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Photo of Beth Campbell Duke

Beth Campbell Duke

Personal Victoria British Columbia Canada Web: Transplant Rogues

Categories: Health Literacy, Other Advocacy, Patient Engagement, Professional Advocate, Service Availability, Volunteer

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Photo of Tina Ceroni

Tina Ceroni

Personal Toronto Ontario

Categories: Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research

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Photo of Sandra Holdsworth

Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

Updated 8 months ago.

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Photo of Mathieu Jackson

Mathieu Jackson

Email: mathieu.jackson@ceppp.ca

Categories: Access to Records, Digital Health, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Political Advocacy, Quebec, Volunteer

Updated 6 months ago.

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Photo of Maggie Keresteci

Maggie Keresteci

Email: maggiekeresteci@gmail.com

Categories: Access to Records, Caregiver Advocate, Ontario, Other Advocacy, Patient Engagement, Political Advocacy, Volunteer

Updated 8 months ago.

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Photo of Shanon McQuitty

Shanon McQuitty

Personal Vancouver British Columbia

Categories: British Columbia, Other Advocacy, Patient Engagement, Volunteer

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Photo of Beverley Pomeroy

Beverley Pomeroy

Personal 16 4959 57th Street Delta BC V4K 3E7 Phone: 6046121548 Email: bevcpomeroy@gmail.com

Categories: British Columbia, Caregiver Advocate, Health Literacy, Other Advocacy, Patient Engagement, Professional Advocate

Updated 9 months ago.

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Photo of Donna Rubenstein

Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 11 months ago.

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Patient Critical Co-op @PatientCritical·

"There are barriers to widespread adoption...#privacy concerns...funding. But with a #healthsystem at capacity & a population anxious...time to thoughtfully unleash the potential of #virtualcare."

@willfalk @janinemccready @sacha_bhatia @DrJoshuaTepper https://www.cdhowe.org/intelligence-memos/bhatia-falk-mccready-tepper-%E2%80%93-responding-coronavirus-building-capacity-through

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Ilan Shahin @IlanShahin·

“It is harder to build a business focused on clinical quality or patient value than to milk the status quo. But once established, revenue models take on a life and logic of their own. Please choose carefully.” And yes, govt-funded projects have “revenue” models too. https://twitter.com/annafoat/status/1222206663136088065

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Patient Critical Co-op @PatientCritical·

Not more portals.
Not more pilot programs.
Not more #silos or pockets of excellence.

National, interoperable #digitalhealth with the patient in control of their own data.

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Danyaal Raza @DanyaalRaza·

Tomorrow is #BellLetsTalk day in support of mental health, unless you're on the wrong side of @bell's prison phone contract.

Consistency matters.

@CANADALAND goes deep here:

https://www.canadalandshow.com/podcast/311-lets-talk-about-bells-harmful-prison-phone-contract/

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Patient Critical Co-op @PatientCritical·

Great meeting today with @Infoway VP Shelagh Maloney & Angela Jonsson, Sr. Director for Stakeholder Engagement.

I value their goals to keep improving feedback, Healthy Dialogue, #patientsaspartners, #digitalhealth, @ACCESS2022 & #codesign of care with all stakeholders @12Maloney

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Kristin Cleverley @ClevKristin·

Report from @kidsmentalhlth released Monday, says 28,000 children/youth in Ontario are on wait lists for #mentalhealth treatment across the province - up from ~12,000 in 2017. This is not acceptable, we need ++ investment! #mentalhealthishealth https://twitter.com/cp24/status/1221759202324025345

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Harlan Krumholz @hmkyale·

From the audience: My daughter has 23 patient portals… [this is the reality for many people w/complex conditions… and shows why single portal doesn’t address their needs - and how hard it is to capture details of the patient journey with data… currently] @ONC_HealthIT #onc2020

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Cormac Russell @CormacRussell·

Prof. Myrra Vernooij-Dassen tells us in no uncertain terms if you want to address loneliness; evidence is clear on what not to do: Don’t address loneliness directly. It’s a stigmatizing term that ppl who’re lonely don’t want to be associated with. Instead build community. #ABCD

