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Jana Buhlmann

Email: baldgrrl@gmail.com

Categories: Access to Records, British Columbia, Caregiver Advocate, Digital Health, Expansion of Public Health, Mental Health, Patient Engagement, Volunteer

Updated 9 months ago.

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Sydney Graham

Personal Toronto Ontario Personal 59 Albertus Ave Toronto Ontario M4R 1J5 Email: SydneyGrahamConsulting@outlook.com Linkedin: Sydney Graham

Categories: Access to Records, Canada, Caregiver Advocate, Digital Health, Mental Health, Patient Engagement, Patient Inclusion in Research, Patient Safety

Updated 6 months ago.

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Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

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Mathieu Jackson

Email: mathieu.jackson@ceppp.ca

Categories: Access to Records, Digital Health, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Political Advocacy, Quebec, Volunteer

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Maggie Keresteci

Email: maggiekeresteci@gmail.com

Categories: Access to Records, Caregiver Advocate, Ontario, Other Advocacy, Patient Engagement, Political Advocacy, Volunteer

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Robin McGee

Phone: 902 670-5607 Email: robin.mcgee@avrsb.ca Web: The Cancer Olympics

Categories: Access to Records, Nova Scotia, Patient Engagement, Patient Safety

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Virginia McIntyre

Personal Coldbrook NS Email: V.mcintyre14@hotmail.com

Categories: Access to Records, Fitness and Wellness, Health Literacy, Nova Scotia, Patient Engagement

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Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

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Photo of Claire Snyman

Claire Snyman

Email: claire@twosteps.ca

Categories: Access to Records, Canada, Health Literacy, Patient Engagement, Patient Safety, Volunteer

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Patient Critical Co-op @PatientCritical·

Acknowledging that patients are all at different points in their journey, some don't want to access data, some may want to only learn from their doctor.

Creating a transparent system to automate #patientdata access is important all the same, and allows for eduation & growth.

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Patient Critical Co-op @PatientCritical·

Doctors can be amazing advocates for their patients. Patient data ownership is an area there is tremendous disagreement.

With respect to how much doctors juggle, know, determine & decide...access to patient data should be complete, digital and instant--no decision required.

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Julie Drury @SolidFooting·

Attention patient, family, caregiver partners: @CFHI_FCASS scholarship opportunity for @i4_2020
#patientpartners #PatientExperience #patientleaders

Please RT to share @PatientCritical @PatientAdvisors @Patient_Safety @PatientsCanada
@imaginecitizens
@BCPSQC https://twitter.com/cfhi_fcass/status/1289181733762473990

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Marc-André Gagnon @MA_Gagnon·

“Despite ample warning, the U.S. squandered every possible opportunity to control the coronavirus,” @edyong209 writes. “And despite its considerable advantages—immense resources, biomedical might, scientific expertise—it floundered.” https://www.theatlantic.com/magazine/archive/2020/09/coronavirus-american-failure/614191/?utm_source=twitter&utm_medium=social&utm_campaign=share

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Nathan Stall@NathanStall·

Telemedicine has been dubbed "virtually perfect" in the #COVID19 era: https://www.nejm.org/doi/full/10.1056/nejmp2003539

New research by @drklam and @geri_doc reports that 38% of older adults are unready—especially those with cognitive/sensory impairment, poverty and low education: https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2768772

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The New York Times@nytimes·

The Israeli government, confident it had beaten the coronavirus, invited students back to school in May.

Within days, infections were reported at a Jerusalem high school. It became the largest outbreak in a single school in Israel, possibly the world. https://nyti.ms/2EJWh7H

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Patient Critical Co-op @PatientCritical·

Should masks be mandatory for all?

Should a grocery store sanitize and notify if a worker tests positive for #COVID19?

Should a teacher be required to disclose travel out of province & quarantine for 2 wks?

Should a doctor?

Are your answers the same for all 4 questions?

