Other Advocacy &raquo; Advocates

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Hey researchers. When you receive support letters from patients or other knowledge users, always give an update on the status of your project, and provide opportunities for engagement. Research impact is all about building relationships and communication. https://t.co/xVZ1wbP1AV

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Robin McGee @TCOrobin·

9h

The Cancer Olympics adventures: Hyperbaric oxygen therapy and Bowie/Queen's "Under Pressure." https://t.co/XaN2ldMRjv

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9h

Could be innovative: NHSX will work with @NHSEngland to build world-class digital services, improve care for patients & enable medical research to action the Long Term Plan for the NHS including setting policy & best practice's for technology, #datasharing and #transparency.

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9h

Co-op members: check your inboxes!

Sometimes being the only national patient-owned advocacy co-op taking NO money from outside orgs allows us to 'punch above our weight'.

Like now :)

Read your email, have your say & thank you for strengthening #patientvoice in Canada!

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We would like to invite you to become a member of Canada's national, patient owned healthcare co-op.

We podcast, curate resources & represent #patientvoice to business & government on behalf of members & all Canadians.

New voices & fresh ideas welcome! https://t.co/ideRaEV9LN

2

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Generics didn't spike in Canada because pharma made a deal to cut prices 25% for a promise to cut open tendering fo 5 yrs.

Tendering would force co's to compete on price & ensure supply @SteveUBC argues.

Let's see what happens in 3.5 years with generics. https://t.co/60vcANjpBt

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13h

Binding arbitration removes spending cap on @ontariosdoctors.

At same time it requires them to eliminate $460 Million in inappropriate billing.

How will this arbitration affect 8 specialties @specialistsON who left OMA?

Thx @cathyfaulds @theresaboyle
https://t.co/ccNoAWhaXs

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13h

Binding arbitration removes spending cap on @ontariosdoctors.

At same time it requires them to eliminate $460 Million in inappropriate billing.

How will this arbitration affect 8 specialties @specialistsON who left OMA?

Thx @cathyfaulds @theresaboyle
https://t.co/ccNoAWhaXs

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14h

Interesting thought experiment on creating a truly patient-centric future health record & the obstacles to getting one. Hat tip to @ZaynaKhayat #hcldr #codesign #patientdata

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Generics didn't spike in Canada because pharma made a deal to cut prices 25% for a promise to cut open tendering fo 5 yrs.

Tendering would force co's to compete on price & ensure supply @SteveUBC argues.

Let's see what happens in 3.5 years with generics.

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A litlte #blockchain will clear that 5G right up, Jesse.

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Mike Zajko @mczajko·

18 Feb

Six in 10 Canadians surveyed said they are expecting Facebook to have a negative or somewhat negative impact on the next federal election, scheduled for Oct. 21. https://t.co/q8RwZRmrER

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We would like to invite you to become a member of Canada's national, patient owned healthcare co-op.

We podcast, curate resources & represent #patientvoice to business & government on behalf of members & all Canadians.

New voices & fresh ideas welcome! https://t.co/ideRaEV9LN

2

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This.

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18 Feb

I'm often asked 'who watches out for patients?' Doubly so about #digitalhealth.

You might be surprised at the answer.

This is a thread about #digitalhealth innovation-funded Federally & steered 'at arm's length' to the tune of $300 Million dollars over 5 years through @infoway.

2

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Sherry Reynolds 🌟@Cascadia·

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Building on the last 10 years of work @ONC_HealthIT and patient advocates @ePatientDave @ReginaHolliday
myself @HealthPrivacy @HugoOC

@CMSGov agrees “Patient data belongs to the patient”

(note: new rule is claims vs clinical data - focused on payers) https://t.co/EzvVil9KmO https://t.co/IH66S01MRq

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The Change Foundation @TheChangeFdn·

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In our newly launched toolkit, we’ve packaged together all the tools, resources, reports and learnings we’ve put out along the way, in an effort to help others learn from our experience with co-design and caregivers. Explore the toolkit now: https://t.co/nTf2JMDLoY

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sue robins @suerobinsyvr·

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@seastarbatita I was once a patient rep on a health planning conference committee. I was told: only patients with graduate degrees would be able to review abstracts. When I questioned this, I was rebuffed. Do people with grad degrees have a lock on expertise? I detect academic elitism at play.