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Patient Inclusion in Research.

Photo of Mary Branchaniec

Mary Branchaniec

Personal New Brunswick

Categories: Caregiver Advocate, New Brunswick, Patient Inclusion in Research

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Photo of Francine Buchanan

Francine Buchanan

Personal Mississauga ON Phone: 4164737946 Email: buchanan.fr@gmail.com

Categories: Ontario, Patient Engagement, Patient Inclusion in Research

Updated 3 months ago.

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Photo of Tina Ceroni

Tina Ceroni

Personal Toronto Ontario

Categories: Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research

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Photo of Christine Chambers

Christine Chambers

Professor of Pediatrics & Psychology Dalhousie UniversityIWK Health Center

Personal Halifax Nova Scotia Web: It Doesn’t Have To Hurt

Categories: Patient Engagement, Patient Inclusion in Research, Professional Advocate, Volunteer

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Photo of Nadia Hillier

Nadia Hillier

Personal Halifax NS Email: Hilliernadia@hotmail.com

Categories: Canada, Mental Health, Nova Scotia, Patient Engagement, Patient Inclusion in Research, Patient Safety

Updated 3 months ago.

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Photo of Sandra Holdsworth

Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

Updated 2 months ago.

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Photo of Mathieu Jackson

Mathieu Jackson

Email: mathieu.jackson@ceppp.ca

Categories: Access to Records, Digital Health, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Political Advocacy, Quebec, Volunteer

Updated 3 weeks ago.

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Photo of Donna Rubenstein

Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 6 months ago.

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Photo of Bill Swan

Bill Swan

Personal Hubley Nova Scotia Email: bill@facesofpharmacare.ca Web: Faces of Pharmacare

Categories: Expansion of Public Health, Mental Health, Nova Scotia, Patient Inclusion in Research, Pharmaceutical, Political Advocacy, Professional Advocate, Volunteer

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Photo of David Wells

David Wells

Personal Fredericton NB E3B 3V4 Phone: 5064707908 Email: dew@unb.ca

Categories: Digital Health, Health Literacy, New Brunswick, Patient Engagement, Patient Inclusion in Research, Patient Safety

Updated 3 weeks ago.

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Julie Drury @SolidFooting·

Attention patient partners. CFHI is a leader in the space of patient partnership. They are offering a part time role for a patient partner with their organization.
RT to share
cc @OneMoreThing2Do @PatientCritical @PatientAdvisors @PatientsCanada https://t.co/t7UcR5lqrf

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Lesley Barron @drlesleybarron·

@dpepe88 Well I am already. I'll take you one further and say every consult should be a form of eConsult. I send back a number of referrals to GPs each week. Also would make studying the data on referrals much easier.

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Amy Ma @Ctzen_Improver·

@SolidFooting It would appear as though the people who have the power have a vested interest in keeping the status quo, while the end-user (patients and caregivers) must rely on the benevolence of leadership to change things, even if patient safety is at stake. #WhyWeRevolt

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Patient Critical Co-op @PatientCritical·

Our open letter to national parties who want to govern Canada: https://t.co/d1RcQDXwiV

Pls. share, RT & ask your reps: https://t.co/1z79VNrsbX

@MercedesGlobal #CMAHealthSummit #VoteforHealth @DocSandyB @drgigiosler

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Patient Critical Co-op @PatientCritical·

Bureaucratic, remuneration barriers impede public desire for digital health—while private orgs innovate/eat public’s lunch.

⁦@drgigiosler⁩ : “our health care system is strained...we need to innovate...tech is available...we need to connect the dots“ https://t.co/jSi7tBoe4F

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NB PIHCI Network @NBPIHCINetwork·

📅Mark your calendars! We will be hosting a #TweetChat with our friends at the @maritimespor September 10th. Sneak peak: We'll be touching on #HowToDoPatientEngagement and #ThePatientsDen

#PatientsDen #PatientEngagement #SPOR @NBHRF @UNB

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

We have responsibility to be stewards of the environment. A clinician I used to work with, who was much sought after as a speaker, had rule of thumb. She would not travel to a scientific meeting if travel time there & back was longer than participation time at the conference/mtg https://t.co/c7IynUFSJq

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Paul Peters, PhD 💧@unitepangaea·

It is power that causes systemic health inequities (Pathologies of Power).

