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Photo of Sandra Holdsworth

Sandra Holdsworth

Personal Gravenhurst Ontario Email: sholds@sympatico.ca

Categories: Access to Records, Digital Health, Health Literacy, Ontario, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Volunteer

Updated 5 months ago.

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Mathieu Jackson

Email: mathieu.jackson@ceppp.ca

Categories: Access to Records, Digital Health, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Patient Safety, Political Advocacy, Quebec, Volunteer

Updated 4 months ago.

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Photo of Maggie Keresteci

Maggie Keresteci

Email: maggiekeresteci@gmail.com

Categories: Access to Records, Caregiver Advocate, Ontario, Other Advocacy, Patient Engagement, Political Advocacy, Volunteer

Updated 6 months ago.

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Robin McGee

Phone: 902 670-5607 Email: robin.mcgee@avrsb.ca Web: The Cancer Olympics

Categories: Access to Records, Nova Scotia, Patient Engagement, Patient Safety

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Photo of Virginia McIntyre

Virginia McIntyre

Personal Coldbrook NS Email: V.mcintyre14@hotmail.com

Categories: Access to Records, Fitness and Wellness, Health Literacy, Nova Scotia, Patient Engagement

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Photo of Donna Rubenstein

Donna Rubenstein

Email: donnaruben@gmail.com

Categories: Access to Records, Health Literacy, Mental Health, Nova Scotia, Other Advocacy, Patient Engagement, Patient Inclusion in Research, Volunteer

Updated 9 months ago.

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Photo of Claire Snyman

Claire Snyman

Email: claire@twosteps.ca

Categories: Access to Records, Canada, Health Literacy, Patient Engagement, Patient Safety, Volunteer

Updated 11 months ago.

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Patient Critical Co-op @PatientCritical·

#healthequity #abcd #healthequity #qualityto2019

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CanadianMedicalAssoc@CMA_Docs·

One year ago we made a call to assemble patients to create the #CMAPatientVoice. Learn about these outstanding individuals and how they support our advocacy work.

More: http://ow.ly/KtQQ30oNK64

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Patient Critical Co-op @PatientCritical·

We have pockets of excellence with many 'catches' like @anetto described---amid deserts of people w/no access.

When #bigdata #digitalhealth in Canada has virtually zero #legislation about #interoperability or #privacy #regulation to follow, how can we expect any #healthequity?

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Patient Critical Co-op @PatientCritical·

Matt Galloway has done a great job of building inclusive community, addressing issues this week such as poverty, loneliness, social determinants of health. @mattgallowaycbc

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Patient Critical Co-op @PatientCritical·

Andrew Boozary @drandrewb here talking loneliness, limits of #healthcare & needed transformation.

Andrew: you mirror @CormacRussell on Asset Based Community Development:
https://patientcritical.com/podcast/cormac-russell-asset-based-communities/

What cultural shifts can help build community & focus on gifts not deficits?

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Maggie Keresteci 🇨🇦@MaggieKeresteci·

All #patient & #caregiver stories matter. We have become a society that seeks dramatic sound bites but many patients & caregivers don’t have a Kleenex worthy crisis event. Rather they have a lifetime of small events that pile up, one on top of the other, nearly burying them alive

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Patient Critical Co-op @PatientCritical·

This is a good model to apply to see WHY software might not be useful.

IE: Don't prescribe the wrong drug/tool & blindly expect good results.

To #thinkdigitalhealth you need to be inclusive & #codesign something that is usable by all.

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Patient Critical Co-op @PatientCritical·

Great read how drug loyalty cards may:

-encourage brand-name drug use

-give #bigpharma access to patient info

-increase prescriptions requiring Brand-name drugs

-increase premiums & eventually rates

-financially incentivize patients to ask for costlier brand-name drugs

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Marc-André Gagnon @MA_Gagnon·

The female problem: how male bias in medical trials ruined women's health https://www.theguardian.com/lifeandstyle/2019/nov/13/the-female-problem-male-bias-in-medical-trials?CMP=share_btn_tw

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Nicola Bedlington @NABedlington·

Patients should be in the room when errors are discussed - creating a safer space for respectful exchange and learning , leading to real change @tessajlrichards #EPFCongress19

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Andreas Laupacis @AndreasLaupacis·

As a health care provider, I haven't thought enough (and therefore have done nothing) about my professional carbon footprint & that of my colleagues/our system. Time to start @DocSandyB https://twitter.com/CMAJ/status/1194820860030472192

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Patient Critical Co-op @PatientCritical·

Catch @docdanielle on CBC radio this morning?

Want to know why she hopes we spend less propping expensive hospitals & more to #thinkdigitalhealth in communities, listen to conversations with her & @cormacrussell:

https://patientcritical.com/podcast/big-health-ideas-dr-danielle-martin/

https://patientcritical.com/podcast/cormac-russell-asset-based-communities/ #abcd

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Patient Critical Co-op @PatientCritical·

Almost all #healthcare tech is digitized says @docdanielle on CBC radio Toronto but still hasn't reached patients.

#bigdata will transform patient-facing #healthcare, but must be a partnership with stronger primary care IN COMMUNITIES not hospitals.

#thinkdigitalhealth #abcd

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Patient Critical Co-op @PatientCritical·

Hospital overcrowding isn't about hospitals-says @docdanielle-but a lack of community, primary #healthcare.

We built temples to sickness & no support for wellness-based care.

On CBC radio Dr Martin argues we need upstream capaciy to keep people out of hospitals.
#sdoh #abcd

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Patient Critical Co-op @PatientCritical·

Perhaps those #digitalhealth tools not being accessed by patients were not #codesigned with patients.

Creating things for patients (not by, or with) is prescriptive & paternalistic & less likely to meet the needs they were designed for.

#thinkdigitalhealth

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Patient Critical Co-op @PatientCritical·

Patient Critical Co-op speaks for members, patients & caregivers.

Check out this video to meet some of our members & see what matters to folks like YOU in #healthcare!

Watch here: http://youtu.be/To1HXqsXMD8

#patientsincluded #patientengagement #patientvoice

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Stacey Tinianov @coffeemommy·

“People don’t like to be surprised about what happens with their health data and it’s unfortunate," McGraw (@HealthPrivacy of @ciitizencorp) said. "They've missed an opportunity to build trust." #MyHealthMyData #HIPAA #TRUST
https://www.politico.com/newsletters/morning-ehealth/2019/11/13/googles-partnership-alarms-patients-privacy-advocates-hhs-782279

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Patient Critical Co-op @PatientCritical·

#dataprivacy #publiccommons

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Patient Critical Co-op @PatientCritical·

Last yr @sacha_bhatia & @willfalk listed 10 steps to turn #thinkdigitalhealth into #digitalhealth strategy & care IE:

-fund virtual visits
-require Dr's use secure email
-legislation not arm's length advocacy
-set a deadline to transform

What came true?

https://www.cdhowe.org/sites/default/files/attachments/research_papers/mixed/E-Brief%20277.pdf

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Patient Critical Co-op @PatientCritical·

We respect @infoway is one of the closest adherents to #patientsincluded charter & really do try to connect.

At same time, it's not enough. We need to ask them for more #transparency, #accountability & #diversity in ways they work with advocates.

Always ready to discuss how! https://twitter.com/MaudeChampagne3/status/1194643662195572737

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