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Patient Critical Co-op @PatientCritical·

"Parliamentary Budget Office estimate...universal public (#pharmacare) would save Canadians $4.2B (&) Advisory Council (estimates) $5B a year"

BUT

"pharmacare means overcoming the interests of those who benefit from the status quo."
https://www.macleans.ca/opinion/national-pharmacare-the-time-is-now/amp/?__twitter_impression=true

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Canadian Doctors for Medicare @CdnDrs4Medicare·

"The Hoskins Report is done, the election promises have been made, the Ministers’ mandate letters are clear and the majority of MPs are with us. Canadians are ready. It’s time for pharmacare." #cdnhealth #cdnpoli https://canadianlabour.ca/pharmacare-advocates-to-new-parliament-the-time-for-pharmacare-is-now/

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Canadian Doctors for Medicare @CdnDrs4Medicare·

NDP Leader Jagmeet Singh announced earlier today that his party expects to table a bill that will lay out the framework for universal pharmacare for all. #cdnhealth #cdnpoli https://globalnews.ca/video/6451744/jagmeet-singh-announces-tabling-of-universal-pharmacare-bill

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Patient Critical Co-op @PatientCritical·

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

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Patient Critical Co-op @PatientCritical·

This is why @PatientCritical Co-op accepts no outside funding:

Study: "groups sponsored by industry (show) positions favourable to the sponsor"

We need to "foster independent patient groups...transparent & accountable practices & codes on funding."
https://blogs.bmj.com/bmj/2020/01/22/the-prevalence-of-industry-funding-of-patient-groups/?utm_campaign=shareaholic&utm_medium=twitter&utm_source=socialnetwork

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Patient Critical Co-op @PatientCritical·

Epic sent an email co-signed by other healthcare CEOs that misrepresents #interoperability.

Why? #BigData wants sole control of your data.

"Consumerism in healthcare...& EHR vendors should not...hide behind claims of false security risks to avoid it."

https://www.darenasolutions.com/blog/epics-letter-to-hhs-facts-vs-fiction

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Debra BoyceMD @dboyceMD·

For those recalling practice during #SARs , one significant change now as we face #coronaviruscanada is communication esp social media #medtwitter
Use it for good. Spread reliable, useful information.
Follow ID MDs and Orgs.
@HotaSusy @ipacuhn help us out please
#ReliableID🇨🇦

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Patient Critical Co-op @PatientCritical·

"CFIB want to see the ON govt replace all fax machines by the end of 2020 & other outdated paper forms with digital technology."

This only covers govt offices-not hospitals, insurers or clinicians offices.

Need #legislation to do this where patients are--where it matters most. https://twitter.com/dpepe88/status/1221128258630160385

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Annette McKinnon @anetto·

When patients are consulted 92% desire physicians to explain all potential options, elicit their preferences, and engage them in preference and knowledge exchange to some extent. Reality: only 39% of patients felt that Shared Decision Making occurred in their consultations. 1/2

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Patient Critical Co-op @PatientCritical·

"CFIB want to see the ON govt replace all fax machines by the end of 2020 & other outdated paper forms with digital technology."

This only covers govt offices-not hospitals, insurers or clinicians offices.

Need #legislation to do this where patients are--where it matters most.

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Patient Critical Co-op @PatientCritical·

Similar arguments are made by #bigpharma when profit is threatened by legislation and price controls.

#bigdata is big business.
#transparency & #accountability is required to protect patients.
https://www.cnbc.com/2020/01/22/epic-ceo-sends-letter-urging-hospitals-to-oppose-hhs-data-sharing-rule.html

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Patient Critical Co-op @PatientCritical·

Patient Critical Co-op speaks for members, patients & caregivers.

Check out this video to meet some of our members & see what matters to folks like YOU in #healthcare!

Watch here: http://youtu.be/To1HXqsXMD8

#patientsincluded #patientengagement #patientvoice

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