It is also empowerment that improves individual health outcomes.

But, these two must come together. Dismantling structures of inequity and empowering individuals.
#PatientEngagement https://t.co/cPCKAhRyGp

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Patient Critical Co-op @PatientCritical·

How adopting Arnstein’s Ladder of Citizen Participation alongside IAP2 spectrum can help governments & cities to engage more meaningfully with their citizens. https://t.co/gzE3ASmPsG

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Patient Critical Co-op @PatientCritical·

“The 10 largest pharmaceutical companies in Canada gave more than $151 million to doctors and hospitals...over the last 2 years.

But unlike the U.S. & many EU countries, Canada has no legislation compelling drug companies to reveal (why)” https://t.co/uQgYfeWVPA

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Patient Critical Co-op @PatientCritical·

Patient Critical Co-op believes quality healthcare requires #patientvoice as an equal partner w/clinicians, industry & gov’t.

Join us!
https://t.co/83eeBIubjD

Advocate Directory
https://t.co/EJ9OoTpZJK

Podcast
https://t.co/WS15TJrxE7

Resource Hub
https://t.co/stpDwcBtve

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Patient Critical Co-op @PatientCritical·

Digital records, #EHR can be eval’d via #patientpartnership lens:

IN-PERSON <-> DIGITAL

Inform <-> “Let” Pt View
Consult <-> Invite Feedback
Involve <-> Ask what’s missing
Collaborate <-> Submit Data
Empower <-> Pt is Admin

#emr #phr @myopennotes

https://t.co/Cu21oYPsAG

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Steve Morgan @SteveUBC·

Over 1,200 academic experts in health care and public policy have signed a letter calling on federal political parties to commit to the implementation of universal, comprehensive, public pharmacare without delay. details at https://t.co/CLK82Nv4yA #pharmacare #CDNhealth #elxn43

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Justin Noble @Justin_Noble_·

@PatientCritical @Infoway Thanks for the kind words :) Yes to both questions: patient advisors (this year the incredible @ProulxLaurie and @DonnaRubenstein) set the criteria and make the selections. An update is planned for the scholarship webpage with this info.

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CBC Saskatchewan@CBCSask·

Saskatchewan Health Authority pulls 'whistleblower hotline' proposal https://t.co/YHHpTZvxuI

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Patient Critical Co-op @PatientCritical·

In short: education & info patients can access to make healthcare choices-compared to junk food or yogurt-is tragic.

It will only change if journalists focus on inequities & consumers demand gov impose #transparency & mandate more education & choice.

https://t.co/U4NUS2orou

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Health Standards Org @HSO_world·

YOUR VOICE MATTERS: We are pleased to share three draft standards for your review. Please share this post with those who want to provide and receive quality health and social services for all: #peoplepoweredhealth #standardsmatter #strongertogether

https://t.co/PyhXLvSsq9

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Patient Critical Co-op @PatientCritical·

Digital records, #EHR can be eval’d via #patientpartnership lens:

IN-PERSON <-> DIGITAL

Inform <-> “Let” Pt View
Consult <-> Invite Feedback
Involve <-> Ask what’s missing
Collaborate <-> Submit Data
Empower <-> Pt is Admin

#emr #phr @myopennotes

https://t.co/Cu21oYPsAG

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Patient Critical Co-op @PatientCritical·

So very, very ditto. Next time!

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Patient Critical Co-op @PatientCritical·

Returning from @CMA_Docs #cmahealthsummit inspired by conversations, shared learning, new/renewed friendships.

Great to share passion for healthcare improvement w/like-minded clinicians, industry & policy-makers.

Still a way to go w/ #patientinclusion-but we’re working on it :)

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