Beth Campbell Duke &raquo; Advocates

Reply on Twitter 1220548225029091328 Retweet on Twitter 12205482250290913281 Like on Twitter 12205482250290913281 Twitter 1220548225029091328

10h

Similar arguments are made by #bigpharma when profit is threatened by legislation and price controls.

#bigdata is big business.
#transparency & #accountability is required to protect patients.
https://www.cnbc.com/2020/01/22/epic-ceo-sends-letter-urging-hospitals-to-oppose-hhs-data-sharing-rule.html

Retweet on Twitter Patient Critical Co-op Retweeted

Anne Marie Cunningham @amcunningham·

22 Jan

If you are a patient or care-giver you can now email Elsevier to get access to journal articles https://www.elsevier.com/connect/access-for-patients-and-other-ways-to-get-elsevier-articles-without-a-subscription (via @mrgunn)

Reply on Twitter 1220120367609581568 Retweet on Twitter 122012036760958156856 Like on Twitter 122012036760958156852 Twitter 1220120367609581568

Reply on Twitter 1219705366222643205 Retweet on Twitter 1219705366222643205 Like on Twitter 12197053662226432053 Twitter 1219705366222643205

21 Jan

Unpleasant truth: patients -even overwhelmed- are responsible for making #patientpartnership work.

Patients have a responsibility to insist how we are included in #codesign.

If we wait to be consulted after decisions are made we have surrendered #shareddecisionmaking to others.

Retweet on Twitter Patient Critical Co-op Retweeted

Danielle Martin@docdanielle·

20 Jan

Canada needs a “Health in All Policies” action plan now - clear and convincing call in today's @CMAJ @PGfor https://www.cmaj.ca/content/192/3/E61

Reply on Twitter 1219271773876867072 Retweet on Twitter 121927177387686707238 Like on Twitter 1219271773876867072135 Twitter 1219271773876867072

Retweet on Twitter Patient Critical Co-op Retweeted

Health Standards Org @HSO_world·

13 Jan

YOU'RE INVITED to "Let’s Get Real: Patients must be Partners - The How Edition." Join our Feb 6 #webinar and learn HOW you can engage effectively for positive change. Register here: #peoplepoweredhealth #patientsmustbepartners #peoplecentredcare https://bit.ly/35OnNZC

Reply on Twitter 1216792425005506560 Retweet on Twitter 121679242500550656019 Like on Twitter 121679242500550656033 Twitter 1216792425005506560

Retweet on Twitter Patient Critical Co-op Retweeted

Dr. Brian Goldman @NightShiftMD·

Reply on Twitter 1218718969860952065 Retweet on Twitter 121871896986095206550 Like on Twitter 1218718969860952065332 Twitter 1218718969860952065

This. This. And this. https://twitter.com/TheSGEM/status/1218717089801830402

Reply on Twitter 1218900454110892035 Retweet on Twitter 12189004541108920352 Like on Twitter 12189004541108920357 Twitter 1218900454110892035

"Never assume that what you are seeing or experiencing is everyone else’s reality. Look to data to give you a clear picture...leaders in the field to give you a sense of where things are going. And in the case of online communications...sometimes means e-patients, not clinicians"

Reply on Twitter 1218893087231107073 Retweet on Twitter 12188930872311070734 Like on Twitter 121889308723110707311 Twitter 1218893087231107073

.@susannahfox captures why continued investing in #data #silos is wrong:
"We should all be working toward freeing the data &..., building the infrastructure & tools that allows someone to..say, “Yes, I’m ready. Now, how do I get my data?” https://susannahfox.com/2019/09/16/why-should-anyone-care-about-health-data-interoperability/ #takeontech2020

Reply on Twitter 1218890000668012544 Retweet on Twitter 1218890000668012544 Like on Twitter 12188900006680125441 Twitter 1218890000668012544

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

Retweet on Twitter Patient Critical Co-op Retweeted

Sean Molloy @SeanJMolloy·

Reply on Twitter 1218737185811312640 Retweet on Twitter 12187371858113126403 Like on Twitter 12187371858113126408 Twitter 1218737185811312640

There is no greater manifestation of this than electronic medical records - designed for billing/utilization, not people. The greatest workaround is “the portal.” #design #EMR #EHR @mulegirl https://twitter.com/mulegirl/status/1218568764213493760

Retweet on Twitter Patient Critical Co-op Retweeted

Ryan Doherty, PhD @ryansdoherty·

17 Jan

@jillpromoli @AngieHamson @anetto @SolidFooting @PFEAMorin @pttopt @GilmanFamily @couragesings @PatientCritical
When going to a hospital, nursing home, or healthcare facility during flu season, would you want to know the % of staff who had received a flushot? Some are as low as 15-50%...

