Donna Rubenstein » Advocates

Donna Rubenstein

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 3 months ago.

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Patient Critical Co-op @PatientCritical·

With all due respect, consider how #Blockchain platforms are routinely hacked, several accused of insider trading & bitcoin swings worse than many state currencies.

Is it a better mousetrap we need or legislating #patientdata #interoperabity, #transparency & #accountability?

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Patient Critical Co-op @PatientCritical·

Fascinating chat just now with @DanielBayley80 about health, data and blue-skying future roads in both. As always, never enough time!

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Patient Critical Co-op @PatientCritical·

10h

Ongoing Commitment
Evidence & examples of ROI
Leadership opportunities

#patientsaspartners

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Patient Critical Co-op @PatientCritical·

7 May

Co-op Members: be in our video! Show & tell what matters to YOU. Be part of our cross-Canada patient collage. Submit a 3-second vid of:
1) YOU-in front of
2) a place in your community you love-& hold
3) a paper w/1-5 words (what matters in HC)
Read more: https://t.co/fOJbrjGcdR

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Patient First @AlbertaPFCC·

11h

The benefits of having an Advance Care Plan in place https://t.co/IfeREQ8axr via @YouTube

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Patient Critical Co-op @PatientCritical·

11h

Or, dare one say, commit to a detailed #healthcare strategy of goals, targets, regulations & transparent accounting of each step toward that strategy?

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Patient Critical Co-op @PatientCritical·

11h

Burying the lede a bit, this #HQOchat chat examined different ideas of what needs to happen to make digital health access work for a stakeholders.

#transparency, #regulation & #interoperabiity are the surer ways to help biz innovate, compete AND to serve patients & clinicians.

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Patient Critical Co-op @PatientCritical·

13h

Think we need #regulations on #digitalhealth?

Don't know how you can help? Here's a letter to send to your MPP.

Look up your MPP here: https://t.co/1q6V4SBMDs
MPP List here: https://t.co/PK1iw0onmr
Get MPP Letter: https://t.co/Jum1PNV8dH

@picardonhealth @theresaboyle #cdnpoli

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Patient Critical Co-op @PatientCritical·

19 May

Last wk 15% of @OTNtelemedicine was laid off.
Last yr Ed Brown, OTN's founder said on @PatientCritical podcast
"When I started (20 yrs ago, I said) I can't imagine a world that doesn't have this everywhere in 5 years...my optimism has faded a bit"
Listen: https://t.co/pGWLI5xFdE

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Patient Critical Co-op @PatientCritical·

13h

Tax-paying voters are seldom accused of being demanding, yet #patientengagement advocates often face that label.

But "(some) ideational change comes after policy change... (which prompts) Q's for research into...public & patient involvement (&) other aspects of #healthpolicy".

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Harlan Krumholz @hmkyale·

20 May

.@politico reports: "Industry group begs ONC and CMS to take time with rules” Haven’t patients been waiting long enough to have their federal rights enforced? How much longer should they wait? @ONC_HealthIT @CMSGov @ePatientDave @S4PM @TheLizArmy @myopennotes @HugoOC @SavageLucia

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Steve Morgan @SteveUBC·

20 May

Path dependency is an important #pharmacare consideration. “Big bang” will get it right from the start — albeit with up front transition costs. Incrementalism has to be perfectly planned and executed to get there in the end — very risky, to be sure. cc @KA_Boothe https://t.co/7m54lTs3Tv

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Patient Critical Co-op @PatientCritical·

20 May

“chair of Canadian Doctors for Medicare (asks why a) health minister )doesn’t consult with) other stakeholders such as doctors, patients, labour groups & employers.

"to participate in such a one-sided forum...clearly business interests at play, I think it's problematic."”

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Patient Critical Co-op @PatientCritical·

20 May

“these numbers...demonstrate the madness of our system & further hinder our quest to calculate a fair price that rewards the industry without bankrupting patients.

Which is precisely what profiteering drug companies want to avoid.” #pharmacare

h/t @DennisKendel #transparency

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Patient Critical Co-op @PatientCritical·

20 May

What everyone wants.

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Sean Hackett @cnuhackett·

20 May

The ratio of paramedics to population in Ontario is near 1/3 of Alberta, and 1/2 of BC. This has a direct impact on the safety of rural populations
An analysis of avoidable mortality by remoteness index in Canada ⁦@CIHI_ICIS⁩ ⁦@celliottability https://t.co/9P0Q3XEX9e

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Dr Paul Gill @drpaulgill·

20 May

@sbrudnicki @PatientCritical @DonaldLepp I think most of us have at some point used “no news is good news” but I find it poisons other calls where I just want to create a shared plan for normal result with anxiety that I am sharing bad news from a patient perspective.

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Patient Critical Co-op @PatientCritical·

20 May

Clear rules/chain of responsibility & timelines along with compensation must be enshrined in laws to ensure no patient overlooked, no clinicoan overburdened.

To avoid overcompensation at expense of other dr’s we need double-dipping rules & value-based evaluation of compensation.

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Patient Critical Co-op @PatientCritical·

20 May

It’s demanding too much of dr-time to explain normal or no-result tests when non-life threatening concerns book a week out.

Appointments should be modified to effectively use resources & bolster #shareddecisionmaking & #informedconsent

(& team w/#alliedhealth to educate)

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Patient Critical Co-op @PatientCritical·

20 May

People can’t afford their meds.
Before the election comes our last chance to pass @janephilpott’s drug pricing plan “against predatory pricing(& for)value for money (&) negotiations based...cost-effective...drugs.”
@MA_Gagnon⁩ ⁦@cherylsimoneau⁩ https://t.co/uoZ26iN5Rr

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Donna Rubenstein » Advocates

Donna Rubenstein

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A discussion with Canadian journalist and author Andre Picard, exploring healthcare policy, what matters to Canadians and the importance of collective responsibility in culture change.

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