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Julie Drury @SolidFooting·

WHO Report. Family caregivers as essential care partners part of managing COVID 19 in LTC https://twitter.com/DavidCGrabowski/status/1287010420369379328

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Andrea D. Furlan MD PhD @adfurlan·

B.C. saw 728 opioid-related deaths in first half of 2020; 189 deaths from COVID-19

https://www.cbc.ca/radio/thecurrent/the-current-for-july-22-2020-1.5658469/after-her-son-died-of-an-overdose-this-woman-wants-to-fight-opioid-crisis-with-urgency-of-covid-19-1.5658472?__vfz=medium%3Dsharebar

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Patient Critical Co-op @PatientCritical·

This is a great list, I totally agree @anetto...but as #COVID19 has shown us...we have none of that.

We are much further removed than many of us thought we were just a few months ago.

We need widespread public support to get there, activating the general public to speak up.

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Patient Critical Co-op @PatientCritical·

Outside Toronto few can access #digitalhealth or portals.

When I stepped on on a rusty nail I called Public Health Unit to check my tetanus.

My PHU forwards after hrs to Public Works--which has no data access & advised me to try ER.

ER had no records either.

Wasteful. Costly.

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Patient Critical Co-op @PatientCritical·

We need people.

We need voices.

We need to amplify outside of social media. Phone calls and emails to decision makers.

Or our concerns will go nowhere.

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Patient Critical Co-op @PatientCritical·

GMail arguably offers good value for service: you get something in return & pay with your data.

Everyone has different comfort levels sharing data... but should know enough to make an informed decision.

Here's our talk with @jessehirsh on data literacy: https://patientcritical.com/podcast/jesse-hirsh-on-data-literacy/

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Patient Critical Co-op @PatientCritical·

A couple weeks back on @Infoway's Podcast we delved into Patient Empowerment w/Annette McKinnon, Aidan Scott & PJ Mierau.

This frank, raw conversation explores how digital interoperability & patient interoperability are colliding in the age of #covid19:
https://patientcritical.com/podcast/digital-vs-patient-interoperability/

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MedReal @MedReal9·

Excited to start planning for the strange upcoming year as we continue to try to bring real patient experience and journeys to the medical student curriculum!
PM us if you are a patient advocate who would like to teach and talk to medical students!
#Meded #patientadvocacy

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Dennis Kendel @DennisKendel·

@sburkedimitrova In the rush to reopen our economy, we have hugely expanded risk tolerance in the commercial sector while we've sustained painful lockdown of family engagement in healthcare @fordnation @MaggieKeresteci @SolidFooting @PatientCritical @Pts4Chg @PattyHajdu @CPHO_Canada

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Jana Buhlmann @baldgrrl·

Hey @PatientCritical members! Advocates for #patients and #caregivers! Come chat. About to open more space to talk about how we are doing in these present times.

Slack. 9:30am PST.

@anetto @SolidFooting @MaggieKeresteci

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Zayna Khayat, PhD @ZaynaKhayat·

Ontario gov seeking public input on proposed amendments to evolve the personal health information act, data interoperability, etc. - by July 22 https://www.ontariocanada.com/registry/view.do?postingId=32590&language=en

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Vivian Stamatopoulos @DrVivianS·

@joyous55 @AmitAryaMD @NightShiftMD @DrSamirSinha @MaggieKeresteci @MaireadCavanag2 @DorisGrinspun @Plibra123 @Priorhockey @JusticeWithNoBS @FamilyCouncils @FamilyOntario @PatientCritical @SolidFooting I spoke about this yesterday in both my CBC and CP24 interview. Throwing money at the issue won’t fix it....need to address the actual problems and allocate the money to where it’s needed (not just building the same inefficient facilities).

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Infoway@Infoway·

“There's only one person that the system needs to be interoperable with. And that's the patient.” Hear more from @aidanminded, as well as @patientcritical and @anetto, in the latest episode of our podcast. https://bit.ly/3dBP3hZ

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