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Photo of Sandra Holdsworth

Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

Updated 2 weeks ago.

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Photo of Maggie Keresteci

Maggie Keresteci

Email: maggiekeresteci@gmail.com

Categories: Access to Records, Caregiver Advocate, Ontario, Other Advocacy, Patient Engagement, Political Advocacy, Volunteer

Updated 4 weeks ago.

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Photo of Robin McGee

Robin McGee

Phone: 902 670-5607 Email: robin.mcgee@avrsb.ca Web: The Cancer Olympics

Categories: Access to Records, Nova Scotia, Patient Engagement, Patient Safety

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Photo of Virginia McIntyre

Virginia McIntyre

Personal Coldbrook NS Email: V.mcintyre14@hotmail.com

Categories: Access to Records, Fitness and Wellness, Health Literacy, Nova Scotia, Patient Engagement

Updated 9 months ago.

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Photo of Donna Rubenstein

Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 4 months ago.

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Photo of Claire Snyman

Claire Snyman

Email: claire@twosteps.ca

Categories: Access to Records, Canada, Health Literacy, Patient Engagement, Patient Safety, Volunteer

Updated 6 months ago.

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Patient Critical Co-op @PatientCritical·

This op-ed against @PMPRB_CEPMB reforms also links to one in favor.

Read both & decide if you believe #bigpharma's reasons for current low R&D-on record profits.

Then decide if you believe their promise to do better if Feds don't tighten regulations :) https://t.co/E8PNDYsRHB.

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Patient Critical Co-op @PatientCritical·

There are some key steps that may help patients secure a seat at the healthcare table:

-learn as much as you can & share with others

-treat other stakeholders w/same respect you want for patients

-don't take $ from gov't or biz: your voice blends w/theirs

#patientsaspartners

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Patient Critical Co-op @PatientCritical·

"Shared decision making is not a ‘one and done’ process – evaluate the management decisions along the way." https://t.co/Jmwfe1BKx2

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Patient Critical Co-op @PatientCritical·

Homes for homeless in Helsinki reduce "addictions, mental health issues, medical conditions that need ongoing care...savings in emergency healthcare, social services & justice system...as much as €15,000 a year (from) properly supported housing." #sdoh
https://t.co/M6V3ax4zJB

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Patient Critical Co-op @PatientCritical·

“Total spending is up by $5 billion total over the Liberals.”
#transparency #accountability

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Patient Critical Co-op @PatientCritical·

“real change involves a 180-degree systemic attitude shift...“Doctors have to be willing to be vulnerable...admit mistakes & uncertainty...ask Q’s of a concerned patient...: ‘When did you start to think I was missing something here?’
⁦@vmontori⁩ https://t.co/NFWnj5aQGc

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Patient Critical Co-op @PatientCritical·

Ford gov plans to eliminate 825 full time equivalent positions at health agencies... to be merged into Ontario Health (super-agency)

During last year’s election...Ford repeatedly promised...not a single person would lose their job under his gov’t. #onpoli https://t.co/W8PBwfdzDx

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Julie Drury @SolidFooting·

@atgreenhill @RavKarumanchi @creativedlab @barneyp @getcareteam @drcadesky @Philip_Edgcumbe @IrfanDhalla So what is at the core of fragmentation?
Power - and a willingness to share it.
Lack of vision and short term solutions to complex issues.
Fear of 'cost' and an unwillingness to invest for long term gain.
Consistent policy that outlines parameters for 'system' interoperability

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Julie Drury @SolidFooting·

Ottawa announces federal dementia strategy.
https://t.co/5FbEPTSiB7

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Patient Critical Co-op @PatientCritical·

My dad was scheduled for invasive surgery today.

After great physical/psychological prep & 3+ hrs in pre-op, surgeon had to extend another surgery & cancel dad’s-but we understood.

Then the surgeon called & personally apologized.

Now THAT’s personalized medicine!

#humantouch

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Patient Critical Co-op @PatientCritical·

#patientsaspartners

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Patient Critical Co-op @PatientCritical·

“If we continually prompt ourselves to think about our care, our systems, our compensation systems, our leader selection process through the eyes of a mechanic who is about to fly in a plane that s/he is repairing, it changes the game.” https://t.co/fr7DyBpo4J

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Victor Montori, MD@vmontori·

A1. As a clinician, a hurried consultation is one in which I choose not to pursue a patient hint cause doing so would take time I don’t have (e.g., other patients are waiting, already too late) and doing so makes me feel as if I did not fully care for the patient. #WhyWeRevolt

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Darren Larsen @larsendarren·

This is a terrific article by @DrAliDamji in CJPL where Canada can learn from health innovations created in Sweden. Flipping the framework, patient safety receipts and "what's best for Esther" are excellent examples of easy grass roots change. Read on! https://t.co/phKpufpmXx

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Patient Advisors @PatientAdvisors·

Patients and caregivers who have been to conferences this year - Please fill out our survey about your experiences at conferences in 2019. #SPOREA2019 #CADTHSymp #IS3P2019 #CAHSPRForum2019 ALL Conferences https://t.co/H4TmjlKUHN

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Patient Critical Co-op @PatientCritical·

Bill Swan @PharmacareFaces & @dianawhalenNS discuss their support of @DrEricHoskins recommendation for national #pharmacare on Maritime Connection @cbcradio

I'd like to see far more opportunity for public input to grow public awareness here.

Listen here: https://t.co/EagrH5GtUs

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Patient Critical Co-op @PatientCritical·

Love to share thoughts and honestly discuss this, too.

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Patient Critical Co-op @PatientCritical·

This wk @patientcritical sent a #patientinclusion survey to health conferences that offer patient awards-incl:

-how many invited?
-what costs covered?
-set scorecard used?
-how many jurors (patients?)
-jurors public & unaffiliated to avoid any bias?

Stay tuned #patientsincluded

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Patient Critical Co-op @PatientCritical·

The proof of commitment to #patientsaspartners?

Which orgs tie performance bonuses, profit-sharing & board makeup to true #codesign?

Don’t let orgs call selves ‘patient-inclusive’ unless patients sit on all boards, w/#transparency & public roles to make decisions with teeth.

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Carole Ann Alloway @Allowayca·

@SolidFooting @Hanigsberg @PFEAMorin @MaggieKeresteci @JodemeGoldhar @ihpmeuoft @TheChangeFdn If we want to get integrated, co-designed #healthcare have CEOs salary/bonus dependent on patient and caregiver experience and health outcomes @celliottability

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