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Patient Inclusion in Research.

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Mary Branchaniec

Personal New Brunswick

Categories: Caregiver Advocate, New Brunswick, Patient Inclusion in Research

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Photo of Francine Buchanan

Francine Buchanan

Personal Mississauga ON Phone: 4164737946 Email: buchanan.fr@gmail.com

Categories: Ontario, Patient Engagement, Patient Inclusion in Research

Updated 8 months ago.

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Photo of Tina Ceroni

Tina Ceroni

Personal Toronto Ontario

Categories: Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research

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Photo of Christine Chambers

Christine Chambers

Professor of Pediatrics & Psychology Dalhousie UniversityIWK Health Center

Personal Halifax Nova Scotia Web: It Doesn’t Have To Hurt

Categories: Patient Engagement, Patient Inclusion in Research, Professional Advocate, Volunteer

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Photo of Nadia Hillier

Nadia Hillier

Personal Halifax NS Email: Hilliernadia@hotmail.com

Categories: Canada, Mental Health, Nova Scotia, Patient Engagement, Patient Inclusion in Research, Patient Safety

Updated 8 months ago.

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Photo of Sandra Holdsworth

Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

Updated 8 months ago.

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Photo of Mathieu Jackson

Mathieu Jackson

Email: mathieu.jackson@ceppp.ca

Categories: Access to Records, Digital Health, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Political Advocacy, Quebec, Volunteer

Updated 6 months ago.

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Photo of Donna Rubenstein

Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 11 months ago.

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Photo of Bill Swan

Bill Swan

Personal Hubley Nova Scotia Email: bill@facesofpharmacare.ca Web: Faces of Pharmacare

Categories: Expansion of Public Health, Mental Health, Nova Scotia, Patient Inclusion in Research, Pharmaceutical, Political Advocacy, Professional Advocate, Volunteer

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Photo of David Wells

David Wells

Personal Fredericton NB E3B 3V4 Phone: 5064707908 Email: dew@unb.ca

Categories: Digital Health, Health Literacy, New Brunswick, Patient Engagement, Patient Inclusion in Research, Patient Safety

Updated 6 months ago.

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Marc-André Gagnon @MA_Gagnon·

Industry influence and Health Canada's responsibility: lessons from the opioid epidemic in Canada https://onlinelibrary.wiley.com/doi/10.1111/add.14929#.XisWMHBOIsY.twitter

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Health Standards Org @HSO_world·

They share an acronym, but "patient-centred care" and "people-centred care" are in fact very different. Our patient leaders Hélène Cambpell and Heather Thiessen explain how. https://healthstandards.org/general-updates/people-vs-patient-centred-care-whats-difference/ #peoplepoweredhealth @alungstory @HeatherPina44

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Zayna Khayat, PhD @ZaynaKhayat·

'It can be very taxing on families': New study reflects unmet needs of Canadian caregivers | CBC News https://www.cbc.ca/news/canada/saskatchewan/new-study-reflects-unmet-needs-of-canadian-caregivers-1.5436281?__vfz=medium%3Dsharebar

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Patient Critical Co-op @PatientCritical·

Being a (cough) wearable fan, I can (taps for heart rate) personally vouch for these findings. In real time. 🤒

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Patient Critical Co-op @PatientCritical·

"North America...already has a social credit system that is comparable if not worse than the Chinese... (Worse,) it remains largely hidden. Collected & used in private, to judge us, & determine our eligibility for services & status."
@jessehirsh @metaviews
http://email.mg1.substack.com/c/eJxVUNGKxCAM_Jr6tkWttt0HHw6W_Y2S2rSVq7Zo3KN_f3YXDg4iMTOBzIwFwmWPpzn2RCwnjIObjG4Uv6s7mwzvpO1G5tIwR0QPbjPsyOPmLJDbw7Us2r6XbDWKg5ZaKEAxQjPLpnSltJonLUH3DbtODJAnh8GiwRfGcw_INrMSHalqvir5LOWR4OXwJ9Upj4nAftd294U4yku7dbDdbMTJ0W0B78JyoxVv6UyEvmqemfzgC5vL8HgrrmR7gRb8AW4JBbYEBQR7WShjWiEic0ZyybmQSpSPVrWouRKdVqqV4tF1z66tFPeL-KeLRZMoz_NFOYyQ65yuhIbC-RwcnQMGGDecDMWMjD5Jv7Og80ATitMNiTB-wJJoUdD1d1bOTHsxEMxfJL-WqZKf

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Patient Critical Co-op @PatientCritical·

Similar arguments are made by #bigpharma when profit is threatened by legislation and price controls.