Reply on Twitter 1217994390091849728 Retweet on Twitter 12179943900918497282 Like on Twitter 12179943900918497283 Twitter 1217994390091849728

Reply on Twitter 1217909512436441088 Retweet on Twitter 1217909512436441088 Like on Twitter 12179095124364410881 Twitter 1217909512436441088

16 Jan

Very promising! Agree Canada needs to own its own data cohort of this size/kind.

Am curious what protections you have to ensure orgs don't use data in unintended ways-as with @23andMe sale to @GSK, Google/Deepmind/NHS & other public trust/#bigdata controversies?

#CADTHtalks

Retweet on Twitter Patient Critical Co-op Retweeted

Paul Wright RN @paulwrightpfcc·

Reply on Twitter 1217580608760606720 Retweet on Twitter 121758060876060672033 Like on Twitter 121758060876060672064 Twitter 1217580608760606720

Proud to share Alberta Health Services has officially launched its educational #endpjparalysis website for patients, families , care providers and interested colleagues across the world. https://www.albertahealthservices.ca/info/Page15971.aspx @BrianwDolan @ikhenderson @PeteGordon68 @JenniferSymon1 @mkfrdmn

Retweet on Twitter Patient Critical Co-op Retweeted

Dr. Theresa Tam@CPHO_Canada·

Reply on Twitter 1217477170827755520 Retweet on Twitter 12174771708277555208 Like on Twitter 121747717082775552011 Twitter 1217477170827755520

Cdns use the health system in many ways—medical appointments, flu clinics, medical emergencies. All parts of Canada’s health system can help eliminate #stigma as a barrier to care. Find out how you can join me to #EndStigma: http://ow.ly/QvwX50xPeKm

Retweet on Twitter Patient Critical Co-op Retweeted

Julie Drury @SolidFooting·

Reply on Twitter 1217260708125204480 Retweet on Twitter 12172607081252044802 Like on Twitter 12172607081252044804 Twitter 1217260708125204480

What do you mean when you say X?

Understand your organizational culture when it comes to partnering with families, then ask "What can we do better?" https://twitter.com/KathyKastner/status/1217260050013655040

Retweet on Twitter Patient Critical Co-op Retweeted

Dr. Brian Goldman @NightShiftMD·

Reply on Twitter 1217512215336480768 Retweet on Twitter 121751221533648076822 Like on Twitter 121751221533648076877 Twitter 1217512215336480768

'A good news story': Lanark becomes first in Canada to adopt Icelandic model for reducing teen social harm http://ottawacitizen.com/news/local-news/a-good-news-story-lanark-becomes-first-in-canada-to-adopt-icelandic-model-for-reducing-teen-social-harm/ If you want to know what it's about, check out this episode of @cbcwhitecoat : http://bit.ly/2CRPc2R

Retweet on Twitter Patient Critical Co-op Retweeted

Victor Montori, MD@vmontori·

Reply on Twitter 1217456546365558784 Retweet on Twitter 12174565463655587847 Like on Twitter 121745654636555878443 Twitter 1217456546365558784

Great grand rounds at @MayoClinicEndo by Professor @doreen_rabi on the challenges of guidelines and care including this set of great quotes including one by @KerUnit’s @ihargraves

Reply on Twitter 1217264300231921665 Retweet on Twitter 1217264300231921665 Like on Twitter 1217264300231921665 Twitter 1217264300231921665

A5: NONE OF THE ABOVE until Patients, Families and Caregivers have a seat at the very first table:
where decisions are made. In board rooms, the admin offices, C Suites.

There is no #codesign & we'll never be #BetterTogether without that level of #codesign to start.

Reply on Twitter 1217263378797879298 Retweet on Twitter 1217263378797879298 Like on Twitter 12172633787978792983 Twitter 1217263378797879298

Yes! PFC Presence lacks process, tools and techniques to manage the people side of change in healthcare!

Without hard numbers & strong commitments we can't achieve any outcomes, or truly focus on how people & processes are impacted by the changes we are making. #BetterTogether