Digital Health &raquo; Advocates

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5h

This op-ed against @PMPRB_CEPMB reforms also links to one in favor.

Read both & decide if you believe #bigpharma's reasons for current low R&D-on record profits.

Then decide if you believe their promise to do better if Feds don't tighten regulations :) https://t.co/E8PNDYsRHB.

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23 Jun

There are some key steps that may help patients secure a seat at the healthcare table:

-learn as much as you can & share with others

-treat other stakeholders w/same respect you want for patients

-don't take $ from gov't or biz: your voice blends w/theirs

#patientsaspartners

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22 Jun

"Shared decision making is not a ‘one and done’ process – evaluate the management decisions along the way." https://t.co/Jmwfe1BKx2

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20 Jun

Homes for homeless in Helsinki reduce "addictions, mental health issues, medical conditions that need ongoing care...savings in emergency healthcare, social services & justice system...as much as €15,000 a year (from) properly supported housing." #sdoh
https://t.co/M6V3ax4zJB

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20 Jun

“Total spending is up by $5 billion total over the Liberals.”
#transparency #accountability

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“real change involves a 180-degree systemic attitude shift...“Doctors have to be willing to be vulnerable...admit mistakes & uncertainty...ask Q’s of a concerned patient...: ‘When did you start to think I was missing something here?’
⁦@vmontori⁩ https://t.co/NFWnj5aQGc

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Ford gov plans to eliminate 825 full time equivalent positions at health agencies... to be merged into Ontario Health (super-agency)

During last year’s election...Ford repeatedly promised...not a single person would lose their job under his gov’t. #onpoli https://t.co/W8PBwfdzDx

Retweet on Twitter Patient Critical Co-op Retweeted

Julie Drury @SolidFooting·

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@atgreenhill @RavKarumanchi @creativedlab @barneyp @getcareteam @drcadesky @Philip_Edgcumbe @IrfanDhalla So what is at the core of fragmentation?
Power - and a willingness to share it.
Lack of vision and short term solutions to complex issues.
Fear of 'cost' and an unwillingness to invest for long term gain.
Consistent policy that outlines parameters for 'system' interoperability

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Julie Drury @SolidFooting·

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Ottawa announces federal dementia strategy.
https://t.co/5FbEPTSiB7

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My dad was scheduled for invasive surgery today.

After great physical/psychological prep & 3+ hrs in pre-op, surgeon had to extend another surgery & cancel dad’s-but we understood.

Then the surgeon called & personally apologized.

Now THAT’s personalized medicine!

#humantouch

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#patientsaspartners

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“If we continually prompt ourselves to think about our care, our systems, our compensation systems, our leader selection process through the eyes of a mechanic who is about to fly in a plane that s/he is repairing, it changes the game.” https://t.co/fr7DyBpo4J

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Victor Montori, MD@vmontori·

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A1. As a clinician, a hurried consultation is one in which I choose not to pursue a patient hint cause doing so would take time I don’t have (e.g., other patients are waiting, already too late) and doing so makes me feel as if I did not fully care for the patient. #WhyWeRevolt

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Darren Larsen @larsendarren·

17 Jun

This is a terrific article by @DrAliDamji in CJPL where Canada can learn from health innovations created in Sweden. Flipping the framework, patient safety receipts and "what's best for Esther" are excellent examples of easy grass roots change. Read on! https://t.co/phKpufpmXx

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Patient Advisors @PatientAdvisors·

16 Jun

Patients and caregivers who have been to conferences this year - Please fill out our survey about your experiences at conferences in 2019. #SPOREA2019 #CADTHSymp #IS3P2019 #CAHSPRForum2019 ALL Conferences https://t.co/H4TmjlKUHN

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17 Jun

Bill Swan @PharmacareFaces & @dianawhalenNS discuss their support of @DrEricHoskins recommendation for national #pharmacare on Maritime Connection @cbcradio

I'd like to see far more opportunity for public input to grow public awareness here.

Listen here: https://t.co/EagrH5GtUs

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Love to share thoughts and honestly discuss this, too.

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This wk @patientcritical sent a #patientinclusion survey to health conferences that offer patient awards-incl:

-how many invited?
-what costs covered?
-set scorecard used?
-how many jurors (patients?)
-jurors public & unaffiliated to avoid any bias?

Stay tuned #patientsincluded

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The proof of commitment to #patientsaspartners?

Which orgs tie performance bonuses, profit-sharing & board makeup to true #codesign?

Don’t let orgs call selves ‘patient-inclusive’ unless patients sit on all boards, w/#transparency & public roles to make decisions with teeth.

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Carole Ann Alloway @Allowayca·