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Photo of Beth Campbell Duke

Beth Campbell Duke

Personal Victoria British Columbia Canada Web: Transplant Rogues

Categories: Health Literacy, Other Advocacy, Patient Engagement, Professional Advocate, Service Availability, Volunteer

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Photo of Jess Havens

Jess Havens

Personal Calgary Email: jessthavens@gmail.com

Categories: Alberta, Health Literacy, Patient Engagement

Updated 9 months ago.

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Photo of Sandra Holdsworth

Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

Updated 7 months ago.

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Photo of Ken Jaques

Ken Jaques

Personal Ottawa ON Email: ken@myhealthycommunity.ca

Categories: Fitness and Wellness, Health Literacy, Ontario, Patient Engagement

Updated 8 months ago.

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Photo of Virginia McIntyre

Virginia McIntyre

Personal Coldbrook NS Email: V.mcintyre14@hotmail.com

Categories: Access to Records, Fitness and Wellness, Health Literacy, Nova Scotia, Patient Engagement

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Photo of PJ Mierau

PJ Mierau

Personal Canada Email: pj@patientcritical.com Skype: PatientCritical

Categories: Digital Health, Health Literacy, Ontario, Service Availability, Volunteer

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Photo of Beverley Pomeroy

Beverley Pomeroy

Personal 16 4959 57th Street Delta BC V4K 3E7 Phone: 6046121548 Email: bevcpomeroy@gmail.com

Categories: British Columbia, Caregiver Advocate, Health Literacy, Other Advocacy, Patient Engagement, Professional Advocate

Updated 9 months ago.

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Photo of Donna Rubenstein

Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 11 months ago.

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Photo of Claire Snyman

Claire Snyman

Email: claire@twosteps.ca

Categories: Access to Records, Canada, Health Literacy, Patient Engagement, Patient Safety, Volunteer

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Photo of Carolyn Thomas

Carolyn Thomas

Personal Victoria BC Email: heart_sisters@yahoo.ca

Categories: British Columbia, Health Literacy

Updated 8 months ago.

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Photo of David Wells

David Wells

Personal Fredericton NB E3B 3V4 Phone: 5064707908 Email: dew@unb.ca

Categories: Digital Health, Health Literacy, New Brunswick, Patient Engagement, Patient Inclusion in Research, Patient Safety

Updated 6 months ago.

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Patient Critical Co-op @PatientCritical·

Unpleasant truth: patients -even overwhelmed- are responsible for making #patientpartnership work.

Patients have a responsibility to insist how we are included in #codesign.

If we wait to be consulted after decisions are made we have surrendered #shareddecisionmaking to others.

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Danielle Martin@docdanielle·

Canada needs a “Health in All Policies” action plan now - clear and convincing call in today's @CMAJ @PGfor https://www.cmaj.ca/content/192/3/E61

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Health Standards Org @HSO_world·

YOU'RE INVITED to "Let’s Get Real: Patients must be Partners - The How Edition." Join our Feb 6 #webinar and learn HOW you can engage effectively for positive change. Register here: #peoplepoweredhealth #patientsmustbepartners #peoplecentredcare https://bit.ly/35OnNZC

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Dr. Brian Goldman @NightShiftMD·

This. This. And this. https://twitter.com/TheSGEM/status/1218717089801830402

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Patient Critical Co-op @PatientCritical·

"Never assume that what you are seeing or experiencing is everyone else’s reality. Look to data to give you a clear picture...leaders in the field to give you a sense of where things are going. And in the case of online communications...sometimes means e-patients, not clinicians"

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Patient Critical Co-op @PatientCritical·

.@susannahfox captures why continued investing in #data #silos is wrong:
"We should all be working toward freeing the data &..., building the infrastructure & tools that allows someone to..say, “Yes, I’m ready. Now, how do I get my data?” https://susannahfox.com/2019/09/16/why-should-anyone-care-about-health-data-interoperability/ #takeontech2020

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Patient Critical Co-op @PatientCritical·

