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Photo of Beth Campbell Duke

Beth Campbell Duke

Personal Victoria British Columbia Canada Web: Transplant Rogues

Categories: Health Literacy, Other Advocacy, Patient Engagement, Professional Advocate, Service Availability, Volunteer

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Photo of Paul Gallant

Paul Gallant

Professional 550 Pacific St Suite 2008 Vancouver BC V6Z3G2 Phone: 6049999164

Categories: British Columbia, Patient Engagement, Professional Advocate, Service Availability

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Photo of Claudia Hernandez

Claudia Hernandez

Email: claherria@hotmail.com Linkedin: Claudia Hernandez

Categories: Canada, Caregiver Advocate, Digital Health, Health Literacy, Ontario, Patient Engagement, Patient Inclusion in Research, Patient Safety, Political Advocacy, Service Availability, Volunteer

Updated 2 weeks ago.

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Photo of PJ Mierau

PJ Mierau

Personal Canada Email: pj@patientcritical.com Skype: PatientCritical

Categories: Digital Health, Health Literacy, Ontario, Service Availability, Volunteer

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Stacy Kennedy @MrsMarambio·

I’m in the ER. Listening to a woman plead to stay w/ her sick, hard of hearing relative who cannot verbally communicate their needs & symptoms. This is heart breaking. @celliottability it is long overdue to include caregivers/advocates in certain medical circumstances. #COVID19

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Patient Critical Co-op @PatientCritical·

Why did patients & caregivers lose their 'rights' during #covid19?

Read the fine print on your region's declaration of patient rights. From Ontario: "...not intended to establish, alter or affect any legal rights or obligations". #morethanavisitor

https://www.ontario.ca/page/patient-declaration-values-ontario

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Patient Critical Co-op @PatientCritical·

You have a right to ask for a second opinion. This @MIPS_PtSafety can help you plan how to do it.

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Patient Critical Co-op @PatientCritical·

"I follow the policy (but) harm we aim to prevent (doesn't outweigh) harm we are causing. #COVID19 will be with us for months or years...it’s time to cautiously invite families & friends back...we can’t deliver truly compassionate care without them."

https://cmajblogs.com/revisiting-the-no-visitors-policy/

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Patient Critical Co-op @PatientCritical·

To truly heal from #COVID19 we must accept and face #healthinequities beyond health conditions & traditional #sdoh.

Where we live, what services we can access and ways we can keep ourselves healthy are all very real
*commercial* determinants of health.

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Ahmed @AAlJaishi·

@picardonhealth @SharkawyMD @TorontoStar @DFisman People not following public health advice / protocols is part of the reason why we are seeing so many more new #COVID19 cases in the #GTA.
#WashYourHands #Masks4All #PhysicalDistancing

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Patient Critical Co-op @PatientCritical·

Excellent collection of insights, recommendations and strategies to encourage institutions to welcome caregiver and family presence back into the circle of care.

Please read and share what strikes a chord with your circles.

cc @PlaneTree @clairehsnyman

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Jane Philpott@janephilpott·

This is painful and expensive. I announced these plans on May 16, 2017. It should not take almost 4 years to implement. https://www.canada.ca/en/health-canada/news/2017/05/economic_club_ofcanada-may162017.html #LowerDrugCosts https://twitter.com/MA_Gagnon/status/1267480306334007296

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Patient Critical Co-op @PatientCritical·

Important to note @PMPRB_CEPMB has again postponed amendments for patented drug prices.

These amendments were suggested by then health minister @janephilpott over three years ago.

cc @HealthCoalition @Pharmacare2020

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Ken Jaques 🇨🇦@kenjaques·

Improving health literacy and empowering patients CAN improve patient outcomes and make health care systems sustainable.

If, and only if, we have the courage to improve health literacy and empower patients. https://twitter.com/kenjaques/status/1266353598352547842

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Patient Critical Co-op @PatientCritical·

There's not just one #COVID19 pandemic.
#sdoh #morethanavisitor #cdnhealth

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Patient Critical Co-op @PatientCritical·

"PHAC signed a foolish agreement that gives provinces a veto(to)censor anything embarrassing. We are sitting ducks for a second wave.

"Quebec, Ontario & Alberta...responsible for 94% of #COVID-19 cases in Canada...not strengthening national unity...tugging at its weakest seams."

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Patient Critical Co-op @PatientCritical·

Canada "collects (#COVIDー19) reports from provinces by fax, but stupidly asks for “email notification” of fax w/o attaching the reporting form...this system is cratering."

@GovCanHealth "possesses detailed data on just 36%(of)cases...leaving Canada dangerously blind" #axethefax

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Patient Critical Co-op @PatientCritical·

.@profamirattaran: Our progress...unimpressive compared to Europe & Asia. Our testing is so broken down that it lags behind Rwanda’s & Ethiopia’s...Canada is bungling (#COVIDー19 )...as a health scientist(&)constitutional lawyer...the seeds of our failure are everywhere.

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Patient Critical Co-op @PatientCritical·

"If...family were admitted to the hospital... I would never accept...I could not be at their bedside. I can wear PPE...self-isolate...all the necessary precautions to mitigate...same as any other staff member. The benefit...far outweighs any risk I present."

#morethanavisitor

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Patient Critical Co-op @PatientCritical·

Some think zoom meetings offer a leveling effect. Some worry highest paid/ranked still dominate.

Perhaps both are true depending on the org? Read & consider if there's something your org could learn from.

@SolidFooting @anetto @aidanminded @imaginecitizens @CMA_Docs

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Jane Philpott@janephilpott·

My talk w @TheAgenda's @NickFDunne: COVID19 shows how failure to focus on social issues has devastating economic consequences. For too long, we've measured society's success by whether we have a rising GDP. That's not the best measure of a healthy society. https://www.tvo.org/article/canadians-are-speaking-up-jane-philpott-on-the-state-of-long-article-care

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Rachel Martens @RaeofSunshine79·

Was speaking with an advocate recently about how they engage and partner with the end goal of making themselves irrelevant. Are you making space for new voices?

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Patient Critical Co-op @PatientCritical·

With proper training & #ppe #Covid_19 education, responsible caregivers can be #morethanavisitor & support our overtaxed #healthcare workers.

@patientscanada must see the need for more transparent rules & appeals processes for caregivers at the very least.

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Patient Critical Co-op @PatientCritical·

With respect, as leader of @PatientsCanada don't you feel a need to advocate *for* caregivers as #morethanavisitor?

No one wants all-out visitation, but recognition that providers are overburdened & patients suffering without caregivers & their praised $Billion savings/services.

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