchers, and say we need patients at this table, only to have ONE patient stand up and say, "I'm here! That's me!" And they all think they're done now. #hcldr

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Patient Critical Co-op @PatientCritical·

A4: Easy—announce inclusion, actually facilitate MEANINGFUL non-tokenistic inclusion of all org’s, invite feedback, transparently review & publish findings.

Valuing all involved is not rocket science-but it means creating a culture of change, not just tokens, mascots.

#hcldr

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Patient Critical Co-op @PatientCritical·

A3: People are healthcare’s greatest resource, and best check against errors.

Empower them to exchange their unique wisdoms, share & care. Everybody wins.

#hcldr

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Patient Critical Co-op @PatientCritical·

Often a patient’s first contact is with non-clinical staff. The janitor or parking attendant, the receptionist.

Invest these people in saving lives & communicating their institutional awareness clearly.

That’s a real ‘six sigma’ takeaway!
#hcldr

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Patient Critical Co-op @PatientCritical·

☑️Leadership
☑️Patient Engagement
☑️Capable Framework
#hcldr

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Patient Critical Co-op @PatientCritical·

Absolutely! Very different languages and a perfect example of team building which reduces miscommunication—and in this case reduces #medicalerror too #hcldr

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Patient Critical Co-op @PatientCritical·

A2: #transparency all around—except in gowns :) #endpjparalysis #hcldr

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Patient Critical Co-op @PatientCritical·

A2: #accountability & #transparency are powerful factors for innovation, but convincing businesses & orgs to -literally- draw back the curtain on practices can still be very scary.

We need to show how risk averse business & orgs can benefit as much as patients. #hcldr

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Candace @RareCandace·

T2: Challenges: if you have an archaic system that removes non-clinical staff from patient care, changing the ecosystem is tough. You will meet resistance to change. But it can be done. #hcldr https://t.co/8fU4pT14Iz

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Patient Critical Co-op @PatientCritical·

Absolutely! Family presence makes the most invested people part of the team. It has been shown to reduce oversights, errors, costs.

#communication & #transparency saves lives--& it's a great policy that just plain makes patient experience & outcomes better. #hcldr

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Patient Critical Co-op @PatientCritical·

Administrators, patients, #alliedhealth & caregivers all see a different facet -& potential problems- no one else will see.

Leaving anyone out reduces care, risks #patientsafety & increases costs, duplication, waste.

It’s #patientsafetyday but all partners matter. #hcldr

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Patient Critical Co-op @PatientCritical·

A1: #hcldr Inclouding all stakeholders, *Including* patients in rounds results in better care, lower re-admissions, lower costs & fewer #medicalerrors https://t.co/oWkR8jRmsJ

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Patient Critical Co-op @PatientCritical·

Hello again #hcldr! Let’s talk :)

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Patient Critical Co-op @PatientCritical·

Yes. Yes, we should be concerned:

"By law, the identities of everyone found in these commercial databases are supposed to be kept secret...but as data-mining technology becomes ubiquitous, it also makes it easier to learn a previously anonymous individual's identity."

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