This article mentions one thing I want to see--a solution we need INSTEAD of 18 more incomplete, non-sharing portals (on our way to true #interoperability):

"Create An Immediate Bridge...Using Technology That Consumers Have Right Now—(secure)Email"

http://tiny.cc/uvjviz

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Sean Molloy @SeanJMolloy·

There is no greater manifestation of this than electronic medical records - designed for billing/utilization, not people. The greatest workaround is “the portal.” #design #EMR #EHR @mulegirl https://twitter.com/mulegirl/status/1218568764213493760

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Ryan Doherty, PhD @ryansdoherty·

@jillpromoli @AngieHamson @anetto @SolidFooting @PFEAMorin @pttopt @GilmanFamily @couragesings @PatientCritical
When going to a hospital, nursing home, or healthcare facility during flu season, would you want to know the % of staff who had received a flushot? Some are as low as 15-50%...

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Patient Critical Co-op @PatientCritical·

Very promising! Agree Canada needs to own its own data cohort of this size/kind.

Am curious what protections you have to ensure orgs don't use data in unintended ways-as with @23andMe sale to @GSK, Google/Deepmind/NHS & other public trust/#bigdata controversies?

#CADTHtalks

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Paul Wright RN @paulwrightpfcc·

Proud to share Alberta Health Services has officially launched its educational #endpjparalysis website for patients, families , care providers and interested colleagues across the world. https://www.albertahealthservices.ca/info/Page15971.aspx @BrianwDolan @ikhenderson @PeteGordon68 @JenniferSymon1 @mkfrdmn

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Dr. Theresa Tam@CPHO_Canada·

Cdns use the health system in many ways—medical appointments, flu clinics, medical emergencies. All parts of Canada’s health system can help eliminate #stigma as a barrier to care. Find out how you can join me to #EndStigma: http://ow.ly/QvwX50xPeKm

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Julie Drury @SolidFooting·

What do you mean when you say X?

Understand your organizational culture when it comes to partnering with families, then ask "What can we do better?" https://twitter.com/KathyKastner/status/1217260050013655040

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Dr. Brian Goldman @NightShiftMD·

'A good news story': Lanark becomes first in Canada to adopt Icelandic model for reducing teen social harm http://ottawacitizen.com/news/local-news/a-good-news-story-lanark-becomes-first-in-canada-to-adopt-icelandic-model-for-reducing-teen-social-harm/ If you want to know what it's about, check out this episode of @cbcwhitecoat : http://bit.ly/2CRPc2R

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Victor Montori, MD@vmontori·

Great grand rounds at @MayoClinicEndo by Professor @doreen_rabi on the challenges of guidelines and care including this set of great quotes including one by @KerUnit’s @ihargraves

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Patient Critical Co-op @PatientCritical·

A5: NONE OF THE ABOVE until Patients, Families and Caregivers have a seat at the very first table:
where decisions are made. In board rooms, the admin offices, C Suites.

There is no #codesign & we'll never be #BetterTogether without that level of #codesign to start.

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Patient Critical Co-op @PatientCritical·

Yes! PFC Presence lacks process, tools and techniques to manage the people side of change in healthcare!

Without hard numbers & strong commitments we can't achieve any outcomes, or truly focus on how people & processes are impacted by the changes we are making. #BetterTogether

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Patient Critical Co-op @PatientCritical·

Involve patients, caregivers and families from the beginning.

That means hard targets, and advocating for funding changes based on successes and challenges to meet true #codesign.

Sentiment alone will not make us #BetterTogether, it has to be genuinely responsive & inclusive.

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Patient Critical Co-op @PatientCritical·

A3: Teach PFAC how to emotionally & within their institutional role, truly advocate for the patients.

How many of us have heard PFACs side w/staff against patients they're there to serve, when labeled difficult?

Guidelines, funding & oversight remain challenges. #BetterTogether

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kathy kastner @KathyKastner·

#BetterTogether jumping in late T3: may sound simple, may be considered a 'given' : ensure your PFAC understand acronyms, jargon, the language of health care, and not afraid to ask

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