#bigdata is big business.
#transparency & #accountability is required to protect patients.
https://www.cnbc.com/2020/01/22/epic-ceo-sends-letter-urging-hospitals-to-oppose-hhs-data-sharing-rule.html

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Anne Marie Cunningham @amcunningham·

If you are a patient or care-giver you can now email Elsevier to get access to journal articles https://www.elsevier.com/connect/access-for-patients-and-other-ways-to-get-elsevier-articles-without-a-subscription (via @mrgunn)

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Patient Critical Co-op @PatientCritical·

Unpleasant truth: patients -even overwhelmed- are responsible for making #patientpartnership work.

Patients have a responsibility to insist how we are included in #codesign.

If we wait to be consulted after decisions are made we have surrendered #shareddecisionmaking to others.

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Danielle Martin@docdanielle·

Canada needs a “Health in All Policies” action plan now - clear and convincing call in today's @CMAJ @PGfor https://www.cmaj.ca/content/192/3/E61

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Health Standards Org @HSO_world·

YOU'RE INVITED to "Let’s Get Real: Patients must be Partners - The How Edition." Join our Feb 6 #webinar and learn HOW you can engage effectively for positive change. Register here: #peoplepoweredhealth #patientsmustbepartners #peoplecentredcare https://bit.ly/35OnNZC

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Dr. Brian Goldman @NightShiftMD·

This. This. And this. https://twitter.com/TheSGEM/status/1218717089801830402

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Patient Critical Co-op @PatientCritical·

"Never assume that what you are seeing or experiencing is everyone else’s reality. Look to data to give you a clear picture...leaders in the field to give you a sense of where things are going. And in the case of online communications...sometimes means e-patients, not clinicians"

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Patient Critical Co-op @PatientCritical·

.@susannahfox captures why continued investing in #data #silos is wrong:
"We should all be working toward freeing the data &..., building the infrastructure & tools that allows someone to..say, “Yes, I’m ready. Now, how do I get my data?” https://susannahfox.com/2019/09/16/why-should-anyone-care-about-health-data-interoperability/ #takeontech2020

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Patient Critical Co-op @PatientCritical·

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

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Sean Molloy @SeanJMolloy·

There is no greater manifestation of this than electronic medical records - designed for billing/utilization, not people. The greatest workaround is “the portal.” #design #EMR #EHR @mulegirl https://twitter.com/mulegirl/status/1218568764213493760

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Ryan Doherty, PhD @ryansdoherty·

@jillpromoli @AngieHamson @anetto @SolidFooting @PFEAMorin @pttopt @GilmanFamily @couragesings @PatientCritical
When going to a hospital, nursing home, or healthcare facility during flu season, would you want to know the % of staff who had received a flushot? Some are as low as 15-50%...

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Patient Critical Co-op @PatientCritical·

Very promising! Agree Canada needs to own its own data cohort of this size/kind.

Am curious what protections you have to ensure orgs don't use data in unintended ways-as with @23andMe sale to @GSK, Google/Deepmind/NHS & other public trust/#bigdata controversies?

#CADTHtalks

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Paul Wright RN @paulwrightpfcc·

Proud to share Alberta Health Services has officially launched its educational #endpjparalysis website for patients, families , care providers and interested colleagues across the world. https://www.albertahealthservices.ca/info/Page15971.aspx @BrianwDolan @ikhenderson @PeteGordon68 @JenniferSymon1 @mkfrdmn

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Dr. Theresa Tam@CPHO_Canada·

Cdns use the health system in many ways—medical appointments, flu clinics, medical emergencies. All parts of Canada’s health system can help eliminate #stigma as a barrier to care. Find out how you can join me to #EndStigma: http://ow.ly/QvwX50xPeKm

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Julie Drury @SolidFooting·

What do you mean when you say X?

Understand your organizational culture when it comes to partnering with families, then ask "What can we do better?" https://twitter.com/KathyKastner/status/1217260050013655040

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